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  • 25 May 2016 at 5:07 am #17725
    Avatar photoHieupham
    • Topics: 9
    • Replies: 50
    • Total: 59
    • Recovery Champion
    • ★★★★
    @hieupham

    Hi Ariel,
    Be calm. Wish you the best for the next test!
    Cheers.

    Attachments:
    • Varkala.jpg

    Nishkama Karma
    Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!

    25 May 2016 at 9:40 am #17731
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Great photos Ariel

    You frame your shots beautifully … you may have missed your calling.

    I’m sure that your 8 week post treatment blood test results will not be able to detect HCV RNA.

    Be confident, stay positive, have a laugh (at yourself, situations, & others) and above all … keep smiling :)

    Cheers
    GT2

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    25 May 2016 at 11:55 am #17741
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thinking of you and sending big #love

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    25 May 2016 at 2:56 pm #17750
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Yup, best thing , booked the doc for Friday morning nice and early. Thanks for all the inspiring pictures and beautiful uplifting vibes from Hieu, LG, Beaches, GT2, Matt and friends. I am sure I will be fine. I just need to know. see it in print, and generally chat about stuff. Y’know, that kinda inner sanctum of the docs room stuff. It has been a month almost. Always good to have a chin wag and check up, might get an FBE if I feel like it too. As I said its cheaper than the UK here anyway, we get our PCR RNA for $155 (sorry Debs and LG eep) and I am worth the extra bucks yes Beaches we only have this moment. Isn’t that one off the lessons this HCV experience teaches…we only have THIS moment, so always make it real. :+1: :+1: :+1:
    Re timeline and clinical notes, I do have more energy. Who was it that said turn around is around 8 weeks after EOT…Pat1, maybe Tina? I cant really remember exactly but I agree. I am also still eating, I am also still carrying a great weight for my body type at LAST!!! All good signs. TY all. I will post my SVR8 when it comes in late next week.
    Ariel #duck #duck #duck #duck #duck #duck #duck #duck #duck

    25 May 2016 at 10:50 pm #17777
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    All the best Ariel and lots of love, debs xxxx
    #love #duck #flower

    26 May 2016 at 3:19 am #17787
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1


    I found this for you, some old Bali and some old Hawaii. I visited Bali in 1974 and I’m not a surfer. Hope to go to Hawaii sometime soon.
    I am going to the path clinic today. Need to go before 12pm so my blood sample can be onboard the 1pm train to central pathology. I ain’t in the city. This will shorten my wait time by 24 hours. Part of me says I am clear part of me suggests anxiety and nervousness. SVR 8 for you SVR 12 for me ! :+1: #duck #duck #duck

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    26 May 2016 at 7:23 am #17799
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Ariel – best of luck with your next tests. It sounds as if you are doing really well and if your positivity and truly joyful vibes can get you across the line you’ll have no problem at all.

    Thanks everyone for the ocean photographs. Walking the beach with my dog has been probably the most therapeutic thing I have done throughout all of this.

    Coral

    27 May 2016 at 12:11 pm #17891
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I’m 8 weeks since EOT and have my LFTs in from this morning
    ALT 9
    Yes NINE
    I am not a teenager but my ALT is 9!!!!!
    Other markers same so low it’s great
    AST is 17 GGT 15
    I won’t relapse, no way! How could I when my levels are consistently fab. :+1:
    I will blog my PCR RNA which I am expecting mid week.

    I’m hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can’t find a way to high jump the bar ;)

    That won’t stop us shouting from the rooftops we are Aussies Oi Oi Oi
    Hear us roar!

    27 May 2016 at 12:15 pm #17892
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    You got this, baby, no doubt.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 May 2016 at 12:29 pm #17893
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1
    Ariel wrote:

    I’m hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can’t find a way to high jump the bar ;)

    That won’t stop us shouting from the rooftops we are Aussies Oi Oi Oi
    Hear us roar!

    Congratulations Ariel tis a fine day for you and for me

    .however I would like the following noted, as I have no blogspot of my own and the world will read and access that which was previously easily accessible to all – Legals and Evils :+1: …
    I hope you don’t mind that I post on your thread Ariel #flower
    I received notice of my Lft’s today and SVR12 HCV RNA result is due next week
    Alt 29 down from 35 SVR4
    Ast 27 down from 32 SVR4
    GGT 16 and is amazingly Awesome !

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    27 May 2016 at 12:32 pm #17896
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Love it Pat1
    See Brian Wilson was not right when he wished they’d all be Californian Gals we Aussie SHIELAS (!!!) are pretty darned awesome
    Go the good livers xxxx yay

    27 May 2016 at 12:59 pm #17897
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hey Ariel, how are you feeling physically 8 weeks after EOT? Better than EOT? Not as good? Same? Same but different?
    Thanks

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    27 May 2016 at 1:12 pm #17899
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Ariel wrote:
    I am not a teenager but my ALT is 9!!!!!

    Yeah, but I bet you feel like one … ;)

    Good news Ariel … you must be feeling really confident about your pending SVR 12 HCV RNA results.

    Not long to go now … then it’s party time … :cheer: #flower #flower

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    27 May 2016 at 1:20 pm #17901
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Pat1 wrote:
    Alt 29 down from 35 SVR4
    Ast 27 down from 32 SVR4
    GGT 16 and is amazingly Awesome

    Now, that’s a fine looking bunch of numbers … #flower #flower

    I don’t think that you have anything to worry about either Pat … I’d put money on your SVR 12 HCV RNA next week being UNDETECTED

    Looks as though there’ll be two big parties in the same week! :woohoo: :woohoo:

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    27 May 2016 at 1:21 pm #17902
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks Beaches
    I’m feeling tired at times but only from my peginf damage so I don’t count that.
    Mentally I think my report card has a + beside my letter score now.
    Physically my upper arm strength is paddle fitter by say 75%
    Core strength is at the stage of “oh really is it 11.30? I paddled out at 9; oh no I better leave I only had an hour to spare!”
    Skin is clearer and fresh looking but apparently dehydrated my GP noted
    What! Not more water! I just drank enough to get across the Simpson gimme a break! Okay so I bought a moisturiser and I am having microderm on my neck for damage from peginf anyway. That’s supposed to stimulate the cells but at this age gawd knows. ;)
    Its on Medicare because its not cosmetic it’s at a doctors and for damage. Yes I get a red neck from it (redneck haha, generic rebels)
    My digestion is great. Some resetting of bowel routine post EOT intermittent for a fortnight or so.
    Slept a full day once since EOT. Thats it!
    I think this week is my best so far. :+1:
    The first fortnight post EOT was my most tricky and I am sure others would be agreeing after all these meds if you are not on riba have a relatively short half life
    We are blessed
    Let’s hope the good work in Oz can continue and that our excellent Doc James is about to enjoy some rest this weekend!
    TY FixHepC
    Xxxx
    Slapshes From Ariel
    Will also pm you Beaches #flower

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