Home › Forums › Main Forum › Patient Stories › Ariel takes the Plunge
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2 June 2016 at 7:16 am #18243
Beautiful results Ariel. Mermaids rule…………
2 June 2016 at 11:43 am #18251Happy for you Spongebobette!!
What an ALT!!! And here I thought my 15 was something to crow about.
Crowing for you from a little Romanian village.
BTW-saw Prince Chuck yesterday in Viscri.
m
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 242 June 2016 at 6:58 pm #18266Who dat be splashin’ her “Awesome Aussie” ALT < 9 self all over us ?? Keep it up A, we're lovin' it
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”5 June 2016 at 4:17 am #18414Congratulations Ariel!!!
I have to say, I’m a bit awed, in the best way possible!
7 June 2016 at 12:57 am #18544Matt-Kenney-google wrote:Who dat be splashin’ her “Awesome Aussie” ALT < 9 self all over us ?? Keep it up A, we're lovin' it
I love this pic, especially made for you Ariel, thanks for pumping up the great vides over and over again...
Congrats on all the great news!
Keep on singing your songs!
Love from life7 June 2016 at 1:13 am #18545Thankyou all for your awesome kindness to me
Being part of the FixHepC family is a privilege
It’s more than SVR8 and my forthcoming SVR12 (flippers crossed); here, there are people who have been there since my crappy peginf riba, during my re-emerging from surgeries and illness from that disasters legacy and who led me to this safe place, there are new friends with similar stories, new friends who are tx naive and full of loving kindness to me and to all peginf relapsers and really let me know how much they’re backing me this time. There are friends who make me laugh, friends I have now met for coffees, who have enriched my life with their own story of surviving and fighting. There are other mums who relate to the worrying about our grown up children after what’s been in our lives, there are dads trying to hold it together during tx, there are friends who even knew some of the same crowd from younger times. There’s a voice on the end of the phone “hello you have rung FixHepC….”
Into ten weeks since EOT and I am very thankful indeed for this and all the support in research here in discussion on sx etc and all these excellent resources for lobbying and personal help and for my GP too.
Have a great day
Ariel7 June 2016 at 1:20 am #18546Hey A, you’ve touched us in all the same ways you just listed. Thank YOU!
splashitty- splash!Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”7 June 2016 at 2:16 am #18552Just caught up with this ! Hooray !!!!!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC7 June 2016 at 5:55 am #18558Hi Ariel
That was a nice summary of what this forum is for … support for HCV sufferers going through HCV treatment. I don’t know how the TGA bureaucrats can honestly justify their actions with their conscience. Would they do the same thing if they, or a member of their immediate family, were suffering from HCV and couldn’t get timely treatment?
Probably. They are not trained to think outside the square … they think in black and white … there’s no shades of grey … and they are being directed by others above … they’ve got a mortgage to pay. The buck stops with Susan Ley, the Minister for Health. Would things be different if there were a change in government on 2 July 2016. Only one way to find out!
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂7 June 2016 at 6:25 am #18561Hi Ariel
Reading your post brought tears to my eyes, I’m crying! Everything you say is so true. We are part of a family. Living with HCV is something that is so difficult to describe in words. It seems that we all experience different symptoms and also different Sx. HepC is insidious in its potency and so this is a very personal journey shared with those who really care. Yes we are all mums, dads and friends together and I can only applaud James’ work and include the fixhepc team with my heartfelt thanks to you all.
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc8 June 2016 at 2:27 am #186378 June 2016 at 2:29 am #18638mgalbrai wrote:Happy for you Spongebobette!!
What an ALT!!! And here I thought my 15 was something to crow about.
Crowing for you from a little Romanian village.
BTW-saw Prince Chuck yesterday in Viscri.
mMike did you tell him that no, I do not want Andrews cell phone number?????
10 June 2016 at 6:16 am #18783GP consult this morning was fab again I have such an awesome doc we checked the thrush and blood sugars etc
However we also wrote my path request for forthcoming SVR12 yay!
I thought I would post a screenshot of my SVR8 so any new friends can see how exciting it looks when you get it in print
Happy times
Splashing Beaches today especially because its her EOT
YEW!!!
Here’s my results from last bloods:10 June 2016 at 6:18 am #1878410 June 2016 at 9:09 pm #18836HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
HaHaHaHaHaHaHaHaHaHaHaHaHaHa
HeeHeeHeeHeeHeeHeeHeeHeeHeeHee
m
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24 -
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