Home Forums Main Forum Patient Stories Ariel takes the Plunge

Viewing 15 posts - 211 through 225 (of 519 total)
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  • #14335
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Congrats on staying UND Ariel! :+1:
    I have too! :)
    Your feet look healthy also :lol: #duck #flower
    Deb x

    #14366
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ty Debs
    I just feel better and better
    Best wellness since 2012
    I’m stoked
    All I can say is to anyone thinking still about buying the meds no matter if you’re Aussie and haven’t got PBS or from O/S just do it they work
    I have added 9.5kgs to my once skeletal body, have a normal appetite for the first time in ages
    I have less than a fortnight to EOT and I feel like a miracle :+1:

    #14487
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Funny how you can hit a wall near EOT.

    I have just been coping with that anxiety coming like a bat outta hell, left field.

    Sat around since my last post thinking “what if I relapse…I did after that peginf disaster” Had a few sad things go down around me in my little world too. feeling suddenly like I am not as confident.
    Wallowed a bit not knowing why…I think it is relapse anxiety, and with respect to other replapsers I apologise for the topic here, I know it is a fragile experience and traumatic because I have been there before.

    I went to my local, Home feels good nearing EOT, I don’t think I will venture far for the last remaining 8 days…

    Thinking of all who are extending, or re-treating..sending loving ocean energy It has helped me no end…
    10399547_10153362808897343_3846841163440848585_n.jpg

    #14488
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Physical recovery is one thing but I think there is a definate convalescence period needed after we clear. Given we have lived with this illness for decades mostly it must have an effect on us mentally and spiritually as well.

    I know near the EOT I was getting more confident and hopeful for the future, making plans for next year etc etc.

    You have come a long way since you arrived on this site Ariel and it can only get better :)


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #14489
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Ariel you live in such a beautiful place, home sounds good….no need to venture out until you feel better. Almost there :+1: #love :)


    YMMV

    #14493
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thankyou very much for the empathy friends.. it’s enough. Good company to be in cheers :+1: #love #flower :+1:

    #14495
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Ariel,

    I really hear you re the ‘staying near home ‘ thing. I’ve been getting more and more like this over a period of time and now ending 1st tx it seems to be intensifying. I guess that will double after the next 12 weeks!

    I guess we all get a bit of that, but can understand more so if you have previos experience of this, it must stir some old nemories of anxious times? but also, as previously tx naive I have this too. Thinking of those who did a few long peg/inf treatments – Phew!

    Stay with what makes you feel most comfortable I reckon.

    Sending #love from afar.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #14530
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Indeed
    Home is sweet at the mo
    I made it to Bells Beach for a day !!! Left home at 5am
    That’s plenty! I’m thinking crowds, noise, lots of activity are frazzle material on the meds near EOT gawd knows why?
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27.jpeg

    [attachment=358]image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28.jpeg
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28-29-30.jpeg

    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28-29-30-31.jpeg

    However I scored some amazing pics
    We all know this fellas dial haha!
    8 more pills to take here
    Pleased not to be extending yes LG had quite enough ty!
    I’m interested that the anxiety is also intense on tx naive as well as peginf relapsers, we need more research.
    Anyway here’s a couple of pro surf pics
    Thinking of all this Easter Break
    Xx Ariel

    Attachments:
    • image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28.jpeg
    #14535
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Just being around the surf is awesome. Good for the spirit
    I’m a clubby and spent patrol yesterday arvo on my own (well in the company of swimmers and waders competing for space with learner surfers, yikes!)
    No casualties despite tricky conditions, lots of surf education.


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #14536
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hey, great to see you made it down to something you so obviously enjoy Ariel! :cheer: :cheer: :cheer:

    Crowds, noise……. frazzled on the meds? Phew, you mean it’s not an age I’m going through? B)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #14538
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Nah can’t be age Gaj
    We both know the secret fountain of youth is from living on our side haha!
    I updated the pics from today for everyone’s enjoyment
    I must say Kelly was even signing autographs for groms which is unusual! He even spoke!
    Seriously it was good to get over there good solid swell.
    I may as well put up one more pic it was a solid day at Bells that’s for sure. For International friends google Bells Beach Surf it’s the oldest international surf comp and called “The Gathering of the Tribe”
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28-29-30-31-32.jpeg

    #14539
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    You are right Beaches you clubbie you :)
    Just being around the surf is so energising and the pro surfers are so nice. What a lucky sport we both share huh? I’m surfing way better since I started these meds btw my takeoffs are so much sharper
    I rekn I was have moments of lapse and didn’t realise until they went away! Sounds mad but I do feel strongly that I had tiny black outs maybe that’s what is termed “brain fog” I have heard that connection with hepC
    Well I am UND now so I jolly will do my damnest to stay that way
    The ocean certainly helps
    Ariel :) splashing you from freezing Vicco waters

    #14540
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Mrs Clubby Wanker that’s me :D
    23.5 degrees at Manly this morning. We start complaining when it dips below 20.
    Going to Tonga this August to swim in the ocean with the humpbacks.


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #14541
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Beaches I fly up and surf Manly!
    I love surfing the Steyne :+1: it’s a nasty place to wipeout though talk about holds you down :evil:
    Tonga and humpbacks sounds so fantastic warm water too stunning experience
    Plus no HepC ha!
    I will be heading to Sydney then onto Brisvegas once this tx is done to see my girlfriends interstate can’t wait it will be the first time I am not sick for years yew!
    Tonga will be amazing :+1: #duck

    #14544
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Tonga, Brisvegas, Humpbacks…
    Life’s a beach……
    :) :) :)


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

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