Home Forums Main Forum Patient Stories Beaches Treatment – Harvoni (Aus PBS)

Viewing 15 posts - 106 through 120 (of 189 total)
  • Author
    Posts
  • #18606
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    CapeFear.jpg

    Australian surfer Justin Allport rides a wave during the Cape Fear surfing tournament in heavy seas off Sydney’s Cape Solander in Australia, June 6, 2016.

    Just by looking at the colour of the water indicates just how rough it would have been out there … they are a lot braver than me!


    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    #18801
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations to Beaches on reaching EOT today you go mermaid :+1: #love #duck

    #18807
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    BeachesEOT.jpg

    :) :)

    Attachments:
    • add_text.jpg

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    #18810
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Nice one Beaches
    thumb-up-terminatorpabloMR.jpg


    SVR 24

    #18817
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks Ariel, GT2, Tina and Pat1 for the good wishes.
    EOT……wowie zowie, that’s gone fast. :woohoo: :cheer:

    Some reflections, and I hope I’m not just preaching to the choir.
    If anyone is reading this and wondering if they should get treated, I say to you, just do it. Do it while you can. The door to generic treatment is open but big pharma is influential and greedy.

    The door won’t stay open forever.

    Through luck and lots of front I got onto the branded meds (Gilead Harvoni) but truly was all set to go down the fixhepc / GP2U road.
    It’s safe. Dr James has the generic meds tested before they are sent to you. You won’t lose your money. There is evidence that the outcomes from generic and branded treatments are the same.

    For me the changes have been dramatic. Not only do I have more energy, I have more focus, drive and mental sharpness. I have less fear. My body runs more efficiently. Sleep quality is fantastic. I noticed these things very soon into the treatment.

    I had no idea if things would be different, no idea what to expect. The quality of life for the rest of my life will be so much better.

    A bit about my individual situation. Since being diagnosed I did as much as I could to stay as healthy as I could – eat right, do Yoga, stay fit, do weights, eat organic (as much as the budget allowed) take supplements for my cell health, also antioxidants. Fibroscan consistently F0, LFTs abnormal but not hugely so but VL reasonably high.Never touched interferon, riba etc

    I know that lots of people were sicker than me, but they are getting SVR12.

    Just do it folks, you have nothing to lose except a nasty disease.

    Peace out


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #18848
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    :+1: :+1: :+1: Don’t nuthin’ scare our Awesome Aussie girl :woohoo: WAIT! Where’s the fin??? HEY! That ain’t no great white ….

    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24.jpeg


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    #18850
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Congrats on EOT, Beaches!

    YeeHaw!!!!

    ScreenShot2016-06-10at12.40.29PM.png

    #18858
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Great news Beaches. I’ve had a similar experience…..I feel soooooooooo much better. See you at SVR!!! #flower

    #19282
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Well, bloods are back except for VL. Looking good I guess – pretty much the same as week 4, a bit better.
    Bili is 10 down from 12
    Gamma GT 18 down from 25 :woohoo:
    AST has stayed the same, 19
    ALT 21 up ever so slightly from 19 not a big deal at all.
    Waiting game for the VL.
    Got all excited when the email showed up :(


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #19286
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Hang tight, Beaches! All good news so far.

    #19295
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hunny, you’ve ridden that wave it’s done
    Fantastic stats
    Bring it on
    Xxxx
    Ariel

    #19301
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Shoot! That ain’t nuthin’ girl. I once heard tell of a chick had a VL of 240,000 and AST’s & ALT’s woulda made anyone else wave the white flag. (I even heard rumor this sheila survived Peginf/riba treatment) :woohoo:
    You got this b.
    Remember, ‘b’ don’t jest stand fer beaches …. it stand for “brave” and that’s YOU girl … #love :+1:

    MK


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    #19317
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Looking Good Beaches.

    Not long to go now … the wait will be magnified by the suspense … I know that you are silently confident … and so you should be!

    :)


    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    #19322
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    bAll this waiting hey Beaches! Maybe go out and do something you enjoy?
    My very best wishes go with you,,
    Bloods looking great,
    Not long now :-) #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #19324
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hang in there Beaches. It’s looking sooo good and we know it works #flower

Viewing 15 posts - 106 through 120 (of 189 total)
  • You must be logged in to reply to this topic.