cured - FixHepC

This topic has 22 replies, 20 voices, and was last updated 8 years, 5 months ago by PKQ.

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17 June 2016 at 12:23 pm #19342
Dr James
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- Guardian Angel
@fixhepc
Congratulations!! I also took the “Chinese rat poison” and am also cured!! I was on a waiting list at the Hospital here in Bendigo for around 16 months just to get an appointment at the liver clinic! Cancelled myself off the waiting list a short while ago. I agree that the PBS promise is not all it’s been portrayed to be. I really hope those who desperately need treatment get it through the PBS but I fear that may not happen.

YMMV
18 June 2016 at 5:00 am #19406
CJ
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- Guardian Angel
@cj
Really exciting to come back onto this forum & see your news, I’m SO HAPPY for you!!!!

Love Cindi xo

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
18 June 2016 at 6:37 am #19422
sonix
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- Guardian Angel
@sonix
Congratulations PKQ.
I have a friend in Adelaide who got started in March on Harvoni through PBS from a public liver clinic. It is happening!

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
18 June 2016 at 10:17 am #19432
poodle
- Topics: 4
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- Guardian Angel
@poodle
Thanks for the post PKQ and all credit to you for taking action for yourself.
I also have completed 24 weeks of crazy Chinatown rat poison and awaiting the 12 weeks post treatment test on 4th july, my own private independence day from the alien.
My thinking is even if you are waiting another 6 months to get pbs its still 6 months more of rotten damage to an already battered liver… why wait.! Congratulations Jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
19 June 2016 at 2:07 am #19463
Michael-Henry-facebook
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- Recovery Champion
@michael-henry-facebook
Looks like there’s a few of us that received our Chinese Misochem Sof led around the same time.
I completed my 24 week treatment 11 weeks ago.
Can’t wait to have my SVR 12 blood test.
I’m hoping to join the ranks of “CURED”
Fingers crossed

AUSTRALIAN
HCV Genotype 1a
2003 Relapsed Peg Interferon / Ribavirin
Pre treatment VL 2,000,000
ALT 65, AST 42, ALP 111, GGT 56
Bridging F3-4
Treatment -24 weeks – Sof , Led with 12 weeks Riba.
4 weeks VL <12 Detected ALP 89 , GGT 21 , ALT 17 , AST14
12 weeks VL Undetected ALP 96, GGT 22, ALT 20, AST 20
24 weeks VL Undetected ALP 83, GGT 20, ALT 21, AST 14
EOT 6th April 2016
SVR 5 weeks VL Undetected ALP 81, GGT 31, ALT 22, AST 20
19 June 2016 at 10:51 am #19484
beaches
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- Guardian Angel
@beaches
poodle wrote:

Thanks for the post PKQ and all credit to you for taking action for yourself.
I also have completed 24 weeks of crazy Chinatown rat poison and awaiting the 12 weeks post treatment test on 4th july, my own private independence day from the alien.
My thinking is even if you are waiting another 6 months to get pbs its still 6 months more of rotten damage to an already battered liver… why wait.! Congratulations Jill

Or do what I did and tell them you are going on the fixhepc site and getting generics. hmy:
They may bump you up the queue. Worst case scenario you can make good on your promise and get cured.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 June 2016 at 7:30 pm #19501
mgalbrai
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- Guardian Angel
@mgalbrai
Well Doc, for magic to happen, it helps to have someone to pull the rabbit out of the hat or make the elephant disappear.
David Copperfield has nothing on you!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
20 June 2016 at 4:37 am #19518
PKQ
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- Total: 24
- Treatment Warrior
@pkq
Thank you folks, for your kind sentiments, I appreciate it.

And, Mike, you’re quite right, credit goes to Dr Freeman. Even though I am not a patient of Dr Freeman, it was his example in treating patients, and Greg Jefferys example in treating himself, that finally gave me the confidence to send $5,500AUD to the heathen Chinee (prices have dropped since then).

Although, in fact, the results were fairly magical, within the first week I stopped shitting blood – always a good sign – and the LFTs at 4 weeks clearly showed I was getting all better. After that, it was easy.

GT 1a
cirrhosis (or not, take your pick)
2015 – failed treatment with simeprevir+inteferon+ribavirin
23 Sep 2015 started 24 weeks treatment with Mesochem’s sofosbuvir+ledipasvir
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