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Beaches Treatment - Harvoni (Aus PBS)

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Beaches Treatment - Harvoni (Aus PBS) 8 years 2 months ago #18599

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Well done Beaches. The delectable undetectable! #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: pat1, Ariel, beaches, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 2 months ago #18600

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Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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Beaches Treatment - Harvoni (Aus PBS) 8 years 2 months ago #18603

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We mermaids swim in schools Mike
Beaches is on the surface checking the ocean floor for predator and treasure alike, with wisdom of an ol nylon cosie and pink headwear to show her secret mermaid status (this is secret inside knowledge of Mermaid culture I share)
I'm the young frother one who plays on the surface all the time catching waves and pearls as I ride, but I wipeout too and have guzzled a lot of salt water :silly: PS I wear black to show my younger status lol
That ocean swim at Beaches location is no picnic the wave at the north end there is notorious for heavy hold downs don't wipe out! I have there.
I hope I have cleared up this debate on the purity and salty water of our pair of beautiful mermaid livers hee hee
A watery "tail" at ya!
So flippin happy for you sister mermaid
IN THE PINK YEW!

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Beaches Treatment - Harvoni (Aus PBS) 8 years 2 months ago #18608

mgalbrai wrote: Happy for you B!
We both responded very well to tx and look at those enzymes. Not as good as Ariel's, but fish are different...
m


Hey Mike!
"Would ya believe ... missed it by that much." :lol:
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21081

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Hi everyone

I have to say I'm feeling VERY relaxed coming up to 12 weeks post EOT. So relaxed that I'm not worried that I can't get back to the doc for 3 weeks after my bloods.

The months pass.
Sometimes fast sometimes slowly.

The odds are hugely in my favour, and in the unlikely event I do relapse, I have many options. More new treatments than I can keep up with, and if RPA can't help me I know I have somewhere to go.
Dr James I hope you know how this much means.

There have been many posts by people who are stressed out following EOT (including me). I read a comment in one of those posts implying that people weren't ready to live without the gift that keeps on giving.

Wrong, wrong, wrong.

IMNSHO it's more a case of feeling that the UND result is just too good to be true, more so for people who have been through the living hell of interferon. I reckon this is normal.To imply that people can't get into the mindset of being HepC free, well that is just weird to say the least.

Quite likely you have been feeling pretty damn fine during your treatment. In the weeks following EOT things will change as the meds leave your body. It took my body 9 to 10 weeks and a short break from work to stabilise. Looking back I realise I should have taken a week or 2 off straight after. I recommend this - do something that makes you happy, rest and take it all in. I'm aware it's not always possible but at least do small things that make you happy.

Feeling pretty happy and lucky that I have health back. It's a Big Deal

Here's a pic I took of a humpback whale while I was in Tonga earlier this month. Because cetaceans.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21085

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Hi B.,
thank you very much for posting this message.
It gives (at least to me) the peace of mind to wait with patience till reaching the 12 weeks after EOT.
I found also quite difficult the period that followed the EOT as the level of anxiety increased (having "ghosts" of possible relapse and no longer having the "shield" of the drugs - it makes me feel like sitting outside in the rain, not being sure whether I will catch a cold or not:) ).
I also kind of "stressed" some guys here on the forum asking them (via PM) how they felt and they were very kind to answer and encourage me. Many thanks to all of them.

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21087

Wow, I missed you're undetected post :cheer: :+1: , Good luck with SVR 12!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21089

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Beaches so thrilled to hear things are feeling right for ya!!!! :) :) :) :) :) :)

I am so not surprised that being at EOT and SVR are filled with huge constantly changing emotions. When something has effected you for many many years with no clear light at the end of the tunnel and an occassional bit o hope thrown your way that leads to nowhere other than feeling worse, there are going to be moments of elation yet some trepidation too when you finally feel that :woohoo: moment. Shaking off all the bad feelings from before takes time I am certain of it

Enjoy the moment Beaches! What a photo even the whale is happy for you! :lol:
love and hugs
Nadia
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21096

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The photo is not National Geographic quality,but I was there.
Lots of photo opportunities not taken. Just watched.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: pat1, Ariel, Matt-Kenney-google, Meg, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 3 weeks ago #21100

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Beaches yes a very relaxed post highlighted by the inclusion of a humpback whale with someone in the water very close to that huge creature #love #duck

In the weeks following EOT things will change as the meds leave your body. It took my body 9 to 10 weeks and a short break from work to stabilise. Looking back I realise I should have taken a week or 2 off straight after. I recommend this - do something that makes you happy, rest and take it all in. I'm aware it's not always possible but at least do small things that make you happy. #flower

Good advice, I agree it does take time to to readjust to a life free from HCV. For me it was also 8-10 weeks of readjustment as you said and so it's good to know what to expect after meds are withdrawn.
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
The following user(s) said Thank You: Vororo, mgalbrai, Ariel, Gaj, beaches, Matt-Kenney-google, Meg, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 2 weeks ago #21157

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Wow! Wonderful pic, and wonderful post beaches. You go girl!
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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Beaches Treatment - Harvoni (Aus PBS) 8 years 2 weeks ago #21164

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Got some bloods pulled very recently - other stuff being monitored.
Some pleasing improvements which are an indicator of good general health. The only way is up,baby
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: LondonGirl, pat1, Ariel, Matt-Kenney-google, Meg, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 2 weeks ago #21174

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Great results Beaches will be waiting for your SVR12 you go fellow mermaid girl, I am stoked to read your path is looking so awesome
Happy splashes of 10 degree Celsius water ha!
Ariel #flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1, beaches, Meg, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 2 weeks ago #21179

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Splashes back of steamy 17 degree Sydney swell #duck
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel, Meg, fitz

Beaches Treatment - Harvoni (Aus PBS) 8 years 2 weeks ago #21279

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LFTs back from a week ago.
VL not back yet.
BUT
Bilirubin 11
ALT 22
AST 20
Gamma 16
I think that looks rather good.
I will not be asking for SVR24
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: pat1, mgalbrai, Ariel, Greedfighter, Matt-Kenney-google, rohcvfighter, Meg
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