Home › Forums › Main Forum › Genotype Specific › Genotype 1 (54%) › a script…for what?
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22 May 2016 at 2:29 am #17607
I don’t want to keep going on as some of it might be confidential.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC22 May 2016 at 2:32 am #17608I have to add my 10 cents in here
Not too long ago due to my EOT result I was having to consider to start treatment again (thankfully this turned out to not be the case). Monk Med was awesome! I had a free consult with one of their doctors and their service is second to none – great bunch of people.
Tina
SVR 24
22 May 2016 at 3:35 am #17610simone wrote:guys i have now spoken to tim at monkmeds. i have still some reserves. first of all it is a bit weird that some of you bloggers sort of LIVE online and give all new comers like myself the same indications. what is it?? some sort of foxtons where people are on commissions??
anyway, i would like to have more info on monkmeds. who of you used it? i have noticed it s cheaper than the rest ie this here site. why?
hmmm
Altruism is the answer to your question Enrico.
Most of us have had this virus for decades and are quite intimate with the workings of several liver clinics and feel like walking pin cushions from the amount of blood tests and we have had for no result. We are also disgusted that meds are available to cure this virus but accessing them for many is almost impossible. Fortunately access to meds now for Australians is easy and cheap which is probably why the British,American and New Zealand members on this site are more active in helping others source these life saving meds.
Get the pills any way you want Enrico but just make sure you do, you then may feel angry and then compelled to assist others to do the same. Or not.
Cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
22 May 2016 at 3:56 am #17613Altruism is the answer to your question Enrico.
The more concise version of what I was trying to say Paul
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC22 May 2016 at 3:59 am #17614LondonGirl wrote:Altruism is the answer to your question Enrico.
The more concise version of what I was trying to say Paul
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
22 May 2016 at 5:21 am #17617
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
22 May 2016 at 5:28 am #17618Matt-Kenney-google wrote:…. We all understand how scary it can be to do anything online these days that involves sending (what means for most of us) large sums of money to complete strangers Enrico, you are among friends who understand
Hey Enrico, I posted the above a couple of days back and I stand by it. We’ve all been where you are and had to take a leap of faith, so to speak. I spoke with Tim same as you. If I emailed him over concerns I was having he responded literally, within the hour, most of the time within minutes. He even texted me from JFK’s Tarmac and then phoned me when he deplaned. Jyoti, MonkMeds shipping guy in India was the same? MonkMed was incredibly supportive and still is even though, as I also let you know a few days back, I have already received my meds from them. They truly seemed to be as concerned about my shipment getting to me as I was.
This is what I got from them just this Wednesday. The main thing, as Paul so eloquently said, is get your meds from whatever source you choose and get done with this hep c beast.
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”22 May 2016 at 6:04 am #17620I am a real person, who the meds really got to in time, and I have been telling people that is is real, it works, publicly for a few months.
http://www.odt.co.nz/news/dunedin/368046/hep-c-patient-goes-offshore-cure
It doesn’t involve commission- it is prompted by civic duty. That’s what is behind the support and advice of everyone here. That’s what is behind these suspiciously positive posts- we are not used to it. It is quite moving. Many of us had no help from our own doctor but one who had never met us cared enough in the abstract to find a safe way. The Indian system was honestly applied to allow us access, People like Greg Jefferys shouted about it wherever possible. All of us were reached by a process that has been transformative, and fair. We are not playing it up. Sustainable businesses as the backbone of all of that, providing free resources to all, everywhere, like MonkMed and GP2U, is a good thing.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
22 May 2016 at 5:25 pm #17627The skeptic in me says that, it appears that something is askew here.
If I’m wrong, nevermind.
contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
SVR2423 May 2016 at 5:46 am #17642Hi Enrico and Tommy
I understand your concerns. Everyone should base their decisions on reliable information. You can’t get any more reliable than the Journal of Hepatology. Please note LB03 just over half way down the first column.
On a separate issue about cost, this site offers you a variety of reliable options to access your required DAAs at a price similar to what you would pay if you flew to the country that manufactured the generic DAAs and purchased them yourself. However, when you factor in the price of your plane ticket and accommodation, you would effectively double your cost.
I’m merely a very happy patient who can now see a future for himself.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂24 May 2016 at 8:31 pm #17706 -
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