Beaches Treatment - Harvoni (Aus PBS)

This topic has 188 replies, 35 voices, and was last updated 7 years, 11 months ago by beaches.

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8 May 2016 at 11:50 am #16824
Phoenix
- Topics: 12
- Replies: 60
- Total: 72
- Recovery Champion
@phoenix
beaches wrote:

Isn’t it great to read success story on success story?

It sure is! Feels like the FixHepC bandwagon is on a roll to health and new beginnings
8 May 2016 at 5:59 pm #16837
Meg
- Topics: 3
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- Total: 95
- Guardian Angel
@meg
Thank you Beaches for your post. It is so great to read that people get so much better after few days on tx. I am about to order the meds once I get my lab work results and a medical prescription for Generic Harvoni. Where did you get your meds from? Australia or India? And what brand? For some reason I like the name HepcvirL . Anyway best of luck to you until you reach 12 and 24 pos tx cure.

Blood transfusion in 1992 – Diagnosed in 2007
Tx naive -G1b – F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs – Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 – ALT 10 – GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 – ALT 8 – GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 – ALT 5

SVR 14 Virus UND (November 12th)
8 May 2016 at 6:22 pm #16838
beaches
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- Total: 760
- Guardian Angel
@beaches
Hi Meg,
Thanks for your comment and good wishes
I am on the Greediad branded (i.e. not generic) Harvoni. I was all set to go down the generic path but when I told the doc at RPA in Sydney they said don’t do that we will put you on the branded stuff as soon as it comes onto the PBS (Pharmaceutical Benefits Scheme in case you are not in Australia)
I don’t know the GP2U process but I’d guess if you got your meds through them you would be guided by their recommendations.
Go for it you will never look back

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
8 May 2016 at 11:53 pm #16839
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Hi Meg,
There are a lot of good options. Sometimes the country in which you live makes the choice easier. Sometimes the price, but not so much difference in that regard all things considered. A prescription and someone to monitor your tx is also a factor.
You are in the right place!
Good luck!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
9 May 2016 at 1:19 am #16841
Ariel
- Topics: 3
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- Guardian Angel
@ariel
Times flown Beaches!
I inboxed you so check its been sitting there waiting to let you know when I am heading up your way. I’m catching up with another generics friend in Sydney too and would love to meet if you have time. It’s refreshing to read your posts about the pioneering work that Dr James, Greg Jeffreys and many activists have done which yes I agree put pressure on the Aust Govt. I find it interesting to read your PBS story too, I haven’t seen much PBS action at my huge Liver Clinic yet and my GP is interested in generics for private patients of his, it’s very sloooooow down here getting the PBS!
I have finished tx as you know however I wanted to say my generic is Gileads own branding. I also have another course of tx from Mesochem here which was rejected by my liver clinic (because they lacked education) so that’s going free from me to a deserving Vietnam Vet when we can sort it, again with the assistance of the team here. It’s a great feeling being able to donate! All the same drug just the result of paranoia at my clinic I had to buy twice haha!
Yeah my generic was Gilead! Isn’t it nuts that they just pump the price up despite owning the Indian labs
All the FixHepC meds are the bomb! Tested, monitored etc. For Meg, if you read this and cannot get PBS meds contact the team at FHC yes and do what I did buy them because they work
Beaches enjoy the week ahead and good luck as you swim toward EOT and check your pms please missy mermaid xxx you’re going super well on tx xxx
Love from Ariel
9 May 2016 at 2:39 am #16842
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Hey Beaches
Thanks for your update. I loved reading that you are going well, extremely well actually. For me It was huge turnaround from experiencing symptoms of HCV and yet in some way not really knowing and understanding the seriousness of the situation then finding myself feeling a kind of hopeful wellbeing after Tx. My medicos were full of b.s. also – just couldn’t trust them & as a consequence I felt I had nowhere to go. Like you I applaud Doc James & Greg Jeffery’s efforts; where would we be without them! There are incredible success stories here and I love reading them.

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
9 May 2016 at 4:17 am #16845
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Sorry Ariel, I didn’t notice a PM will have a look

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
9 May 2016 at 4:35 am #16848
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Thanks Pat
I should probably also say that although it has been all sunshine, rainbows and happy dolphins for me I don’t know if that’s the same for everyone. I’m fortunate to have minimal liver scarring and I believe this is a big factor in the speed and effectiveness of the treatment.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 May 2016 at 11:08 am #16900
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Just got my week 4 VL results. They must have forgotten to send them to me. <15. Sitting on the bus reading the results, threw back my head and :lol:

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 May 2016 at 11:19 am #16901
CJ
- Topics: 10
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- Guardian Angel
@cj
Oh Beaches!! HAPPY for you

Love Cindi x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
10 May 2016 at 12:02 pm #16908
Ariel
- Topics: 3
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- Guardian Angel
@ariel
Wooohooo way to go Beaches already unquantifiable yew! Next stop UND. Perfect behavior A+++ Go girl! Stoked at the news
It’s working it’s magic
Splashing freezing Vicco water at you
Love from Ariel
10 May 2016 at 12:05 pm #16909
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Great news beaches!

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
10 May 2016 at 12:18 pm #16911
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Thanks Ariel and Gaj
Splashing tepid Sydney 20 degree ocean water back at you
Feeling rather stoked just now

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 May 2016 at 7:00 pm #16926
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Maybe I’ve already said it but
HAPPY FOR YOU!!
Life is a beach!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
10 May 2016 at 9:45 pm #16929
Matt-Kenney-google
- Topics: 1
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- Total: 424
- Guardian Angel
@matt-kenney-google
Keep on ridin’ that wave sis! You’re well on to rockin’ in the Hep C free world girl!

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
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