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  • 26 January 2016 at 4:16 am #10419
    Arron
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    • Novice
    • ★
    @arron

    Hi,
    I saw with interest the HepC buyers club story on the news here in NZ last week.

    I’m hoping the connections this forum has made might extend to other forms of treatments that are often not affordable to the average person.

    My father is dying from Melanoma and they has been significant success from Keytruda (pembrolizumab), unfortunately it is not funded in NZ and treatment costs around $200,000.

    I’m hoping this forum may be able to help, I know there are many 100’s of kiwi’s in the same position as my father.

    Appreciate your time,
    Arron

    26 January 2016 at 11:01 pm #10476
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    Hi Arron,

    So sorry to hear about your situation. Why don’t you get in touch yourself with the pharmaceutical suppliers recommended as trusted on this site. The site recommendations are for hepC meds only, but you’d at least have someplace to start.

    dt

    26 January 2016 at 11:16 pm #10478
    Avatar photoEnkel
    • Guardian Angel
    • ★★★★★
    @enkel

    We have Parag Jain, with the bull pharmachem http://www.indiamart.com/bullpharmachem/oncology.html#keytruda-pembrolizumab

    Keytruda Pembrolizumab

    sales@bullpharmachem.com

    I will contact him immediately

    Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
    Started Twinvir 12/12/15.
    Two weeks
    ALT 17 at 2 weeks
    Viral Load UND at 2 weeks
    ALT 13.5 at 7 weeks EOT
    ALT 10.5 at 15 weeks EOT
    ALT 13 at 27 weeks EOT, VL UND, Cured

    27 January 2016 at 12:31 am #10485
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Arron really glad you showed up here, I have been suggesting to all the journalists your patient group follow up this model, act quickly, from what I understand it will depend on whether the patent for Keytruda is invalid in some countries so generic is an option. You will need to know that, get a doctor and patient advocate, look at what is being done here, very best wishes.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    27 January 2016 at 12:34 am #10486
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    my name is in those stories, I’m easy to find, get in touch if you want.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    27 January 2016 at 4:21 am #10500
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Oh good luck Arron, hope there’s a generic for the drug you could access.

    Cindi x

    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

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