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  • 1 July 2016 at 11:43 am #20238
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Hi all,
    I’m excited to say that after a few hurdles and months have gone by, I finally began my tx, 24 wks Sof/Dac + Riba last week. Day 6 today, and so far, so good! I got my meds from the wonderful and helpful Rachel at Mesochem ( smooth sailing getting them imported into the US; again, Rachel is the best!) FINALLY found a GP who was willing to monitor my tx. I was just too nervous to do this unsupervised because of the RIBA. So Doctor is on board and I finally got my husband to be ok with my going rogue to get my treatment as well. Hey, if this is what we have to do, yahoo, lets get this party started! I’m happy and excited to have this chance to clear this damn disease, but I gotta say, I’m nervous too. The highest my VL ever got after I relapsed was 2,600,000. Blood work done pre- treatment this time around says VL is 10,600,000. Wow.; that’s a lot of virus to kill. ALT 32, AST is 29, so I don’t think that’s too bad; chin up. Staying positive and hoping for the best. Will keep everybody posted as labs come in. I see that many folks here have started or are currently on treatment now and are UND. So happy for you all, such GREAT news!! Here’s to all of us who fight this battle. Praying good health for us all!

    1 July 2016 at 12:05 pm #20239
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    SShady, you have already had 6 days of that brew, and your viral load is already going to be absolutely slashed! Good luck.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    1 July 2016 at 4:51 pm #20246
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hi SShady, my VL was also very high and it didn’t seem to matter, my meds seem to have worked (UND at end of treatment, waiting on SVR12 in September)
    Rotsa Ruck

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    1 July 2016 at 8:19 pm #20252
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hey SS43!
    Another “Ugly American” :lol: is on board the Hep C Fredom Train. Great news indeed. I too, was amazed at the ease of importation to US. Spread the the word! :woohoo:
    I’m happy to hear you’re already into day 6 with continuing, “smooth sailing”
    My VL was at 13000000 and AST/ALT astronomical at, 162 & 241 respectively. At 3 weeks into tx, my VL was 138, that’s not million, it was, one hundred thirty eight! My AST/ALT had dropped to, 27/31 respectively.
    That was getting awfully close to UND at only 3 weeks. I’m just over six now and feeling really good.
    As others pointed out to me back at 3 weeks, “The way it’s going, in another week you should reach undetected.” I don’t know for sure that I have, because my doc wants to wait to EOT to initiate more labs, but I certainly feel like I could have.
    Back at you on the good health to all wishes.
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28.gif

    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    2 July 2016 at 2:42 am #20268
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Hi Beaches,
    Good to hear; best of luck to you as well!

    2 July 2016 at 2:52 am #20269
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Hey Matt K,
    Niccccccccccccce numbers!!!!!! Best of luck to you as well; keep us posted!!!

    2 July 2016 at 2:59 am #20270
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Thanks Hazel!!
    Yes, it’s quite a cocktail we’ve all mixed up for ourselves, huh??!! It still amazes me that us lay-folk can do for ourselves what the medical community and major drug manufacturers can’t. When I do the math and see what the street value of these drugs are compared to what I paid for them, it’s just obscene! Best of luck to you as well!!

    2 July 2016 at 1:43 pm #20319
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Hi SShady

    Does the double S signify your second attempt at slaying the stubborn little shit that’s refused to clear out?

    There’s been a lot of success here for GT2s using Sof/Dac. The added Riba is no doubt because you have relapsed. I’ve got a gut feeling that you’ll win the battle this time. Good luck with your treatment. I look forward to following your progress.

    I love your attitude and tenacity.

    Cheers
    GT2

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    3 July 2016 at 7:30 am #20363
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Thanks GT2!! I’ll take all those good vibes you’re sending and return some to you as well!!! I hadn’t thought about the double SS for slaying “the stubborn little shit” disease, but perhaps I should make it so. Or simpler yet; Shit Slayer, lol!!

    3 July 2016 at 7:37 am #20364
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    I like it lol Shit Slayer! :evil:
    Welcome and congrats on starting tx :+1:
    Best wishes for no sides and a quick UND :)

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    3 July 2016 at 2:19 pm #20386
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Sshit Sslayer it iSs Sshady

    Ccould Ccoin HepCc Cconquerer for CC2B

    Genotype 2 = Double consonants avatars

    Must change to GGT2

    :)

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    31 July 2016 at 9:35 am #21717
    SShady43
    • Topics: 8
    • Replies: 31
    • Total: 39
    • Treatment Warrior
    • ★★★
    @sshady43

    Hi all,
    2A here again. I’ve been on treatment for 4 weeks now. Just had my appt with my GP on Friday and am tickeled to say that with a 10,600,000 VL to start, I am now UND! Whoop whoop! Staying positive and chasing away any thoughts of possible relapse; I have 5 more months to go yet, with a much stronger cocktail this time; Sof/Riba with added Daclatisver.
    I have to say again to anyone in the US who is hesitating to go this route with generics. I got mine from Mesochem. It was incredibly easy to get them ordered, and they arrived in about 10 days. I got all the information I needed regarding compounding from the good people here on the Fix Hep C website. These lifesaving drugs are affordable. They are working. Please take care of yourself and DO THIS NOW!! and stay in touch with everyone here. There are true warriors here, and every one of them will gladly offer what they’ve learned and a kind word.
    I’ll drop in with updates as I get them. Sending out continued prayers for good health and UND’s for us all.

    31 July 2016 at 11:58 am #21728
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Wow – Awesome SShady :+1: :cheer:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    31 July 2016 at 5:25 pm #21734
    Avatar photofretboard
    • Guardian Angel
    • ★★★★★
    @fretboard
    SShady43 wrote:

    Hi all,
    2A here again. I’ve been on treatment for 4 weeks now. Just had my appt with my GP on Friday and am tickeled to say that with a 10,600,000 VL to start, I am now UND! Whoop whoop! .

    Yay! Another American is showing UND!! Great news Shady and welcome to the forum!

    woohoo-dancing-banana-2.gif

    G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
    Started tx 6/1/16 with Harvoni.
    12 Month Labs= UND

    2 August 2016 at 12:10 pm #21770
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hey SShady. That is fantastic news. Thanks for sharing and just enjoy #flower #flower

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