Home Forums Main Forum Patient Stories Ariel takes the Plunge

Viewing 15 posts - 16 through 30 (of 519 total)
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  • #8747
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    #love Day One
    I raced to the Post Office this morning and yes, my 12 weeks of Sof/led has arrived.
    I could not think of a better day for this to start!

    Thank you to the peeps who encouraged me.

    Peace to all, Ariel

    #8763
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Good luck to you Ariel…..beautiful words :)


    YMMV

    #8765
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Ariel, Yay for Day 1 and moving forward with Sof/Led (my personal favourite!). Wishing your smooth surfing all the way…

    Coral :cheer:

    #8769
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Good luck Ariel, you’ll be right.
    My son just felt better & better on the Sof/Led.
    Have a great ride :P
    x Cindi


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #8771
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Isaing, I hear ya, Huge appetite here! but need it in my case.I’m a skinny lizzy, like Ariel.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #8772
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Ariel – Yay ! Welcome to the Stoked club !
    So delighted for you :cheer:
    Big love #love

    ps eating loads!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #8784
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    Congrats darlings

    #8797
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Hi Ariel, so pleased the meds arrived safely and you are now on tx!
    Wonderful news! #love
    All the best, debs xxx

    #8799
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    You are set to go!!
    I had a minor headache for three days and then, after about 10 days, things started getting a lot better. No mare indigestion. Good sleep. Fewer trips to the bathroom. Put on a little needed weight. Started feeling much better physically. The mental angle was the best: Knowing I was getting BETTER instead of worse!!! It was like coming out of a cave. Or seeing the world in color after years of being in black and white.
    I have two pills and no virus left.
    One day soon, you will also.
    Good Luck!
    Mike


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #8823
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks so much everyone
    The first night was sweaty I wonder if anyone else had that ?
    I’m starving this morning have a headache.

    Thanks all
    Splashes of happy from Ariel

    #8840
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    I found an increased sensitifity to sunlight and heat early on in tx and kept arguing with my wife about leaving A/C on during the night. I swam nearly every day for 8 weeks after work to help cool off.

    Enjoy the ride mate :)


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #8899
    pauldeb2
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    @pauldeb2

    Hi Ariel , Your first day remarks and positive attitude are inspirational to an oldie waiting for his magic medication . Get well soon.
    Regards pauldeb2.


    Paul Bailey

    #9037
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Ariel, Good for you! And yes, the hot flushes/intense sweating – that’s me! I only started yesterday but God I feel like showering several times a day! So, we’ve started about the same time – how long is your Tx?
    I’m really ‘speedy’ too – OMG! Even my son said this morning, “What’s going on mummy it’s like you’re on speed!”. Now, before anyone assumes he’s witnessed that – NO!! – it’s goddam YouTube :P
    Like he thinks he knows what ‘tripping’ would be like because of the clever graphics he’s seen #roflmao

    I noticed LG said she felt ‘speedy’ too :)

    Good Luck!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #9040
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Chejai, I am on sof/led 12 weeks, how about you? I feel really good today, just took my medicine with my gallon glasses of H2O
    Went to see my GP this morning he happy and we both had a big grin slapped on our faces…five years is way tooo long to be basically in bed half the week ergh! It is too long to not be able to work full time too! Cannot wait to regain my independence…I mentioned my little goals to him, the first one about staying awake for a whole week, the next about going out at night…with my ultimate being able to run my business. No timeline…not setting myself up for failure but just looking forward now.
    London Girl and Zhuk will enjoy these skinny experiences from my morning, so here a couple of anecdotes: I was greeted by the local service station lady loudly “OMG YOU have lost SO MUCH WEIGHT” (followed by lots of complains about her supposed ‘overweightness’;) lol I suggested she could be my lipo donor…run a line from her so called ‘problem areas’ straight into my skinny butt. Then in the Supermarket I was freeeeeeezing, and casually mentioned whilst grazing the fresh produce to another customer how cold it was in the supermarket ..haha yes the reply “well you are a bag of bones no wonder”

    I feel like singing a lot.
    On a serious note my GP is really pleased I have taken this step. Tomorrow I visit the big Public Hospital where I have been bench sitting like so many people waiting for a trial that never came…That could be interesting because I have already started tx without them and had my bloods done without them etc…and my script, well it came from another State and another Specialist. It doesn’t really matter anyway how they take this tx decision because I already have my path requests for the 4 week checks etc.
    Well that is big rave on from this happy little mermaid…I had a crash last night but generally smelling the roses.

    #9044
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hahahah, that’s awesome Ariel! I’m on Sof/Dac; Dr James recommended 16 weeks because I’m G3a – tougher to beat!
    I know what you mean barely being able to get through each day, I just got rapidly worse in the past 2 years. Mind you there has been added stress in my life but I’m only 52 and shouldn’t feel so bad :(
    I started Homeschooling my son almost 2 1/2 yrs ago; I have several cages of birds; and just being a single mother and sole carer of a beautiful boy (who has ASD) that is highly dependent; looking after a house/yard; doing everything on my own is just goddamm exhausting. When you have a bad day and can’t do much it all adds up waiting for the next day ;)

    It’s been hot here around 31 C, God where are you to be 40 C one day and 20C the next?
    I feel totally gross with all this sweating though and paranoid to be around the public.
    I just got back from an appointment with a GP – not my current one – for script refills – spent 1/2 hr having to describe and justify why I have been prescribed these drugs e.g. Endone (love how autofill keeps wanting to put Undone – something to that :lol: ), Oxycontin – I use them as a last resort, not actually as they were prescribed for daily use. So I may use them for a few days in a row – sometimes I get migraines that last a week though – and then not touch them for a week or so. I also don’t take them a few times a day because they make me ‘hyper’ and I can’t sleep.
    Now I have to wait to see my GP next Monday to inform her I started on the Tx. I’m hoping she will monitor me by doing requested blood tests at the 4 week intervals. Last time I saw her, over a month ago, she had been ‘scared’ off by the Specialist at the Public Hospital Clinic I go to.
    He had promised to write a script for me, told me to do some research -referred to this site – and let my DR know. i told her about it and what I’d decided to do and she was happy to do tests. She eventually spoke to him on the phone to request script and then tells me he wants me to do it via him and she wouldn’t have the experience with these DAA’s to treat me. I contact the Hep Nurse he’s requested I go through and find out he’s promising everyone but not actually writing scripts at all! He’s just telling everyone to ‘wait’ for the Gov to decide on passing the PBS thing (this is back in early Dec. ). I got pissed off and went through GP2U, got blood done, Fibroscore, ordered meds and started Tx yesterday.
    So, like you, I took my health into my hands and went proactive – she’ will probably be quite surprised!

    Oh, God i’m drenched in sweat and can’t stop drinking water. I’m the opposite re weight. I’ve always been a skinny kid/slender woman ;) but suddenly about a year ago I started gaining weight very rapidly and i’m horrified to be 65 kgs! OMG, i’ve only been that when I was pregnant. I can’t understand it because diet/exercise routine didn’t really change. It feels like ‘fluid’ mostly around abdomen, can’t wait to shift it though, I feel very uncomfortable this weight.
    Ok, I’m still ‘hyper’ and could go on but got to feed my boy and head off to a ceramics lesson :)

    Have a Good Day #love


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

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