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  • 6 December 2015 at 6:18 pm #5333
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Mike, Just in case anyone lands here without having seen your previous posts, it could be worth emphasising that the “Hep Forum” on Hepmag.com is a completely separate entity to the Forum here on fixHepC.com.

    http://fixhepc.com/forum/welcome/368-this-forum-is-censored-only-for-spam.html#3732

    Cheers,

    (… just saw your edits of 10 mins ago – thanks!).

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    7 December 2015 at 1:33 am #5344
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Like walking on egg shells on that forum.

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    7 December 2015 at 1:49 am #5345
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Well I just invited any U.S. Veterans over there who had been denied treatment by the VA to come check out this site. The HepMag moderators, like most doctors, are preaching appeal, things are happening you can wait. Don’t do anything rash, like take control of your own health and life. The only people getting treatment coverage from their insurers are on the transplant list, close to getting on it or fight like hell for close to 2 years and still aren’t assured of getting anything other than another denial. Most people simply don’t have the time, energy or wherewithal to negotiate the convolued appeals process required by the insurers. I did.
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    8 December 2015 at 12:13 am #5442
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    I swear, you guys are going to make me cry. It is things like this that renew my faith in mankind.
    I and the members of HCVets.com thank you for trying to help one of ours. The reason we got him on the CBS interview is because there is nothing the VA hates more than bad publicity. They called him the day after the story was aired and offered him treatment.

    BTW, I already told the reporter all about the Buyers Club and gave Dr Freeman her contact info.

    P

    8 December 2015 at 12:17 am #5443
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    Em…
    So it’s that why you came looking for me and not because you like me? :(
    :::sigh::: men

    PP

    8 December 2015 at 12:27 am #5444
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    @ Price Your going to have to pull a Michael Moore type stunt get a plane load of vets take them to a 3rd world country and get em meds and film it. Embarrass them, mind you they probably have very thick skins .

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    8 December 2015 at 11:45 am #5505
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    Okay Price, If I’m reading the numbers right we should have enough money pledged for two people needing 24 week treatments or four needing 12. We might have more than that.

    You want to embarrass the VA? We want to get the word out about generics. We both want to help veterans.

    Find some more needy veterans and get CBS in on it. CBS should be able to kick in for a few treatments too.
    CBS does the story of how a number of Vets has to look out of country to find their cure. And shows how they successfully do it.

    Lets do this.

    8 December 2015 at 12:40 pm #5513
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Hi K and Everyone

    That is great news and well done to the team. I love this forum.

    Price you mentioned on a facebook post that I forward medication to people in the US and that’s just not so. I am the an administrator of this site but I certainly don’t administer medication to anyone. I know the post was somewhat in jest but hey we need to be really careful what we put out there. I am merely a client along with everyone else and choose to help out where I can. Em

    8 December 2015 at 12:49 pm #5515
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Klhide what a fantastic idea!!!!!!

    SVR 24

    8 December 2015 at 1:19 pm #5520
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Thats it stir the bastards up, mind you they will probably hit back B)

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    8 December 2015 at 4:37 pm #5538
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    ‎Zion Yisrael‎ to Hepatitis C
    6 mins · Detroit, MI, United States ·

    Good Morning! Met with VA clinic yesterday, seems that funding became available. However, there’s only enough for 8 patients. There were between 12 to 16 at the meeting needing treatment, the lucky 8 find out tomorrow, the others have to wait.
    That being said, I read our postings and despite the seriousness of our situation, the disregard of compassion by Gilead and the entangling red tape of bureaucracy, we still are a jovial bunch with some VERY humorous postings on compliance and defiance! This is the BEST group on FB! Have a blessed day!

    Hmmm

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    8 December 2015 at 5:04 pm #5542
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    I don’t know if the charitable fund is able to be used outside Oz. But if it is, I think we may need to be a little careful about only being seen to help First Worlders. It’s a global issue. The overriding aim is global eradication. There are plenty in poor countries who can’t afford or get medicines even at Gilead’s special price. Not that it shouldn’t be used to help First Worlders just not exclusively. The dealing out of the funds will be a vexed issue any way you look at it seems to me. Glad I’m not the one having to make the decisions.

    8 December 2015 at 8:02 pm #5553
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    I agree with Chester, but feel the symbolic message being sent to the government that allows and protects Gilead’s obscene pricing is paramount. If pressure and media coverage can force Gilead to lower its prices by, oh, say 99.8%, ridding the world of HCV will be far easier.
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    9 December 2015 at 12:42 am #5583
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    I agree with Mike in that our government here is as weak as but if some vets in the US got access to life saving meds in a foreign land that would severly embarass the insurers, hep orgs, the FDA and most of all big pharma and the US govt.. It wouldn’t need to be from a charitable fund possibly a US benefactor or media org could fit the bill for a few airfares and some generics for a good story. The key to kick this along is getting policy changed in the USA.

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    9 December 2015 at 12:55 am #5586
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    I had just a quick look at the Gates Foundation site a few days back. They don’t fund first world projects which is fine. But man, funding hep c Tx in poor countries seems like it should be right up their alley. Plus, barring programmes falling prey to corruption or war, it’s very much a self limiting health strategy. Not like a lot of problems that have to be chipped away at for years and years or that recur regularly like famine. Once it’s done it’s done. There must surely be a lot of other large philanthropic foundations that should be grabbing this ball in third and second world countries and running with it for all they’re worth.

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