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Nadia's journey 7 years 3 months ago #978

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Wow, how funny...food food...
I'm starting on monday...
I'm so curious!!

Nice to read all of your letters...amazing!
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Nadia's journey 7 years 3 months ago #1070

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Day 10 of my treatment and I still feel like I'm  coming down with a cold. The headache various from a mild to a bad one and needing aparacetamol. Also the body temperature is normal, it feels like I've got a mild fever and it's mostly the pressure on my eyes which makes them red and watery. Otherwise all good.
Virus not detected from 14.10.2015
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Nadia's journey 7 years 3 months ago #1078

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Hi Nadia,
I'm on Day 18 of Sof/Dac.
I also have a cold but there are a lot of colds going around at present. My husband has one.
I had a migraine on Saturday which I have I have not had in a while too.
Feeling like i'm on the mend now.
I can feel my liver stinging a bit. My imagination? Doing deep forward bends in yoga, it really felt swollen.
Undeniably there is also a big stress factor taking this on. Not entirely in a negative way, I guess we have to factor this in.
The journey so far has been a bit of a roller coaster for me.
I'm starting to feel a bit more settled now with the routine of it.
I'm trying to take some time to relax, breath and stretch.
all the best

Nadia's journey 7 years 3 months ago #1083

Thank-you for the reports Nadia & Vicki, and hope it all settles down soon for you both.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Nadia's journey 7 years 3 months ago #1093

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Hi Vicki,
I recon what you feel is actually your liver is shrinking. The inflamation is settling down and the tissues around liver is tender. I've herd about it from a few people and the ultrasound has confirmed that the liver size has become normal after tx.
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Nadia's journey 7 years 3 months ago #1094

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Thanks, LG
It's actually very manageable and doesn't stop me from doing my usual chores. The only change in my routine is luck of the gym exercises. Don't feel brave yo go to the gym at the moment.
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Nadia's journey 7 years 3 months ago #1095

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Vicki wrote: Hi Nadia,
I'm on Day 18 of Sof/Dac.
I also have a cold but there are a lot of colds going around at present. My husband has one.
I had a migraine on Saturday which I have I have not had in a while too.
Feeling like i'm on the mend now.
I can feel my liver stinging a bit. My imagination? Doing deep forward bends in yoga, it really felt swollen.
Undeniably there is also a big stress factor taking this on. Not entirely in a negative way, I guess we have to factor this in.
The journey so far has been a bit of a roller coaster for me.
I'm starting to feel a bit more settled now with the routine of it.
I'm trying to take some time to relax, breath and stretch.
all the best

Headache seems to come with the cold bug that's going around Vicki. My wife and son also have colds, and they both keep complaining about headaches. We had to come home early from a day out yesterday because my son was struggling with this. Like I say to everyone, the results of your first blood tests will make you feel much better.
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Nadia's journey 7 years 3 months ago #1107

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Thanks for the updates Nadia and Vickie hope things settle down for you both. Day 7 for me and I can't put my finger on any sides however being mid spring here I have hayfever and feel like shit anyway. I know what you mean about the liver sensations I've felt that a couple of times but thought I was imagining things. Energy levels are up there and I'm eating well lol. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Nadia's journey 7 years 3 months ago #1243

Hi to Nadia (I'm homesickalien from the hepcuk forum) & all those doing generic Sof/Dac treatments. Fascinating to follow this thread and see what side effects you are all having - I hope to be joining you soon once the Buyers Club has got me my meds.
Good luck!
Born 1954, male
Genotype: 3a
Infected: early 80s
Diagnosed: 2013
Treatment: 24 weeks Int/Riba 2014 relapsed,
currently waiting for Sof/Int/Riba treatment (12 weeks) on NHS
Fibroscan: 10.3-F3 in 2/2014
Latest Viral Load: 52000 in 6/2015
ALT, ALP & AFP all in normal range 6/2015

Nadia's journey 7 years 3 months ago #1244

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Hi Homesickalien,
I'm glad that you are following our footsteps and getting the meds. Good luck and hopefully you would not get any sides at all.
How many weeks are you planning to take Sof/Dac mix? In your case I would recommend you to extend your tx over 12 weeks but without Riba. You have probably developed the Riba resistance from your previous unsuccessful tx.
My side effects are mild and very manageable.
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Nadia's journey 7 years 3 months ago #1245

Hi All, Sorry Nadia if I may be hijacking your thread re Sof/Dac outcomes. I am 58 infected about 38-40 yrs ago and Geno 3a. I started on Sof/Dac on 8th Sept. Had my 4 weeks bloods done and it came back as Viral load below 15 but still detected. I will have another blood done at week 6. I also have the complication of a bone marrow disorder detected 15 yrs ago called Primary Thrombocytosis or abnormally high platelets presently untreated. Was on a nasty drug for 10yrs with that but had to stop as maybe it made my liver react but got very liverish sick. The only other treatment was Peg Interferon. NO THANKS!! Great to see that my platelets dropped by 200 pts which is phenominal, and all other bloods in the normal range. YEAH!
So waiting now on my 6 week bloods now and not sure how we will progress if still detected then.
Another thing is my hepatologist from the liver clinic who was shocked and dismayed when I originally talked to her about the generics, (I went with James then), called me yesterday and is very interested and happy with my progress and wanted to know costs etc for her other clients (I knew she was a good soul) and I pointed her to this website. So great to be on here.
Geno type 3a, infected approx 34-38 years ago. No fibrosis, treatment naive began chinese api daclatasvir/sofosbuvir 7/9/15.
17/12/15 finished treatment week 13 and virus Undetected
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Nadia's journey 7 years 3 months ago #1246

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Hi Ann Bee, you are very welcome to my thread specially with such great news about your platelets! What is your fibroscan score? Would you be extending your treatment over 12 weeks mark?
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Nadia's journey 7 years 3 months ago #1247

Thank you Nadia. I think the options are extending the time I am on the Sof/Dac +/or adding Riba to the mix. I am very reluctant to go down that Riba road. There is some interestin pan geno drugs in research still. Anyway will just see also what James recommends.
Geno type 3a, infected approx 34-38 years ago. No fibrosis, treatment naive began chinese api daclatasvir/sofosbuvir 7/9/15.
17/12/15 finished treatment week 13 and virus Undetected

Nadia's journey 7 years 3 months ago #1249

Oh also no Fibrosis at all detected etc. I was having Liver function going up for the last 1 1/2 years and starting to feel very crazy and unwell with memory and energy and emotions and digestive symptoms. Nearly all of those cleared quite quickly on the meds.
Geno type 3a, infected approx 34-38 years ago. No fibrosis, treatment naive began chinese api daclatasvir/sofosbuvir 7/9/15.
17/12/15 finished treatment week 13 and virus Undetected

Nadia's journey 7 years 3 months ago #1250

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Good news about Fibrosis! My viral load 1 year ago was 8 million when I was first tested. Same as you I had lots of mental problems, luck of energy, joints pain and so on.
I can't wait to have my 2 weeks results back to see how well I've responded so far
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