Emilio's Place - FixHepC

This topic has 328 replies, 51 voices, and was last updated 7 years, 6 months ago by coral.

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17 November 2015 at 11:08 pm #4144
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Thanks Em!
The Sun=SOL
Save Our Livers!
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
17 November 2015 at 11:37 pm #4145
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Em, you’re absolutely right on the cancer analogy – and its a frightening thought. My closest mate has stage 4 metastasised kidney cancer and to think that people in his position could have been denied something to save/extend their lives purely because of the most abject greed…enough to do your head in really.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
19 November 2015 at 3:13 pm #4238
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
We have already invented cures for some cancers:

http://www.fiercepharma.com/story/europe-approves-gileads-cancer-drug-zydelig-amid-challenging-pricing-enviro/2014-09-19

Oh, crap, Gilead own it, and the price….. would you be surprised to know it is…..

wait for it……

$84,000 USD

YMMV
19 November 2015 at 3:26 pm #4241
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Hey Doc,
Democracy-where the monkeys run the circus….gotta love it.
Gilead can charge what they can get and we can get what we can.
4 week labs-normal.
Normal-not just a cycle on a washing machine any more.
Thanks again,
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
20 November 2015 at 2:23 am #4258
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
And now watch our government be the first to sign the patent agreement in regard to zidelig , par for course hey. Essentially locking us out of any alternative affordable options for the next 5 years. And Roche has now got a guernsey as a combo, they owe me big time after duding me on a stage 2 trail back in the day. Em
23 November 2015 at 2:12 am #4478
miko3
- Topics: 5
- Replies: 82
- Total: 87
- Guardian Angel
@miko3
emilio in an earlier post of yours.

” Talking with rachel from mesochem now to see if I can get 1/2 batch if not I’ll order a full course and go from there. . Em ”

How did you go with this enquiry,as I note you were at the time considering extending your tx to 18wks.
I am doing the same .Through circumstances too long winded to explain I am short 42 days of Sof,21 days of dac,and 18 days of Riba.
All quotes I have got (except for Mesochem),but including the Buyers Club,and Aust compounding chemists.resulted in prices that were so close to the 12 wk prices that I may as well get the 12 wks which will leave me with a heap to give/throwaway,which seems a waste.

Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise
23 November 2015 at 2:40 am #4482
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hey Mike, when i spoke with rachel she was happy with that inquiry. However Ive buddied up with another member who is going the 18 week option and so we split it. She was fine with this via the club thereforeim sure you could arrange this. We,re going to lead iut with a sensible dose of riba. Em
23 November 2015 at 5:40 am #4491
miko3
- Topics: 5
- Replies: 82
- Total: 87
- Guardian Angel
@miko3
Thanx for the reply em.If anyone else,in the next 3wks, living in Aust (or NZ) wants to split a 12wk of sof dac riba send me a private message.

Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise
24 November 2015 at 3:13 am #4525
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hi Everyone

Well my 6 week result won’t be happening, the lab said they didn’t get enough blood, which is bullshit. They had plenty more than the previous tmie? Anyway it’s back in the car today 2 hour round trip for 7 week testing grrrrrrrr. Something has occured at about week 6 and was really confident of UND this time. Frustrating as this just murks the water for me moving forward. Anyway all good!

The something that has occured? Well it’s another level of wellbeing and clarity and if this is HCV free I want it and I want it now. Liver function looks awesome though. Em
24 November 2015 at 5:42 am #4539
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
Sorry Em, to hear of the stuff-up, especially when you have to travel so much just for bloodwork. I hate my trips to the RBWH -it’s usually a day lost and lots of sitting around waiting
But, those LFT’s look great! Hope that’s good news in the waiting

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
24 November 2015 at 10:26 am #4556
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
If I can quote Paul Keating here – “This is a beautiful set of numbers”

Great stuff, em. Sorry to hear about your fruitless trip, I hope there’s something good waiting for you…but it looks awesome so far!

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
24 November 2015 at 12:00 pm #4560
crazy8
- Topics: 0
- Replies: 49
- Total: 49
- Recovery Champion
@crazy8
Your numbers look great, here’s to hoping your UND!

GT 3, F3, Contracted 1993 Tx Naive
V/L 1,267,000 AST 67 ALT 65 6/10/15
commence Sof/Dac (Mesochem) 6/11/15
AST ALT normal 24/11 *
*V/L UNDETECTED 24/11*
24 November 2015 at 2:01 pm #4566
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Looking good Em and another inspiring story for your fellow travellers. Fingers crossed for next results….
25 November 2015 at 1:04 pm #4644
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
emilio wrote:

Hi Everyone

Well my 6 week result won’t be happening, the lab said they didn’t get enough blood, which is bullshit. They had plenty more than the previous tmie? Anyway it’s back in the car today 2 hour round trip for 7 week testing grrrrrrrr. Something has occured at about week 6 and was really confident of UND this time. Frustrating as this just murks the water for me moving forward. Anyway all good!

The something that has occured? Well it’s another level of wellbeing and clarity and if this is HCV free I want it and I want it now. Liver function looks awesome though. Em

The Lft’s look very good EM In Fact they probably couldn’t of been better at all except fopr a V/L test

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
25 November 2015 at 8:14 pm #4653
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
hey, just a dumb question, these methods of calculations for viral loads have changed a few times over the years to the point of confusing me somewhat, so I just wanted to be certain I was reading it right, these are my most recent results from a couple months ago, PRIOR to my taking any treatment, can someone confirm or correct what they are saying on my number of copies? does this mean I had 120 thousand, nine hundred forty three, or is it some exponential display of millions? I should be going in for bloodletting next week to get my 4 week results, so I wanted to have an accurate idea of what these prior results are. Thanks all.

HCV RNA BY PCR QUANT <15 IU/mL 120943
HCV RNA BY PCR QUANT <1.18 log IU/mL 5.08

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
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