Hey Henry,

Very similar numbers to my own, except I was only diagnosed 2.5 years ago.

The anxiety and fear is normal for the situation, but understand that it’s also a symptom of the disease.

First off, while there doesn’t sound like a reason to panic, there’s also is no good reason to wait. Take action NOW! Get your life back.

Let’s start at the beginning.
You’ve had your blood work done, you know your genotype and viral load and you’ve got your fibroscan score so you need no further testing. Your doctor has already written a prescription for Harvoni.

So, first question. Will he write you the prescription for generic meds and oversee treatment (basically just order your bloodtests)? If he will you’re almost there. Either just order the drugs from Mesochem directly or contact Greg Jefferys to go through his channels to get Twinvir.

I’d personaly go the Mesochem route as it will be faster and I’m not sure Greg’s channels from Bangladesh are fully in place yet. He can also help you with the Mesochem products, but there’s probably no need and he’s overwhelmed at this point anyway. Dr. Freeman has been testing every shipment of the Mesochem product and there has never been a problem. Just order them and get on with it.

The Mesochem meds are in API form (powder) which you’ll need to put in capsules. Don’t worry about the difficulty, hundreds of people are doing it and there are instructions for doing it in this forum as well as on youtube and many other places online.

You’ll want to order 84 days of:
Sofosbuvir at 400mg/day (400×84=33600mg) … order 34 grams (or maybe a little extra) ~$1000US
Ledipasvir at 90mg/day (90×84=7560mg) … order 8 grams (or maybe a little more) ~$950US

OR … if your doctor will agree, you can get the better drug (my non-professional opinion) and save money by getting Daclatisvir instead of Ledipasvir.

Daclatisvir at 60mg/day (60×84=5040mg) order 5.5 grams ~$250US

(So either Sof 400mg/day and Led 90mg/day OR Sof 400mg/day and Dac 60mg/day)

You’ll want blood work done somewhere between the fourth and the sixth week by which time your viral load will likely be “undetected,” and then again at end of treatment, and then again at either 12 or 24 weeks after end of treatment.
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However …. if your doctor will not write the prescription or oversee treatment there will be a few more steps or decisions to work through.

Let us know on that score and if you need the other steps we’ll walk you through them.
If you’re ready to order we’ll walk you through that too. Check out Mike’s thread … he just did it a few weeks ago and has already helped another person do it so he can give you all the details to get it done.

Start by reading the thread “Hopeful in the US”

Find it in the “Patient Stories” section.

You’ll find Mike posting with the name “mgalbrai”
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That’s
Click the Index Tab
Click on Patient Stories
Find topic “Hopeful in the US
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hi Henry,
I think there is no need to panic. Both Rachel & Greg always respond within 24-48 hours, at leasts they did when I contacted them in the past couple of weeks, they never ignored any of my emails.
If you’re based in the US I assume there could be a significant time difference between China, Australia & where you’re located in US ?

have a look at the world time calculator here:
http://www.timeanddate.com/worldclock/converter.html

Yes, do give it a bit more time,
what is changing on the 15th ??

Hope this helps,
jolie xxxx

First, remember the time zone differences. I don’t know where you are in the US but here’s this … (Rachel is in Beijing and Greg is in Tasmania)
http://www.timeanddate.com/worldclock/

I don’t know if Rachel works alone or has a staff, but she is certain to have a large work load. As for Greg’s response times, I’ve seen them run from a couple hours to a couple days. Remember this is not his job, he’s doing this out of his home on his own personal time with no financial benefit. And he’s being swamped with people’s requests for help.

In your emails to Rachel you want to keep it as simple as possible and not put information that is unnecessary or could get you rejected. Technically she’s only supposed to be shipping to other drug manufacturers and to researchers. Make her life easier by not saying anything that implies you’re not one of those. Another form of don’t ask, don’t tell.

In your first email simply state you would like a price quote for X amount of drug A and Y amount of drug B shipped to location Z.
Likely she’ll just send a price quote. You then send a message saying you want them and ask for payment method details. She may ask various questions … answer them but don’t go into any extra detail beyond the shortest, simplest answer. Make it easy for her to do this.

Edit: Funny, Jolie and I must think alike.

5. Sit and quietly contemplate all of the awesome things you’ll be able to do with your life when you’ve rid yourself of this disease.

From an earlier post for Henry

On Compounding…
(I seem to be on a roll here)
Go to: torpac.com and find the profunnel. You will need the 00 size. $75.00 and includes 1000 capsules. 400 mg of sofosbuvir, packed with the included tamper, fits perfectly in the half of the cap you fill. Buy a mg scale from AWS on Amazon-$20. It has to have three 000 after the decimal to measure mgs. Then, one of those straws you get at the Sonic with a little spoon at the end.
Set up and weigh out and fill 28 caps with sof. Put them in a labeled bottle with a small silica dessicant pack. Do the same for the led or dac. Nothing tricky, take your time. Zero out (tare) the scales once in a while and get the weight within 5 mg on the plus side. These are amazing scales for $20. I have reweighed several caps (empty weight 116-8 mg) and they are always right on the money. Keep everything in as dry and cool a place as possible and store all your stuff with some dessicant packs-again:Amazon-large bag of small packets-$12)
Do your weighing on a smooth, clean dry surface to help salvage any shaky hand spillage. 2 hours for me to do 28 caps. I smiled the whole time!
Cool and dry place-the led is “clingy” in high humidity.
It is really easy, but I was daunted at first by the thought of making my own doses.
Simple answer-don’t
Mike