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Beaches Treatment - Harvoni (Aus PBS) 8 years 20 hours ago #21452
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Thank you Sven and Meg.
Fitz you are very kind. Pamela Anderson is one of my heroes. She is a passionate champion of ocean wildlife preservation, something close to my heart. Maybe even closer to my heart than my liver is   Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #21482
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Hey b,
Sorry, been outta the loop for a bit ... dealing with family crisis.  Sure needed some "good news" and here YOU are giving me just what I needed. Those vids and pics you shared, as well as the congratulatory ones others posted, just made me smile and give a shout of thanks for such a beautiful place to call home and such beauties as you and the rest of the creatures of the sea we all share it with .... Thanks beaches, GREAT NEWS!    Matt GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #21653
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Congratulations Beaches on your SVR 12! Such great news!
HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16 4wks VL <15 9 weeks VL UND, ; Alt-15,Ast-13 16 weeks VL UND Alt-20, Ast-22; EOT 24 wks UND SVR 4 UND SVR 12 UND, Alt.15, Ast. 17 SVR 24 UND |
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Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #22161
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Finally got to see the doc last Friday,
I had my 12 weeks post treatment bloods pulled at the end of August but the wait was due to my having an unexpected work commitment on the date of my original appintment. The HepC nurse told me my results by email, but it was good to get a hard copy of everything. She said I could get retested in 6 months or so but she didn't see the need and neither do I. I'll get my liver functions tested every year as part of a general health check and if anything looks strange I'll gt it checked. I feel like the effects of coming off the treatment have truly gone and that's pretty cool. A couple of observations: The doc thought I was pretty healthy prior to starting Tx. That was probably because I generally presented that way, plus she knows I have a fairly active lifestyle. I explained that I really didn't know that I was unwell until I got well. It probably took 2 months to feel normal after EOT. Atter I'd finished it my resting HR went up by about 10 BPM, but now it's back to normal. That was the most noticeable thing. I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had. 
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #22172
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Ahhhh freedom...
Congrats sis, Matt GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #22182
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Such great news Beaches. I know what you mean about not knowing how unwell you are until you are well. You now have a fantastic new normal. Swimming and mooching around the Costa Brava sounds damn fine too.
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
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Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #22248
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Doesn't get more official than this...
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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