London welcome to the forum.

To answer your question it was dragging for many years until I started treatmentt. Once I started the energy levels picked up many times over and I began to think clearly again for the first time in decades . Oh yes it is the HCV make you drag and think not as quick, and you can do something about it .
I’m no doctor and I don’t give advice but my opinion is if you can get in on the GP2U trials, I would get in and get treated now and get on your way to SVR in 3 short months!
I did it, follow my blog and many others blogs who also made it through with barely any side effects to talk about .

Do you know that there is another avenue out there besides big Pharma with the same exact quality prescription for 1% of the price it’s incredible . Also the physicians, the connections, the members/people answer every email it is an incredible program and big kudos must be given to Dr. James Freeman, MonkMed, Dr De Debasis and everyone else involved.
You have landed in the right place, you will have many friends here who will move you forward and want you to succeed. Take advantage of this opportunity while you can and don’t look back.

In good health to you my friend.

Hi London_R

I’m not sure how long I had the virus but it is estimated about 20 years when I was diagnosed. Fatigue and crippling headaches crept up on me over a 12 month or so period which affected my work and home life. I have been extremely lucky insofar as I was alerted to FixHepC very quickly and organised my meds through them. My viral load was fairly high but my liver was in pretty good shape when diagnosed. I went on a waiting list at the Bendigo Base Hospital (which had an 18 month wait) and was well and truly cured with the generics I sourced through FixHepC and I hadn’t even got an appt by that point. I have heard that the people being treated with Harvoni etc. at the liver clinic at the Hospital are those who have very compromised livers and are very unwell. Don’t get me wrong, they are deserved of the treatment and I certainly don’t begrudge that at all although it does mean that those like myself at the time would be waiting quite a long time for treatment.

I reached SVR 12 and am cured. My energy levels have increased ten fold and it is really noticeable given that I was nodding off at my desk at work on occasion. I feel so “different” in a good way as I did two years ago. I feel as wonderful as a 61 year old can feel

This Forum and the support form the people on the Forum was instrumental in keeping me sane throughout it all. I was terrified when I got the diagnosis from the Doctor but after a lot of research and reading the journeys of some on on the Forum I have been incredibly lucky. I made a decision very early on not to got down the road of Interferon and Ribavirin.

Good luck with your treatment and stay tuned to the Forum. There is a lot of support here Also a lot of humor on occasion too!!

Hi LondonR mate

I was also really ‘fit’ pre diagnosis and very toned muscles. I suddenly developed severe hip, lower back and joint pain and was sent for an x-ray. as I could I could hardly walk. I went to a party one night with old friends and drank wine, the next day the pain had spread to my whole pelvic area. Short story is the Doc said she wanted to run some tests and there it was. My muscles had wasted and could not support my joints and I started to rapidly lose weight and other problems. I was also permenantly exhausted and pretty depressed, I knew the suggested triple tx at that time was Interferon Riba and the even more ugly Boc or Telap hmy:

Thankfully, I found hope. First by reading Greg Jeffereys blog, then on discovering MonkMed on Twitter and FixHepC here – What a revelation ! My London Dr had been very supportive & said I needed to treat soon, but then he suddenly retired and was replaced by another Dr who just said ‘you can wait’ which was devastating, he also said he wouldn’t monitor me if I took ‘the private route’. I found him arrogant, patronising and also told me a few porkie-pies, I was devastated. I had spent over a year in bed mostly depressed and with joint pain which didn’t stop on resting and which I couldn’t take pain kilkers for, just researching. I waited for the licensed Indian generics to come out at the start of this year and started treatment Jan.

Within weeks I actually had a spring in my step and was more energised – Totally Amazing! I was one of 4 % that with a slow responder to Harvoni, but the under advise of Dr Debasis & Dr Freeman I extended with Sofo/DAC and Dr Freeman added a 3rd med for the last 4 weeks. I’ve now been undetected for 10 weeks and I’m waiting on final SVR 12 results to come through.

I am so improved, have gained weight and started to engage with life again. joints and muscle strength will need building up again, but really, although I am cautiously hopeful, even if the result was not perfect this time, my quality of life is so improved and my fibrosis score much lowered. If I had to treat again, I would take the same path, without question. If I had been given NHS treatment, it most likely would have been 8 weeks treatment with no extention, I believe the advise and treatment here is superior, without doubt. NHS are restricted by bureacracy and cost and will try the cheapest option first in many cases. As you are a previous relapser, You have landed ithe best place here for treatment advise and support.

Some London hospitals are totally supportive of patients taking generic medicines via a trusted supply chain such as Redemption, others not. I have learned over time not to say too much until you know their policy on this, but ultimately they do have a ‘duty of care’ and as my current (and only!) lovely Specialist nurse said ‘you have saved the NHS thousands, it’s the least we can do’ but it took me a while to get there via a few ups and downs :-/

If there is a ‘good’ time to arrive here, it’s right now, with the first trial results in and more health authorities supporting, you’ve come to the right place – If you want to PM me for any NHS London advise please feel free, I’ve been around the block a few times with this! good luck and keep us posted , I’m pretty sure you will be starting to feel better soon.

LondonG

Hi London_R,

LG, Beaches, Lynne and Donna described almost similar sx as I experienced (some headaches in the first ~3 weeks of treatment and some light episodes of insomnia).

What I could add is only this: in Romania, on the opposite side of the Earth where Australia is, people experience similar side effects , so I am glad that I have this in common with the Australians .
By compare with the interferon treatment I had some years ago (which was quite hard….), the treatment with generics seems like a piece of cake, much easy.

I wish you safe and smooth journey!

RHF

Hi again London_R
Just a quick question or so….
The doctors you are going to see soon, do you have to pay them?
Are you fairly sure of how much help they will be to you?
May I suggest you maybe save your hard-earned (and your precious time) and get your meds from a tried and trusted source and get treated?As I understand it you don’t need a single thing from the doctors you have already seen and have said no to you

I’m Australian, so I hope you don’t think I am being too direct. Some of us are like that here