TOPIC:

Yay!
So many people want to hear this news Beaches you did it! Yew
I have friends waiting on PBS meds too and your story is one to bring hope and positivity where there is definitely a cloud of worry among all who have waited so long for this for whatever reason it doesn't matter why, the thing is the PBS is coming through and you can testify. Even my liver clinic were sketchy about how many scripts they could allocate and didn't seem ready just yet when I was in for my four weekly last Friday
Truly I can see light for two friends who are desperately needing their cure and couldn't get their meds until PBS now I feel so confident for them
Thanks so much for your great post
Splashes of happies for your tx xx
Good luck it really works
Ariel

Hi Beaches I took 12 weeks of Sof/Led......undetected at 4 weeks and SVR4. Only side effect was insomnia and the occasional headache. As Ariel said, plenty of water helps. Good luck with your treatment. And yes it does work!!

Ariel you might like to know I managed to get my friend with cirrhosis started on her meds. She took the script she had got from GP2U last December to her lovely (but totally clueless) GP, and he rang up the PBS...answered the two magic questions...what is genotype? and any cirrhosis, and they gave him a number. He copied out the script from the GP2U generic one, and looked at the PBS guidelines...no worries mate!
I don't think she has heard from her liver clinic at all yet though I did tell her she should let them know.
Anyway she is rushing around with a whole new lease on life!

This is great to read FFox - UK NHS, are you reading? They made the grand announcement that they were approving the meds, but each individual patients case has to go through a 'comissioning body' (ie out of DRs hands) , they have their meeting, then contact one or two patients to give them the ok. So slow and I've read of an interferon non responder, fibro 12 lady who has been put off for an appointment until September (GT3 tx is ridiculously expensive here) - Well done F Fox & Australia, We had our announcement way before you, but are taking forever to put it into practice.

Lovely to read your ever increasing happy posts Ariel

Ariel wrote: A TOAST TO MY BLOODS

Little boast
From the coast
With the most
Just repeat after me
Ariel doesn't G&T
Her FBE history
Says 17 GGT


WOOHOO first bloods update in from Tuesday
Alt still a magic 18 blah blah etc and now also the GGT is sooooooo freakin good

Nice poem! I am so pleased for your happy EOT!

Thanks isiang yup two weeks and two days to go. Went super fast compared with the last four years of just vile misadventure after a botched tx peginf riba had a serious afffect and legacy
I'm saving for hearing aids from peginf taking significantly my upper pitch register. There's other damage too but oh well I could write a long speech and that's not my style here. Unlike most people like myself who have no or little liver damage and a very low VL I was put on peginf riba and at the time knew no better than to believe the private specialist so I suffer that legacy. It's cost four years plus of my career so far amongst other serious ongoing sides.
It will be nice if I get SVR and get a life back. I'm good at being positive about it I rekn this stuff works. The old stuff certainly didn't!
I compare this to then and the legacies of it and this is really nothing to really blog much about
I had customs issues importing but didn't bother here with that
I had issues sourcing a script but I got one in the end, from interstate.
Its 4.30 am here and I have been awake since three but slept yesterday daytime on and off
Such is the last few weeks it seems but I have a lot of other family life to attend to and Friday I drove around 250kms and did three appointments so sleep is not surprising
Just waiting on a VL check to make sure I am still UND before EOT should be in by midweek
Cheers
Ariel the midnight mermaid

Sunday Sparkle

So my homework
Go power walking at least 45 minutes at least three times a week in a different location each time.

Here are pretty pictures

looks so fabulous!! i would do powerwalk all day long with that beautiful beach

Nice little piggies!!
m

Bloodwork check came in read on 17 March

Still UND qualitative

Little piggies free to frolic
EOT will be as scheduled 4 April
Ty Mike Ty Jay Kim

Great to hear you're still UND, Ariel!


I'm not a beach person (OK, maybe in winter lol) but those are awesome pics. Thanks for sharing your awesome part of the planet

Great news Ariel

Are there webs between those tiny tatted tarsals???

Great news Ariel......nice tatt by the way