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Ariel takes the Plunge 6 years 9 months ago #11045

We are all cave-dwellers !
Although I shall need to brave the harsh UK climate and get my bloods taken today
Brrrrrrrr! :evil:

Sending positive thoughts and happy spashes #flower #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Ariel takes the Plunge 6 years 9 months ago #11052

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Thanks friends #love
Be back soon just waiting on a bit of info re a sx
Xxxxxxxx
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

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Ariel takes the Plunge 6 years 9 months ago #11343

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Just to say
Having a tough time
My Daughter is safe but it's been more than 24 hours now since I have spoken to her in the Nadi area of Fiji
If you didn't know the largest storm on record in the Southern Hemisphere hit Fiji full force during last night
I'm pretty exhausted
I managed to postpone her flights today until safe.
She has been helping at an orphanage then this suddenly came
This is not about hepc sorry
Its just to say gimme a hug
I kinda need one
Will be okay when I get to hear her voice and this beast has buggered off and no threat it is still a category 5 and just sitting west of fiji now
I dunno when I will get a decent nights sleep because I am alone here and watching this thing praying it will p off and not do another u turn

But I long to talk to her and the entire country is in lock down
I guess this qualifies for a #rant
Apart ftom this I send all love and will catch up with your updates asap my life here settles a bit with this going on
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Last edit: by Ariel. Reason: Privacy concern

Ariel takes the Plunge 6 years 9 months ago #11364

What a worry for you Ariel,
I do hope all is well.
When it comes to daughters, nothing can tug at your heartstrings more.
Still, she's not alone and probably holed up somewhere safe but maybe some communucations are down due to storm.
Sending BIG love
Let us know when you hear all is well
LG xxx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Ariel takes the Plunge 6 years 9 months ago #11369

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Hi Ariel,
Sending you a virtual hug ((( ))) #love
As a mum of course you will be very worried until you speak to her again. I know where you are coming from and as a mum myself I feel for you. I'm sure will be fine and as LG says communications may be down.
Lots of love, debs xxxx
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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Ariel takes the Plunge 6 years 9 months ago #11397

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Thinking of you Ariel, yes as Mums we can relate to that level of anxiety. Wishing her a big bubble of protection and sending you big warm hugs, take care #love :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Ariel takes the Plunge 6 years 9 months ago #11432

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Thanks Debs, LG, chejai and friends, had contact today yes! Bit exhausted right now, but want to let you know the sx issue I had was myy BP it zoomed up to 180/130, I didn't want to write it up until it was sorted...that all happened last Wednesday thanks to Dr James for assisting me thanks to Pat1 for your behind the scenes support, to LG and to my GP here. My BP is 127/70 now today, and I am on double bp meds...lucky huh because with the drama in Fiji woah good to have found that before that unfolded and I had no idea of this forthcoming. I haven't slept for two nights because of it of course, tracking the thing. I still need to locate my adopted orphan daughter over there she will be fine she is 24 she is not stupid. It is a matter of the signal only one cell tower is active for the entire Viti Levu. I urge anyone who has a few bucks to chuck it towards this beautiful nation.
It is absolutely horrific the devastation, this is the biggest storm the Southern hemisphere has ever seen. It is currently sitting West of Fiji still so I am just willing the bugger to basically bugger off still. It is a cat 4 at mo.

My Alt and AST are fantastic...just waiting on a better more accurate VL PCR RNA result to come in now. Had it taken last Wednesday. ALT 18
AST 21
GGT 28
Bili 9
all amazingly promising...will update when the VL is in, last one was an <30 at Day 25, now last day of week 6, gawd going well it is really flying past this tx. Well thanks to all fr the big love I am fine, Splashes and good to catch up again xxxx
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Last edit: by Ariel. Reason: Privacy concern

Ariel takes the Plunge 6 years 9 months ago #11491

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Hey Ariel

Just been catching up on your journey and wanted to say g'day and send some love #love #flower :P , so glad your BP is now resolved sort of. Wishing you Godspeed and GodSVR and remarkable happenings. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Ariel takes the Plunge 6 years 9 months ago #11493

Ariel. Nice. Special. Sweet. Good. Magical. Loving. Witty. Mystical. I could go on and on...
#flower
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Ariel takes the Plunge 6 years 9 months ago #11495

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Glad all is well Ariel :+1:
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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Ariel takes the Plunge 6 years 9 months ago #11506

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Thank you so much for the props, Mike, Em, you guys RAWK. Thanks ladies, this is gonna make everyone on the DAAs here sx just slip into oblivion okay?
Yeah we may feel a bit off colour, a tad upset about the state of our bodies...BUT we are in good hands here and we will get better, these meds are rippers at slaying dragons, no sparkly unicorn rainbow cards needed.
I know I have had a whine about my nearest Public hospital, but hell this puts it into perspective. here is the video of the Hosptial In Lautoka< warning, it will rip your heart out.

I think I will get my VL in tomoz...crossing my fingers and toes, flippers and fins, and I aam forcing myself to go for a wave this weekend. This event has given me a right old kick up the proverbial, well a prod with neptunes fork into action....

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: LondonGirl, mgalbrai, Chejai, Gaj

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Last edit: by Ariel.

Ariel takes the Plunge 6 years 9 months ago #11527

crossing flippers and finns

:lol:

Good luck with your VL result #flower
Sending #love to you and your daughter
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Ariel takes the Plunge 6 years 9 months ago #11588

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#flower #flower #flower #flower #flower #flower
UND
week 5-6 ish test
Repeat: UND
I REPEAT UND
Ariel is making whirlpools as she types!!!!

Thankyou Dr James Greg J and team at FixHepC
RAWK!!!!!
I'm off to hug people and trees and random dolphins
Love you all!
Ariel who is now overtreating to the death of nothing anyway
Yes !!!!!!
Stoked is not just for surfers but I ain't telling them ha!!!

Best day of the last five years
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Attachments:
The following user(s) said Thank You: DrJames, Joy, LondonGirl, mgalbrai, Chejai, Hieupham, sonix

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Ariel takes the Plunge 6 years 9 months ago #11589

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:woohoo: Hey, congratulations Arial!!!!! :woohoo:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Ariel takes the Plunge 6 years 9 months ago #11591

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Ariel, so glad you were able to make contact with your daughter, hope she continues to be safe and well - wishing the same for all those there in Fiji devastated by this. It's hard to get my head around "winds @ 230 km/p/h and gusts as strong as 325 km/p/h"!
A reminder of Cyclone Pam destroying Vanuatu last year - it's always so heartbreaking, especially how isolated they become with no power lines and mobile towers, weather too wild to access by water or flight.

I'm always relieved but surprised how low the death toll is in the wake of such extraordinary devastation. So, I've been reading why and apparently it's to do with the way the natives construct their huts and the materials they use. They have been living with cyclones forever, using lightweight things like bamboo and pandanus, woven together - not using nails and heavy masonry and not creating heavy pressure within because they're porous. So, it's the building materials in places hit by cyclones that cause the most damage and injury to people!
Also, apparently another big 'saviour' was SMS alerts, almost everyone has a mobile there and it proved to be the one thing to alert people to prepare themselves! That's awesome :)

Anyway Ariel, hope you're feeling better and getting a chance to get those results you're waiting for.

Sending you hugs and #love #love #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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