MonkMed - FixHepC

This topic has 101 replies, 29 voices, and was last updated 7 years, 11 months ago by Gaj.

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2 December 2015 at 3:51 am #5005
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Mike,

Only the bit about them on Killthedragon site. Still shows as unverified so hopefully Alsdad can comment.

http://killthedragon.freeforums.net/search/results?captcha_id=captcha_search&what_at_least_one=Monkmed&who_only_made_by=0&display_as=0&g-recaptcha-response=03AHJ_Vus-F60jjqNqrB0xgLqMGwtPLhDKg5rOp5L5YYHmEXWRa1X1WGD-yEFqGmKPxy9-4oTbFf4xP2f-CQcwJ3KOXUYCdn66ZCVGej5v4F8s6X_GlAD0mG-PNHq5NgAHYH1xDe3n6n2TZHBl4STMgOoUcCM9w0FWa9vUtyZg9xxtVcCXLPFr0qS1Z9ufoUZ0gtIXDtMCQSBQa0A0WqFIYyXIwvvEbuC8gi9LAGt3mny-tEe-xnEyn0GrcZC-N3dvaK_sOWJ-vT1e8jHKR4Z5Kj_YHBi5Q-B7C2UJLGkznpztDHJPxRMJPXd4NdqEpYfD2RoBN_w0yZa1HV65BfJIeWkxYocNjZQhSAU1sFZFU8H_foBY7DOAq–8B8O_D2AMbgw0D780-fceL4JyhsXCVcgokcsU53iRMhly0qiMQaoiDT1nffQXSp5k6HbhATEhWpMhGWgPtVJmPBWrW_DDz0vOjAOSRwdaKFyuVGY6YyQACLjGITM7IdbHQk6xMY6p0UQHzWmNNidJX20wmUAJ9TITbgMsV7b9ljD7p8-JYTJrZ3DQfqaln-XcO6no59NBY9Da6xNaIAkusYkwnOOC6rDdmrUFo-XYBl_lD59IuYXHfJcEg-nNw8LUAxXAYkwWvgguBfl0WGuvkK-czp7ff10NsIsfN5D6aPolhNwry0TcTr93mT-CW07-ZTwOpK938-tXYtKHXO-iK5tyuWmLAwr1HOPWED2KT9Nl6-n20DhFijx6asPuuC2Hnx1cH3IoZzu6tlnCADD763IG5WPUJYwlr1LzrdTLEMZpmlKZXfCmJBTS_Qdim0K5Oy2e1VOykhK0SG7HbDppWsj69b79BjzJEzW3tGDNU2EcoMWPTLzVKhWDnpKmwOvp5LGVGz_ROpfMx8cuPfZOOFi6yuVTY4ElbLAagmvsNNJj0E3Wyg7T58dpLec3ELV3KbknPaoPZ6uZHVSvzqW1

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
2 December 2015 at 4:06 am #5006
Alsdad
- Topics: 18
- Replies: 317
- Total: 335
- Guardian Angel
@alsdad
As G says, I put a link up on my forum.

All I could find on them at the time is in G’s link above. I asked if anyone knew anything about them, but the only response was from Monkmed themselves.

I also asked Greg Jefferys if he’d had any dealings with them. He replied that they’d been in touch with him but that he didn’t want to deal with them (but didn’t expand on that).
2 December 2015 at 4:24 am #5010
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
UPDATE
MARCH 30, 2916
MONKMED HAS BEEN FOUND TO BE TRUSTWORTHY BEYOND DOUBT
MIKE

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
2 December 2015 at 4:28 am #5012
Alsdad
- Topics: 18
- Replies: 317
- Total: 335
- Guardian Angel
@alsdad
Maybe London Girl can add some info when she next comes online?
2 December 2015 at 2:08 pm #5049
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hi guys, Yes, I have chatted to MonkMed – They always answer my questions pleasantly and directly with no messing about.

My feeling is that they are setting up a positive thing but are not yet quite ready to go, (only an instinct).
Suggest ‘keeping an eye out’ – as we do

http://www.monkmed.com/

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
2 December 2015 at 3:36 pm #5057
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
They are not sure of their answers. Monkmed may have a good intent but are not well established yet.

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
5 December 2015 at 5:56 am #5264
slix
- Topics: 0
- Replies: 5
- Total: 5
- Novice
@slix
They are very helpful and appear to be honest, I believe they will be a good option for people who can’t leave the states, but it sounds like you will have to jump through hoops for customs.
5 December 2015 at 8:13 am #5273
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Minor test in process.
7 December 2015 at 10:08 pm #5437
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
?

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
8 December 2015 at 6:06 pm #5544
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
I went to their website and filled out their entire form which included questions on blood tests and genotype and did I have a prescription etc. as well as full contact info … email, phone number, address …

I quickly got an automated email response from an email account … notifications@typeform.com … likely a subscribed service for form infilling and data collection.

About 3.5 days since, I’ve heard nothing more.

Edit: Okay, the page testing explanation seems legit.
In any case, if Dr. Freeman says he’s working with them that’s good enough for me.
8 December 2015 at 6:18 pm #5545
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
hahah I have filled that form too and I have a month without getting a response from them.

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
8 December 2015 at 6:35 pm #5546
slix
- Topics: 0
- Replies: 5
- Total: 5
- Novice
@slix
Wow, and I filled it out and got a phone interview with a doctor within two days
8 December 2015 at 6:39 pm #5547
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
Did they offered any meds for the moment?

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
8 December 2015 at 7:47 pm #5549
slix
- Topics: 0
- Replies: 5
- Total: 5
- Novice
@slix
Yes, but only from licensed manufacturer which means daclatasvir is not yet available
8 December 2015 at 7:51 pm #5550
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
For me license means nothing. Did they had hepcinat lp or ledifos, hepcvir L ?

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
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