Home › Forums › Main Forum › Patient Stories › SVR › Coral’s SVR12
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24 May 2017 at 11:19 am #26139
Well it took longer than some and shorter than others but I had a phone call today from Dr James to say that I am SVR12. Yay!
For me this started with a newspaper cutting from a friend about Dr Freeman and FixHepC in September 2015. After a Skype appointment with Dr Freeman at GP2U (easiest thing ever) I ordered the medication through FixHepC and started treatment a few short weeks later on 12/11/15. My virus fought harder than most and after 12 weeks of Sof/Led I continued with another 12 weeks of Sof/Dac. And still it hung on……
After relapsing at around the 8th week after EOT I recommenced treatment with the Viekira Pak, Solvadi, Ribavirin on 3/9/16. The Ribavirin made things a little tougher (I’d had minimal side effects on the other medications) but it did a fine job. I was just unlucky as it is only a very small percentage of people that do relapse.
I know that some people think that the low cost generic medication is too good to be true but I have seen so many people on this site that have been cured by taking a few simple steps. You have nothing to lose and everything to gain. I’m happy for you to private message me if you have any questions or concerns.
The support from Dr Freeman, FixhepC, Monkmed and everyone on this forum has been nothing short of amazing. Next stop SVR24.
I’m waiting for my little group of relapse friends to catch up…
24 May 2017 at 12:26 pm #26141coral wrote:…..I had a phone call today from Dr James to say that I am SVR12
Coral, that is wonderful news! So happy to hear it.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
24 May 2017 at 2:41 pm #26142That’s fabulous news Coral
YMMV
24 May 2017 at 11:42 pm #26145Hi Coral,
this is a really great news !!!! Congratulations.
Wow, what a trip you made… I am so glad you reached the SVR12 finish line.Enjoy the life free of HCV (it is quite excellent )
Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved25 May 2017 at 2:27 am #26147Tremendous news Coral! SVR 12!
Congratulations!!
29 May 2017 at 6:02 am #26207WooHoo, SVR 12!
Awesome awesome news!
Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016Viral count – 3,471,080
4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)
8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)
11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected
December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!29 May 2017 at 9:32 am #26210Coral! How did I miss this thread, and your wonderful news. I have been so looking forward to seeing this- you are so consistently kind, and realistic, you really toughed it out. I ‘m sure it wasn’t always like that, but you took both stages in your stride, another kindness to share with others coming behind,
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
29 May 2017 at 9:39 am #26211coral wrote:I’m waiting for my little group of relapse friends to catch up…
I have a short list, and you were on it, that I’m waiting on hearing good SVR 12 news for- and had one ticked off last week, and another earlier today…. FixhepC slays all dragons. Hooray.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
29 May 2017 at 12:40 pm #26212It is lovely to see people who missed out first time round not draw a short straw the second time.
Most people succeed first time.
Sadly a few don’t but as we can see here, and elsewhere, yes it’s a setback, but SVR is still out there and we just have to work a little harder to get there.
Triple drug therapy with an NS3/4A, NS5A and NS5B is the way to go if you can get it.
Adding generic Sofosbuvir to Viekira and Zepatier is the simplest solution where these are available.
Relatively affordable Abbvie Viekira can be sourced out of Egypt if required.
Extended treatment with Sof+Vel+Ribavirin is probably the next best option, but it needs to be done on a case by case basis.
YMMV
30 May 2017 at 11:41 am #26223Hi Hazel,
Thanks so much for your wonderful words. They mean a lot to me. Your advocacy for Hep C is such an inspiration and now that I’ve just about won the battle you encourage me to step out and make a real contribution. The old stigma of it all worries me less and less as the days go by. Coral
30 May 2017 at 11:59 am #26224Hey Gaj, Lynne, RHF, Greedfighter and Sven,
Thanks for your messages. I have said it before but let me say it again – what a lonely and difficult journey it would have been without you all.
Coral
31 May 2017 at 12:26 am #26228Brilliant news Coral,
Delighted for you,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
1 June 2017 at 6:01 am #26266coral wrote:Well it took longer than some and shorter than others but I had a phone call today from Dr James to say that I am SVR12. Yay!
I had one of them too , its a huge relief.
This is really great news Coral as it gets better and better as your recovery progresses.
Wishing you all the best.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
1 June 2017 at 8:00 am #26270Thanks Paul, it is indeed a feeling that gets better and better every day.
My friends are amazed that I have a doctor who rings with results – how lucky are we?1 June 2017 at 11:16 am #26272Dear Coral, I am so absolutely delighted fior you my friend & sending you and happiness
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC -
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