Ariel takes the Plunge

This topic has 518 replies, 47 voices, and was last updated 6 years, 11 months ago by Ariel.

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25 May 2016 at 4:07 am #17720
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Hey Ariel! Every once in a great while, the ocean lets YOU win… but not very often.

Keep on splashin’ sis … the joy is in being able to play at all …

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
25 May 2016 at 5:07 am #17725
Hieupham
- Topics: 9
- Replies: 50
- Total: 59
- Recovery Champion
@hieupham
Hi Ariel,
Be calm. Wish you the best for the next test!
Cheers.
Attachments:
Nishkama Karma
C√πng nhau lo·∫°i b·ªè Vi√™m gan C tr√™n kh·∫Øp th·∫ø gi·ªõi!
25 May 2016 at 9:40 am #17731
GT2
- Topics: 1
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- Guardian Angel
@gt2
Great photos Ariel

You frame your shots beautifully … you may have missed your calling.

I’m sure that your 8 week post treatment blood test results will not be able to detect HCV RNA.

Be confident, stay positive, have a laugh (at yourself, situations, & others) and above all … keep smiling

Cheers
GT2

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Na√Øve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂
25 May 2016 at 11:55 am #17741
LondonGirl
- Topics: 16
- Replies: 1,348
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- Guardian Angel
@londongirl
Thinking of you and sending big

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
25 May 2016 at 2:56 pm #17750
Ariel
- Topics: 3
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- Guardian Angel
@ariel
Yup, best thing , booked the doc for Friday morning nice and early. Thanks for all the inspiring pictures and beautiful uplifting vibes from Hieu, LG, Beaches, GT2, Matt and friends. I am sure I will be fine. I just need to know. see it in print, and generally chat about stuff. Y’know, that kinda inner sanctum of the docs room stuff. It has been a month almost. Always good to have a chin wag and check up, might get an FBE if I feel like it too. As I said its cheaper than the UK here anyway, we get our PCR RNA for $155 (sorry Debs and LG eep) and I am worth the extra bucks yes Beaches we only have this moment. Isn’t that one off the lessons this HCV experience teaches…we only have THIS moment, so always make it real.
Re timeline and clinical notes, I do have more energy. Who was it that said turn around is around 8 weeks after EOT…Pat1, maybe Tina? I cant really remember exactly but I agree. I am also still eating, I am also still carrying a great weight for my body type at LAST!!! All good signs. TY all. I will post my SVR8 when it comes in late next week.
Ariel
25 May 2016 at 10:50 pm #17777
Debs
- Topics: 6
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- Guardian Angel
@debs
All the best Ariel and lots of love, debs xxxx
26 May 2016 at 3:19 am #17787
pat1
- Topics: 5
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- Guardian Angel
@pat1
I found this for you, some old Bali and some old Hawaii. I visited Bali in 1974 and I’m not a surfer. Hope to go to Hawaii sometime soon.
I am going to the path clinic today. Need to go before 12pm so my blood sample can be onboard the 1pm train to central pathology. I ain’t in the city. This will shorten my wait time by 24 hours. Part of me says I am clear part of me suggests anxiety and nervousness. SVR 8 for you SVR 12 for me !

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
26 May 2016 at 7:23 am #17799
coral
- Topics: 8
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- Total: 606
- Guardian Angel
@coral
Ariel – best of luck with your next tests. It sounds as if you are doing really well and if your positivity and truly joyful vibes can get you across the line you’ll have no problem at all.

Thanks everyone for the ocean photographs. Walking the beach with my dog has been probably the most therapeutic thing I have done throughout all of this.

Coral
27 May 2016 at 12:11 pm #17891
Ariel
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- Guardian Angel
@ariel
I’m 8 weeks since EOT and have my LFTs in from this morning
ALT 9
Yes NINE
I am not a teenager but my ALT is 9!!!!!
Other markers same so low it’s great
AST is 17 GGT 15
I won’t relapse, no way! How could I when my levels are consistently fab.
I will blog my PCR RNA which I am expecting mid week.

I’m hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can’t find a way to high jump the bar

That won’t stop us shouting from the rooftops we are Aussies Oi Oi Oi
Hear us roar!
27 May 2016 at 12:15 pm #17892
beaches
- Topics: 10
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- Guardian Angel
@beaches
You got this, baby, no doubt.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
27 May 2016 at 12:29 pm #17893
pat1
- Topics: 5
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- Guardian Angel
@pat1
Ariel wrote:

I’m hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can’t find a way to high jump the bar

That won’t stop us shouting from the rooftops we are Aussies Oi Oi Oi
Hear us roar!

Congratulations Ariel tis a fine day for you and for me

.however I would like the following noted, as I have no blogspot of my own and the world will read and access that which was previously easily accessible to all – Legals and Evils …
I hope you don’t mind that I post on your thread Ariel
I received notice of my Lft’s today and SVR12 HCV RNA result is due next week
Alt 29 down from 35 SVR4
Ast 27 down from 32 SVR4
GGT 16 and is amazingly Awesome !

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
27 May 2016 at 12:32 pm #17896
Ariel
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- Guardian Angel
@ariel
Love it Pat1
See Brian Wilson was not right when he wished they’d all be Californian Gals we Aussie SHIELAS (!!!) are pretty darned awesome
Go the good livers xxxx yay
27 May 2016 at 12:59 pm #17897
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Hey Ariel, how are you feeling physically 8 weeks after EOT? Better than EOT? Not as good? Same? Same but different?
Thanks

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
27 May 2016 at 1:12 pm #17899
GT2
- Topics: 1
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- Total: 294
- Guardian Angel
@gt2
Ariel wrote:
I am not a teenager but my ALT is 9!!!!!

Yeah, but I bet you feel like one …

Good news Ariel … you must be feeling really confident about your pending SVR 12 HCV RNA results.

Not long to go now … then it’s party time …

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Na√Øve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂
27 May 2016 at 1:20 pm #17901
GT2
- Topics: 1
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- Total: 294
- Guardian Angel
@gt2
Pat1 wrote:
Alt 29 down from 35 SVR4
Ast 27 down from 32 SVR4
GGT 16 and is amazingly Awesome

Now, that’s a fine looking bunch of numbers …

I don’t think that you have anything to worry about either Pat … I’d put money on your SVR 12 HCV RNA next week being UNDETECTED

Looks as though there’ll be two big parties in the same week!

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Na√Øve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂
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