Welcome, Guest
Username: Password: Remember me

TOPIC:

Ariel takes the Plunge 6 years 9 months ago #10770

  • Life
  • Life's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Geno 3, started TX 15th october 2015. Mesochem
  • Posts: 174
  • Karma: 3
  • Thank you received: 186
So what I'm saying is that under 30 can also be under 12...you understand? Or as good as undetected....You have people who stay "detected" and don't get the "effer" back...but that's not gonna happen...you re gonna go to undetected status....In the beginning it fluctuates anyways...
The following user(s) said Thank You: pat1, Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10774

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Thanks Life Jaz LG and GAJ and friends
I forgot to mention
The other question was: "Have you missed any pills"
:sick: :-1:
Yup
Do you drink and have you missed any pills
Gotta love that bedside manner.
Thanks for your information Life that is interesting to read and I was thinking it's probably almost gone maybe just a few fragments left so we are on the same wavelength
Thanks for having a look at my bloods friends they seem pretty okay to me too.
I'm up early
Is anyone else mid tx having night nausea and waking early from same?
Sinuses are a tad blocked so a slight headache but I can go to the sea to sort that luckily
My granuloma is starting to subside
The granuloma has been really aggressive at times like wow! The most obvious legacy is some loss of colour on the sides of my neck but the actual red rings are defs subsiding and I am off predisolone for the first time in years Yew !
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Life, pat1

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 9 months ago #10795

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
Hi Ariel,

Don't worry about the doctor asking those questions, it is SOP and not a reflection on you. I used to get that too, but over the last four years have built a pretty good relationship with my specialist (and other clinic staff) due to regular visits so he obviously no longer feels need to check those aspects. To be honest I'd rather answer those questions and not need the ten or so visits I had in last 12 months.
I understand how you probably feel that you are treated as just being a number, I think some of it is self preservation on the part of the staff, though some are definitely better than others at bedside manner.
I'm sure most staff of all the clinics are glad that they will have something better to offer from 1st March but will be looking at the coming workload and how they prioritise with some trepidation.

Great news about granuloma! It's really nice, and builds confidence in the Tx when others start to notice the difference, doesn't it? :+1: #flower #flower
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Last edit: by Gaj.

Ariel takes the Plunge 6 years 9 months ago #10798

  • Chejai
  • Chejai's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • G3a 35yrsHCV
  • Posts: 272
  • Karma: 1
  • Thank you received: 289
Hi Ariel, blood results look good. Low VL, your ALT - 19, but no AST? (like GAJ I was curious), they usually do both as they are part of the LFT panel, and apparently the ratio between AST/ALT gives more info.
Everything looks good. :woohoo:
I suspect that she may have asked about drinking because the GGT is 30 - still Great - but it takes longer to drop and she might have wanted to know if alcohol intake is a factor. OR she may have been one of those very Judgemental types that we all know and LOVE :evil:

I just got back earlier from having my bloods taken at 5 1/2 weeks, so won't know anything until next week or longer?

Great news for you Ariel #love :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10809

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Thanks Chejai and GAJ
I backed this up with a visit to my GP today and he said nah all good no dramas
He wrote a new VL and LFT etc path up yes including the AST because he also suspected I am probably clear by now maybe just a few fragments #flower
He praised my progress and the team here :+1:
The <30 is a bit ambiguous when the test is for the 30-10000000 assay so I asked for a different lab and he wrote it up we are not even bothering to network in to my liver clinic the result its for me this one.
Will pop in on Monday and get this done that is our end of week 5 Chejai!
I'm putting on curves again and feel brighter in all parts of my wellness
All the feedback is basically the meds are working and my results are okay
We talked about my deafness it's been a massive issue since peg/inf so I am referred to an audiation specialist!
How are your sx now Chejai?
I'm not nearly as tired as I was a few days ago
Hoping the humidity up there has not been too vile too xxxxx
Splashes
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Chejai

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10811

  • CJ
  • CJ's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 373
  • Karma: 4
  • Thank you received: 419
Ariel, I think your bloods look great!!

Doesn't look like you've been on the drink at all.. :ohmy: :)

So no worries, you're probably completely clear of any little hanger-oners by now!!

So glad your auto immune problems are improving, mine all did too after beating the virus.
:+1: #love
Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10860

  • pat1
  • pat1's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 340
  • Karma: 15
  • Thank you received: 977

Ariel wrote: He praised my progress and the team here :+1:
The <30 is a bit ambiguous when the test is for the 30-10000000 assay so I asked for a different lab and he wrote it up ...


Ariel
I have had my recent blood test at Dorevitch Pathology on Thursday. This is my 3 VL request because my previous results only indicated assay range LLOQ <35 when I was hoping for <15. It seems Austin path may not have the most sensitive equipment. I contacted Dorevitch to ask about analytical range but the receptionist would not forward my call on to any of their team because I am not a doctor. According to customer service they have new PCR equipment FYI to those testing in Victoria
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
Attachments:
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Last edit: by pat1.

Ariel takes the Plunge 6 years 9 months ago #10924

  • Chejai
  • Chejai's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • G3a 35yrsHCV
  • Posts: 272
  • Karma: 1
  • Thank you received: 289
Actually, Ariel the weather has been all over the shop floor! Past few weeks wild winds, storms that have settled to intermittent downpours, extreme high temps to cool but now rising again! And yes, the humidity arrrrrghghg....
But this gives a big swell and some wild waves so you might be in luck! Haven't been to the Gold Coast for years, it's only a couple of hours south but really busy, touristy and traffic hell! Kirra is/was? a beautiful place and Wow, haven't been to Snapper since I was a teen!
Hope you have a Good Time, if it wasn't such a hike I'd love to meet up.

Well, as for sx it feels like I no sooner say, "gee, I'm feeling good!' and then Bam! I have had a migraine since Saturday night, absolute killer and like that time earlier, nothing I use shifts it. Also severe neck and joint pain, so it may have been all the driving Friday, which usually stirs things up for me.
Can't believe we are ending week 5 already!
Hope you're well #love #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10949

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Ariel has swum into her cave she is sleeping and feeling very lethargic and needs a merman to help which did come in the form of a tradesman $$ now she needs a school of fish to pop by with stocks for her empty fridge
Ariel has overdone helping others and is in hibernation. She also prefers to only listen to soothing rippling water and bubbles and has hidden from the noisey din
Ariel already knows about sx from her botched peg/inf and knows when her coral cave is the best place to be
She will swim out when she is ready
Mermaids long hair and scales take a lot of time to maintain #love #flower #love
She sends her love out to all and will be back soon
Xxxxxxxxxx week six day one
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: mgalbrai, Chejai

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10952

Yeh Ariel sleep is good :+1:

Happy "Z" catching
SVR 24

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #10955

Is week 6 is the new week 1?
Sending #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Last edit: by LondonGirl.

Ariel takes the Plunge 6 years 9 months ago #11010

  • Chejai
  • Chejai's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • G3a 35yrsHCV
  • Posts: 272
  • Karma: 1
  • Thank you received: 289
Sending hugs and #love Ariel. I'm needing my cave right now too. Nurture thy self :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #11012

  • CJ
  • CJ's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 373
  • Karma: 4
  • Thank you received: 419
Rest up well little mermaid :) #love

Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #11015

  • 2b
  • 2b's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 350
  • Karma: 1
  • Thank you received: 495
Hi Ariel: I've been just catching up on your posts, I was away a little while, so missed your results back there a ways, But those tests look GOOD, like you said,l think that one you got for viral load just wasn't as sensitive as some of the other tests some of us had. Your other stuff looks good so I have to believe it will all come out fine. I got my tests back a few days ago from blood I had drawn 1 week after eot and still UND. Love hearing aboout your surf.

I wish I had tried surfing a lot earlier than I did, I've gone to Dominical and Jaco in Costa Rica and also beaches in Nicaragua and tried a few times, keep getting knocked on my ass...probably should have started when I was 18, but the beach just wasnt' close enough so I took it all out riding motorcycles.But I can't get enough beach, its where I always end up when I have the chance.

You will be good, its all gonna be good, you have lots and lots of waves left to catch, keep paddling out there!
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 9 months ago #11017

  • Debs
  • Debs's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 251
  • Karma: 3
  • Thank you received: 437
Have a lovely rest Ariel, I'm doing the same. Congrats on your results and also congrats to Chejai on the UND.
Lots of love, debs xxxx
#love
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Time to create page: 0.072 seconds

Copyright © 2015-2020 FixHepC

Back to Top