Home › Forums › Main Forum › Patient Stories › Ariel takes the Plunge
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27 May 2016 at 1:21 pm #17902
Thanks Beaches
I’m feeling tired at times but only from my peginf damage so I don’t count that.
Mentally I think my report card has a + beside my letter score now.
Physically my upper arm strength is paddle fitter by say 75%
Core strength is at the stage of “oh really is it 11.30? I paddled out at 9; oh no I better leave I only had an hour to spare!”
Skin is clearer and fresh looking but apparently dehydrated my GP noted
What! Not more water! I just drank enough to get across the Simpson gimme a break! Okay so I bought a moisturiser and I am having microderm on my neck for damage from peginf anyway. That’s supposed to stimulate the cells but at this age gawd knows.
Its on Medicare because its not cosmetic it’s at a doctors and for damage. Yes I get a red neck from it (redneck haha, generic rebels)
My digestion is great. Some resetting of bowel routine post EOT intermittent for a fortnight or so.
Slept a full day once since EOT. Thats it!
I think this week is my best so far.
The first fortnight post EOT was my most tricky and I am sure others would be agreeing after all these meds if you are not on riba have a relatively short half life
We are blessed
Let’s hope the good work in Oz can continue and that our excellent Doc James is about to enjoy some rest this weekend!
TY FixHepC
Xxxx
Slapshes From Ariel
Will also pm you Beaches27 May 2016 at 8:26 pm #17917Hey Ariel and you too pat, I believe a little teenage behavior is in order. So, let’s dance
Also, a bit o’ the “generic rebel” in all of us. Right!
… Can’t help but agree too, you Aussie SHEILAS, ARE pretty darned awesome!!!
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”28 May 2016 at 2:36 am #17938Eureka eh Matt!
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc28 May 2016 at 2:44 am #17940I knew you “Awesome Aussies” would identify with that!!!
You rebellious lot!
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”31 May 2016 at 6:54 am #18082Ooops
The paperwork says ALT <9
That's obviously the lowest end of the assay range at Clinical Labs
The PCR is read and on the way later this avo and I am off on a mini break but will blog my result and try to pop by and visit people here in their travels too x
A busy Ariel xxxx31 May 2016 at 9:55 am #18092SVR8
Thankyou James and friends
Feeling stoked as a mermaid dancing with Steve Tyler.
My journey began with him and I rekn I will save the last dance for him too.“…….do you see a bluer sky now
you can have a better life now
open your eyes
cause no one here can ever stop us
they can try but we wont let them
no way
maybe you & I
could pack our bags & say goodbye
and Fly Away From Here” Steve TylerAriel
31 May 2016 at 10:31 am #18095M8 you got this
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby31 May 2016 at 10:47 am #18098Congrats Ariel
As Beaches said .. M8 you got this … don’t have to worry about SVR12 … it’s a foregone conclusion!
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂31 May 2016 at 12:39 pm #18110Hey Ariel
I love that you are dancing with Steve Tyler. So excited for you. You have blue sky’s and I have sunshine! Can’t get any better. Xx
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc31 May 2016 at 1:43 pm #18117Wow, the mermaid with the impossible ALT now has SVR8 as well!!!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
31 May 2016 at 5:21 pm #18135Taj Burrow standing tall inside the belly of a north-west barrel
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂31 May 2016 at 6:51 pm #18142Hi Ariel the mermaid!
You got your SVR8!
Soooo delighted for you!Be happy and enjoy your life closely linked to the water!
HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com1 June 2016 at 11:20 pm #18232SVR 8! yeeHOO Ariel!
Heres a wee pic for you – its named The Horses of Neptune by Walter Crane.
and a special tune just for you as well x
https://youtu.be/VzALZjoIx0g
SVR 24
2 June 2016 at 5:31 am #18238Hi Ariel – Congratulations! You threw me there with the 8, Great news!
And with such a low alt – wow!
You’ve got it cracked!
All the best Deb X
Little sea based tune for you, for chilling with your SVR 8 to……..2 June 2016 at 6:21 am #18241Great news Ariel!!!
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed -
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