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  • This topic has 8 replies, 8 voices, and was last updated 9 years ago by Avatar photoJaz.
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  • 19 December 2015 at 6:42 am #6668
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    I just read Hep Australia website which is now listing the buyers club on their website as a place to go to get generics. Thankyou Helen Tyrell.

    19 December 2015 at 6:47 am #6669
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Here is the article:

    http://www.hepatitisaustralia.com/newsarticles/statement-on-access-to-new-generation-treatments-for-hepatitis-c/18/12/2015

    YMMV

    19 December 2015 at 8:37 am #6680
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    I’m not going to dwell on how long this has taken but just say well done Hepatitis Australia.

    That’s big getting the word out from somewhere a lot of people are likely to look for information and that is permanently available. Rather than media stories which are transitory and can be easily missed if you don’t see it the day it is published or aired.

    Big props to Helen Tyrell and HA. She can also be assured that when the drugs are listed on the PBS a lot of people unable to afford the generics will be able to get treated because of those who have paid for their own meds.

    19 December 2015 at 9:23 am #6682
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Well done to Hep Aust.

    I don’t doubt that the personal experiences/postings by Em and others from this forum have helped sway their formerly unequivocal stance. As you say Chester, the word about achievable cures should get out to a whole wider audience now. Great stuff!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    19 December 2015 at 10:28 am #6685
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    A big thank you to the Hepatitis Australia team. :)

    G

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    19 December 2015 at 11:35 am #6690
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Just saw my story on the “Speak Out” forum with Hep Australia which I posted on 8/12. Glad they approved and posted it……..I made it short and sweet but to the point. It’s great to see that word is “getting out there”. It was the first site I visited when I found out I had the virus. :)

    YMMV

    19 December 2015 at 2:17 pm #6708
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    This link has found its way onto The Hepatitis Foundation of New Zealand’s page, lets hope it spurs them into action – its been very quiet on the generic front from them.

    SVR 24

    19 December 2015 at 4:06 pm #6715
    Avatar photosonix
    • Guardian Angel
    • ★★★★★
    @sonix

    I see HA cover their arse with a legal disclaimer. It’s great they posted the info though.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    19 December 2015 at 4:07 pm #6716
    Avatar photoJaz
    • Topics: 2
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    • Guardian Angel
    • ★★★★★
    @jaz

    In recent years their page has been my go to for updates on the progress of treatments. I’d just check in every now and then to get an update. I checked their website just recently after discovering fixhepc and found not a mention which I was really disappointed about. I felt ripped off as though the news I’d been depending on had be skewed all this time. So I am very pleased to see this! It is wonderful news :)

    3a F0 TX Naive
    Started Tx 12/12/2015 Kingswood Sof/Dac

    Pre Tx – ALT 71 AST 40 V/L 9 million
    Day 11 – ALT 12 AST 15
    4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
    6 week – UND
    12 week EOT – UND
    SVR4
    SVR12

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