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  • 28 January 2016 at 2:51 am #10599
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    amazing news. get well.

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    28 January 2016 at 3:14 am #10601
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    YAYY!! For Magpie too! :+1: :+1: :+1:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    30 January 2016 at 12:45 am #10753
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Day 3
    Where are the joint pains, headaches, nausea, fatigue that I prepared for?
    Just wondering if I got the real meds…..just a small doubt here……
    I hope I’m just lucky!
    After reading everyone else’s experiences there is a range of sx and these drugs are so much better tolerated so I’ll know in 26 days when I get a blood test if they were the real deal.
    The waiting…..

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    30 January 2016 at 3:26 am #10767
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Much the same thoughts I had at the start Magpie, though my GP ran week 2 LFTs that gave me confidence that something was happening. This are nothing like the bad old days, you will find the Riba takes a couple of weeks to kick in but if you tolerated it okay previously then it shouldn’t be too bad. I can see my haemo, etc. results dropping and notice the ‘drag’ but am nowhere near anaemic and still have far more energy than pretreatment.

    So kick back, relax and be grateful you seem to have minimum sides. :cheer:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    1 February 2016 at 11:51 am #10896
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Thanks Gaj
    Day 5 today, fatigued, sore joints and headache…..I think those viruses are dying!

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    1 February 2016 at 2:23 pm #10906
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Ahh….okay. :S

    Keep up the fluids, helps flush out all those slaughtered viruses. :)

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    4 February 2016 at 7:45 am #11148
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    I read that the first week was the worst for sides but I wasn’t prepared for the incredible difference between day 6 and 7. I almost feel good! just a little headache that waves in and out.

    Today is day 8 and Ive been to the gym, done some gardening and now about to do some physical work. :+1: Maybe they are all dead!

    Just waiting for reply from registra on the result of my pretreatment viral load.

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    4 February 2016 at 6:42 pm #11175
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    Great news! I hope it keeps up. I felt great for the first month or so and now in week 8, I am feeling kind of knocked out from (i hope) the meds. Today is starting off good however and whatever I have now is nowhere near as bad as what I felt b4 I started tx…

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    5 February 2016 at 12:32 am #11190
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    thankyou kenbasman
    be kind to yourself today, your body have been through a lot

    And your on the home stretch now!

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    5 February 2016 at 12:35 am #11191
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Can anyone tell me if itchy skin is a side effect of these drugs?
    and 2 days ago
    I was working in the garden and have a few itchy red lumps- ?bites
    I’m thinking just bites but wanted to ask the brains trust.
    many thanks

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    5 February 2016 at 1:10 am #11196
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I did riba with peg/inf in 2012 and yes I got a significant rash
    I don’t know how riba combined with DAAs manifests in sx
    However the “riba rash” was a very common sx on that old protocol
    I suspect the itchy spots may be riba
    Ask a doctor for this to be confirmed it progressed as tx went on with me and I used various things to soothe it
    However I don’t want to worry you so ask a doc xxxxxx
    Hoping you get relief
    Ariel

    5 February 2016 at 3:31 am #11206
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    Yes, itchy skin can be a side effect, with or without a rash.
    For people taking riba, sun exposure is not a good idea.

    I got nightmare full body riba rash with the old interferon tx. With the DAAs it was not bad at all, just an odd spot here and there.
    The rash can look like bites, for example on your arms. That kind looks like pinprick red spots, especially after sun exposure. Other places it can look like your skin got scalded, or sometimes like the veins just under your skin turned angry pink.

    Actually, the “rash from hell” was my worst fear when I started this round of the DAA’s + riba but I am happy to say that without interferon it did not come to anything that had me worried.

    dt

    5 February 2016 at 6:31 am #11222
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Riba does cause skin issues, itchy, dry, rashes and lumps, etc. and insect bites also seem to be worse on it too. If it is just a few lumps and not causing problems I would monitor for now and see how they go but if you are concerned or a serious rash develops or spreads then seek medical advice. Unscented/coloured, pH balanced moisturisers (I use plain sorbolene) seem to help a bit.

    BTW my ears are dry and flaky this week. :unsure:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    5 February 2016 at 6:37 am #11224
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Sorry to hear about your flaky ears Gaj :(
    Thanks for the response- I was thinking I should start using some moisturiser like sorbolene.

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    5 February 2016 at 9:09 am #11236
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Magpie
    Just chirping in with this topic again
    Re washes and moisturiser
    I used Dermaveen for riba rash
    pH 5.5 wash
    Shower and Bath oil after
    They come in a pump pack and helped me
    Basically the doc had to lower my riba dose it was too angry like weeping sores (peg/inf) but these were the most gentle and soothing products
    Moo Goo is a range worth trying too I used their cream
    Hope this helps
    Ariel #flower

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