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Hi Hope,
by now hopefully
things are on the up for you and you end up having an easier time of it
Fingers crossed for you
Hope, first of all, your doctor is an ass. Having claimed to have been to Barcelona yet doesn’t recognize THAT THE DRUGS WERE TESTED FOR PURITY AND VALIDITY. You keep keepin’ on. You should have told her, “Yeah I’m positive. Positive I’m gonna keep taking these CHINESE DRUGS!” Lol.
When you clear, you will have the last laugh. And please, take it when it happens!
Hi Hope,
I am so sorry to hear that you have been subject to such appalling behaviour by your doctor. A doctor is supposed to put the best interests and privacy of their patient first. Yelling at you in the corridor so everyone can hear and scaring you is most definitely NOT in your best interests or good for your health!
Secondly it would seem that the “everybody” at Barcelona that she was talking about didn’t include Professor Laurent Castera who is the EASL Secretary General (and the host at Barcelona) who stated:
“There is a clear role for generic treatments such as these for people with Hepatitis C across the world. The implications of increased availability of these drugs could be enormous, presenting more people with the possibility of a ‘cure’ for what is often a debilitating condition,”
Or perhaps the numerous links to various reports as listed in the first post on the following thread and many others:
http://fixhepc.com/forum/media-news/924-upi-on-board.html
Now, those are all well respected people, journals and medical media reports. Can your doctor show you ANY evidence to support their claim about what everyone was saying/doing? Something in writing or in the media that supports these verbal claims? Otherwise, I would suggest he/she has absolutely no plausibility in his/her claims.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Hope,
Yes, I just came back to state that I along with 18% of others was still detected at week 4, this did not worry me at all because I knew I would (and did) reach undetected. Here is the link for Dr James thread.
http://fixhepc.com/forum/viral-load-and-svr/287-viral-load-on-treatment-what-to-expect.html
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Dear Hope, What a horrible experience – I really feel for you having been through similar treatment with a previous consultant myself. That Dr is supposed to be caring for you, I hope when this is all over you will raise a complaint.
Please don’t stop! I was still detected at 8 weeks – and <12 at 11 weeks and I have extended treatment. Not everyone is the same, the worst thing you could do is stop at this point. As you haven't even had your VL figures, you could be <12 or 32, or some really low figure and you still had 8 weeks to go when the test was taken !
It must be quite scary to have this Dr. - It's a shame you can't change. Is there any other way of getting your own VL test privately? Did you get your meds through Redemption /Fix Hep C? You could ask Dr Freemans advise or Dr Debasis from MonkMed. I'm sure though, that any normal Dr would request the result of you VL test before advising or say keep going until your next VL test.
What is interesting though, is I had antibiotics mid treatment. I read somewhere recently from an official paper, that antibiotics can mess with the Abbvie medicines, I am wondering if they can also affect other treatments, even though they say they don't.
It is hard to tell anything without those blood test results though. Your Dr may have done a qualitative VL test which would just say detected or undetected rather than a VL Quantitative count maybe? You should ask her - really.
I think you need advise from a different Dr really Hope. Keep talking the pills and try to get some other advise I would suggest.
lg
ps I can't see your Genotype etc in your profile...if you can pop that in, it could help people when reading your posts.
Hi Hope.
Oh wow, I wouldn’t be going back to that specialist, what a creep.
Can you copy what Gaj wrote & email it to her? or just never go back, preferably.She sounds either very ignorant or very just bitchy. I wish you could get a different doc, why not get onto the GP4U sight & see Dr James or his associates via Skype, they’ll look after you.
You don’t need a cruel specialist. Who needs that on top of everything?As the others said, you could just be slightly over the negative number, who knows without a quantitive load measurement, but G 3 is difficult to destroy as quick as the other G types so don’t despair, you’ll get there, even if you may need to prolong tx a little?
Try to cut down on sugar intake & iron intake.
Try to eat a low GI diet, it WILL help.Good luck & DONT give up
Love Cindi x ( Oh, you are G3 aren’t you?? maybe I got it wrong?)
Hi all, yes, I’m G3 – I don’t know why you don’t see it in my profile – I see it
I can’t really change my doc because she’s alpha and omega in our country. I have to indure somehow all her harsh behaviour towards me for now becuase she is at least giving me all the tests for free. They are pretty expensive here. And I anyway have at least some kind of monitoring (although for every high level of anything in my blood tests she says that there’s nothing she can do since she doesn’t know what I’m taking).
I’m on a low carb diet, my intake of sugar is low, and I drink plenty of water…
I’ll wait till Friday to see what my outcome on VL is and then turn to GP2U if needed.
Until than I’ll try to stay sane….
Thank you for your support!
With GT3 you do not have a 100% chance of being less than LLOQ ie <15 at 4 weeks. The chances of being undetected are even less.
That's why I never do a qualitative test at 4 weeks - I do a QUANTITATIVE - coming back at 20 (when it was 1 million) is a lot more reassuring than coming back detected - which the majority of GT3s still are...
Here is what the SOF+DCV kinetics look like in both GT3 and GT1. Notice that GT1 responds faster but both are better than SOF+PEG+RBV. Note that 1.18 on the log scale is <15 and the line below that is the UND line.
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