I hope so too Lynne, and it’s highly likely. Now is the time to be a patient patient.

All the very best with it Lynne, and coral The road starts here and I wish you both a smooth one.

Hope to be following you all in a few weeks, with a bit of luck…I know that feeling of impatience heh.

i couldn’t believe how backward thinking Geelong hospital have been. I have always found there clinic odd. Asking questions was apparently and unusual thing for patients to do there. It always seemed justified to travel to Melbourne. i’m glad you have managed to teach them a thing or two and hopefully people will have an easier time now because of you. I do know a lot of people who do the drive to Melbourne hospitals because of there attitude.

Glad you persevered and got your treatment and monitoring.

Hi Vicky Nonna unbelievable story about Geelong hospital. they were trying to justify their unkind attitude by scary talk of long term effects of generics. Where was their heartfelt concern about the use of poisonous interferon used in the past 3 decades. Many people have been damaged by this drug and it failed more often then not. They tried to push it onto every poor desperate person looking for hope. The hospitals couldnt care less about the effects and patients were left to suffer alone ofter without out patient care. Suddenly they are concerned about the effect of these drugs which actually cure. Also I would be pointing out to these health care professionals the long term side effects of having hep c. Whats wrong with these people dont they realise people have been putting up with this suffering for years and we all die eventually, we are just trying to have some quality time before we go. Have mercy .

I had the same experience with a specialist. here in Bendigo. I paid to see him privately so he could arrange the Fibro Scan etc. which came back F0 thank goodness. My viral load is 3.3m. Before I even sat down he said “I won’t be able to treat you but can answer any questions you have”! I always thought that is what specialists were meant to do, look after their patients. Needless to say I will not be seeing him again. I have a supportive GP. I received a letter form the Bendigo Base Hospital telling me it could be up to 18 months before I get an appt. at the clinic. Then I found FixhepC. And I agree that the sickest will get the trial drugs here (and I have no problem with that whatsoever) and those of us that are in a relatively less afflicted position at the moment will have to just wait and see………just taken my fifth dose tonight and apart from insomnia and a bit of constipation (too much information) I feel good!!

My Liver Nurse is a really lovely person I notified her I had accessed the generics she was so happy for me and wanted to monitor my progress at the clinic. Still have text message on phone, she was going to talk to Doctor since then nothing it has gone quiet obviously pressure has been applied.
Went to local Liver Clinic was told that they are that busy best to be monitored by Doctor who wrote script that’s fine .

ps. My Liver Nurse did suggest I add Riba to the mix.

Hi Lynne,

I was told Paracetamol is ok, I gave my son 2 panadol yesterday.
Hope you feel better soon.
x