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  • #9732
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    http://www.stuff.co.nz/national/health/75979256/kiwi-hepatitis-c-patients-getting-treatment-from-australian-drug-buyers-club


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #9734
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook
    #9768
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Good article Hazel now we are going to be swamped by even more East Islanders. :)


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #9821
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board. Em

    #9825
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board

    Hi Emlio,

    It’s been quietly happening for a while, baby steps but gathering momentum…

    Hi James

    Yes some good news for all Australian Hep C patients.

    We have written scripts for 4 patients here before Christmas, but I don’t know how many have gone through with signing up to the buyers club etc.

    We have a compounding pharmacy in Auckland who has compounded a few other buyers clubs meds as prescribed by a local gp.

    Hopefully NZ government will also get such a good price, I haven’t heard any news as to when this might be reconsidered. If its gradually introduced ie cirrhotics first Im sure there will still be ongoing interest in buying.

    Thanks for the trial link. We have another one this afternoon who wants to buy so will discuss Redemption etc.

    Cheers

    Dr at major NZ referral hospital


    YMMV

    #9856
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Phew, just did an NZ Radio Live interview. 6 mins. got fixhepc and Greg in 3x.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #9862
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook
    #9880
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Don’t expect you all to listen to this but here is today’s Radio Live interview- live. I had 15 mins warning for it.
    http://www.radiolive.co.nz/Dallas-Buyers-Club-type-operation-for-Hep-C-drug/tabid/506/articleID/111604/Default.aspx


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #9881
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    #woohoo!

    Go get em girlfriend!!!!!


    SVR 24

    #9882
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Good reporting Hazel – you definitely outshone the interviewer. :P
    I thought you sounded very natural and sincere, a really good advertisement for generic DAAs.
    Probably better that it was spontaneous, less time to get nervous.

    Go girls, 50,000 Kiwis to be cured. :woohoo:

    #9889
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations Hazel, I have just listened to your radio interview.
    I hope that you are able to inspire more people like us to take action.
    The very fact you have got to the radio and the media is incredible activism, I also really like the way you held the interviewer on point.
    I love visiting New Zealand. I have friends there in my global surfing community.
    What an opportunity to be able to speak out and get the message across.
    HUGE PROPS from across the Tasman from Ariel #love #love #love

    #9893
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Good job Hazel! That’s the way to get the word out. :+1:


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    #9895
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    WOW you really packed a lot of information into 6 minutes
    Great job

    Great video also


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #9896
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook
    #9897
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Fantastic interview Hazel!. :+1: :+1: :+1:

    Edit: and just watched the news clip too! Way to get the information out there.

    #woohoo!


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

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