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  • 18 March 2016 at 12:31 pm #14102
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Yay!
    So many people want to hear this news Beaches you did it! Yew
    I have friends waiting on PBS meds too and your story is one to bring hope and positivity where there is definitely a cloud of worry among all who have waited so long for this for whatever reason it doesn’t matter why, the thing is the PBS is coming through and you can testify. Even my liver clinic were sketchy about how many scripts they could allocate and didn’t seem ready just yet when I was in for my four weekly last Friday
    Truly I can see light for two friends who are desperately needing their cure and couldn’t get their meds until PBS now I feel so confident for them
    Thanks so much for your great post
    Splashes of happies for your tx xx
    Good luck it really works
    Ariel

    18 March 2016 at 12:41 pm #14105
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Beaches I took 12 weeks of Sof/Led……undetected at 4 weeks and SVR4. Only side effect was insomnia and the occasional headache. As Ariel said, plenty of water helps. Good luck with your treatment. And yes it does work!! :)

    YMMV

    19 March 2016 at 8:19 am #14163
    Avatar photoflyingfox66
    • Guardian Angel
    • ★★★★★
    @flyingfox66

    Ariel you might like to know I managed to get my friend with cirrhosis started on her meds. She took the script she had got from GP2U last December to her lovely (but totally clueless) GP, and he rang up the PBS…answered the two magic questions…what is genotype? and any cirrhosis, and they gave him a number. He copied out the script from the GP2U generic one, and looked at the PBS guidelines…no worries mate!
    I don’t think she has heard from her liver clinic at all yet though I did tell her she should let them know.
    Anyway she is rushing around with a whole new lease on life!

    F49HepC25ysGT1a
    mild”

    19 March 2016 at 12:57 pm #14192
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    This is great to read FFox – UK NHS, are you reading? They made the grand announcement that they were approving the meds, but each individual patients case has to go through a ‘comissioning body’ (ie out of DRs hands) , they have their meeting, then contact one or two patients to give them the ok. So slow and I’ve read of an interferon non responder, fibro 12 lady who has been put off for an appointment until September (GT3 tx is ridiculously expensive here) – Well done F Fox & Australia, We had our announcement way before you, but are taking forever to put it into practice.

    Lovely to read your ever increasing happy posts Ariel #love

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    19 March 2016 at 1:15 pm #14194
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4
    Ariel wrote:

    A TOAST TO MY BLOODS

    Little boast
    From the coast
    With the most
    Just repeat after me
    Ariel doesn’t G&T
    Her FBE history
    Says 17 GGT

    WOOHOO first bloods update in from Tuesday
    Alt still a magic 18 blah blah etc and now also the GGT is sooooooo freakin good

    Nice poem! I am so pleased for your happy EOT!
    #duck #love #flower

    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    19 March 2016 at 9:35 pm #14206
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks isiang yup two weeks and two days to go. Went super fast compared with the last four years of just vile misadventure after a botched tx peginf riba had a serious afffect and legacy
    I’m saving for hearing aids from peginf taking significantly my upper pitch register. There’s other damage too but oh well I could write a long speech and that’s not my style here. Unlike most people like myself who have no or little liver damage and a very low VL I was put on peginf riba and at the time knew no better than to believe the private specialist so I suffer that legacy. It’s cost four years plus of my career so far amongst other serious ongoing sides.
    It will be nice if I get SVR and get a life back. I’m good at being positive about it I rekn this stuff works. The old stuff certainly didn’t!
    I compare this to then and the legacies of it and this is really nothing to really blog much about
    I had customs issues importing but didn’t bother here with that
    I had issues sourcing a script but I got one in the end, from interstate.
    Its 4.30 am here and I have been awake since three but slept yesterday daytime on and off
    Such is the last few weeks it seems but I have a lot of other family life to attend to and Friday I drove around 250kms and did three appointments so sleep is not surprising
    Just waiting on a VL check to make sure I am still UND before EOT should be in by midweek
    Cheers
    Ariel the midnight mermaid

    20 March 2016 at 2:22 am #14228
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Sunday Sparkle
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24.jpeg

    21 March 2016 at 1:39 am #14293
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25.jpeg

    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26.jpeg

    So my homework
    Go power walking at least 45 minutes at least three times a week in a different location each time.

    Here are pretty pictures

    21 March 2016 at 3:55 am #14302
    Avatar photojay kim
    • Topics: 3
    • Replies: 48
    • Total: 51
    • Recovery Champion
    • ★★★★
    @jay-kim

    looks so fabulous!! i would do powerwalk all day long with that beautiful beach ;)

    hep-c for 20yrs.
    GT1a. Started twinvir(sof-led) 05/03/16.
    Before tx: VL=1.7mil. AST, ALT in normal range
    2nd week of tx: VL <15. AST, ALT in normal range
    6th week of tx: VL < 15. AST, ALT in normal range

    21 March 2016 at 4:09 am #14303
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Nice little piggies!!
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    21 March 2016 at 4:46 am #14304
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Bloodwork check came in read on 17 March

    Still UND qualitative

    Little piggies free to frolic
    EOT will be as scheduled 4 April :+1:
    Ty Mike Ty Jay Kim #flower #flower

    21 March 2016 at 6:44 am #14306
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear you’re still UND, Ariel!

    I’m not a beach person (OK, maybe in winter lol) but those are awesome pics. Thanks for sharing your awesome part of the planet :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    21 March 2016 at 11:24 am #14314
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news Ariel :+1: #flower

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    21 March 2016 at 1:58 pm #14328
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Are there webs between those tiny tatted tarsals???

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    21 March 2016 at 2:15 pm #14330
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Great news Ariel……nice tatt by the way :cheer:

    YMMV

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