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12 October 2015 at 2:03 pm #2176
Did u went on a diet, exercise and healthy change of lifestyle?
12 October 2015 at 3:12 pm #2182Not really tweak, I’m mean I don’t party much these days and I eat well and get a little exercise but nothing serious like ie. walking the dogs, chasing grandchildren, camping and fishing. I’d be interested to hear from others pre tx VLs compared to post tx relapse VLs. A bit out there I know but its not the fist time I’ve heard of response and wonder is there a common the catalyst. Maybe it’s multiple and or random but would interested to know more. Em
12 October 2015 at 4:20 pm #2191Hi Emilio I have decided I don’t want to know my VL until the end of treatment – 24 weeks. But about 6 months ago it was roughly 2.5 million. From what I have read there is no point really because it takes months for the medicine to fully penetrate cirrhotics. kindly
12 October 2015 at 5:46 pm #2196I would suggest a VL at 4 weeks into treatment. It will probably be zero (nice to know) and proves you’re not taking sugar tablets (nice to know).
YMMV
13 October 2015 at 1:44 am #2201Hi Dr J I am pretty sure I have the same batch as Chester from India and compassionate Daclatasvir so going on her responding
and the previous despair experienced from failed treatments, is the reason for this decision. I probably will do it sometime, curiosity always wins out. 28 days into tx. kindly13 October 2015 at 2:14 am #220413 October 2015 at 4:29 am #2212VL can fluctuate i heard. Doesnt reflect on amount of liver damage.
Hope I am able to treat it asap.
14 October 2015 at 1:12 am #2236My viral load 3 years ago was 5 157 834
My GGT was 47 – this is odd as in 2004 during inter/rib treatment it was 27 (My AST and ALT at the time were very elevated)I ordered my Sof/Dac yesterday morning – I’ve ordered 12w but know I will need 24w
Dr Freeman has given me a script for new tests which i will be doing late next week
I’ll be monitoring things closely and posting the results in a separate thread rather than hijacking othersI’m quite excited and very grateful but nervous as well
My liver biopsy results were dismal 12 years ago and I’m mostly nervous that my fibroscan will show Cirrhosis
Apparently you can have it without necessarily showing symptoms – I will know in a couple/ few weeks
But i will leave the negativity there and think only positive thoughts from now on
i’m preparing myself for battle against this virus and will do everything i can to help it workThis has all happened very quickly and quite out of the blue after reading the SMH article
I’ve ignored my hep for a long time mainly because there has been nothing i can do other than try and look after myself
Nothing makes me feel sicker than hanging around doctors surgeries, hospitals, and blood labs with worry inducing resultsThanks to all of you here, and particularly Dr Freeman, who can think outside the box and give the finger to the rich and ruthless
i taped Dallas Buyers Club on the telly the other night and will be watching it for the first time this weekEdit: Sorry for the thread hijack, Em but not worth starting my own thread yet and wanted to get my thoughts on a thread i follow
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected2004 biopsy F3
Fibroscan appt Jan 11 2016.14 October 2015 at 1:47 am #2237Good luck Bloot. You’ve made the first, most important move. It gets easier from there.
14 October 2015 at 2:10 am #2238Well done bloot
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC14 October 2015 at 3:43 am #2241Hey Bloot, all good I don’t mind a bit of open discussion at Em’s place. Emi
22 October 2015 at 12:57 pm #2613Hi everyone, I’ve been away with my work this week so haven’t been on-site much. Day 17 and no sides or events to speak of. Hope everyone else on tx are sides free or manageable. Em
22 October 2015 at 12:57 pm #2614Hi everyone, I’ve been away with my work this week so haven’t been on-site much. Day 17 and no sides or events to speak of. Hope everyone else on tx are sides free or manageable. Em
22 October 2015 at 2:28 pm #2616Lucky you emilio. I have mouth and throat ulcers for the past 2 weeks. Apparently a side effect from sofosobuvir. Been drinking coconut water hoping its an electrolyte problem. Apart from that there hasn’t been anything else. kindly
22 October 2015 at 2:34 pm #2617 -
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