Need advise for gt4 treatment

This topic has 143 replies, 11 voices, and was last updated 5 years, 1 month ago by Mar.

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19 December 2017 at 6:50 pm #27163
kaju
- Topics: 1
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- Total: 69
- Recovery Champion
@kaju
Hi,

Thank s alot for all your advices and information.

My doctor called me few days ago and he told me we can start with Harvoni or Sov/ Dak
He informed me about clinical trial which has made in Egypt ( as Dr Freeman said before ) but he is still thinking for Harvoni because for now Harvoni’s trial history is more accepted in medicine sector. My english is not perfect hope ı can explain clearly. Also he told me it is possible to fiish treatment in 8 weeks if we go with Sov/Dak
I am sure about I will go with sov/dak .
Thank you again all yours support and replys to my comments.
Cheers.
20 December 2017 at 10:25 am #27168
rightsaidfred
- Topics: 8
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- Guardian Angel
@rightsaidfred
Hi Kaju,

On the basis of what you’ve said previously sof/dac is probably going to be best for you but a 12 week course of treatment would be preferable. 8 weeks may well work for you but statistically a 12 week period carries an improved chance of cure.

If your doctor will only give you an eight week course, because of his budget, you may want to consider contacting Fixhepc and asking if they could just get you enough for the last 4 weeks.

I know English is not your first language, so if you don’t understand please say you don’t.
All best wishes,
RSF

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
20 December 2017 at 10:28 am #27169
Mnem
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- Guardian Angel
@mnem
Hi Kaju, 12 weeks is best, that is what people on this forum say, I think.

Best wishes for starting treatment. Mnem

G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
24 February 2018 at 12:21 pm #27471
kaju
- Topics: 1
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- Total: 69
- Recovery Champion
@kaju
Finally I got prenscript and my doctor gave me harvoni for 12 weeks.

I have gt4 and still thinking to much about what İf I go with others. sof/ dac or epclusa
Hope every thing will be fine
Any advises during treatment for diet?
Like drink too much water, not to drink too much coffee ? Eat artichoke ?
Cheers.
24 February 2018 at 7:25 pm #27472
beahavan
- Topics: 5
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- Guardian Angel
@beahavan
I kept a journal during my 12 week treatment with Harvoni. On the 16th day I experienced some dizziness. It passed after a few days. I also experienced a few headaches.
Drink plenty of water. I went for a walk every evening. It helped me sleep. I drank 2 cups of coffee a day. One after breakfast and one in the afternoon. I have never heard anything about eating artichokes during treatment.

G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
25 February 2018 at 12:35 am #27473
Mar
- Topics: 3
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- Total: 290
- Guardian Angel
@mar
Congratulations Kaju on starting your treatment, Harvoni is a really excellent medication for GT4. As for diet during treatment, you should eat a normal varied diet. As a general rule, provided you don’t eat the same thing every single day, you are unlikely to run into any issues. Just be careful to not take antacids with Harvoni® or Epclusa® generics.

Making the world a better place – one patient at a time.
15 March 2018 at 2:52 pm #27603
kaju
- Topics: 1
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- Total: 69
- Recovery Champion
@kaju
Thanks for all your support . My meds shipped from India today. Hope I will receive them soon and will start treatment and finally will be cured.
I am 35 years old I guess connected with HCV 5 years ago. Fibros 0 and hope harvoni will make me good too
I will share all my experience during treatment with generic Harvoni.
Cheers.
15 March 2018 at 6:12 pm #27604
beahavan
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- Guardian Angel
@beahavan
I kept a journal in which I recorded side effects and how I was feeling each day during the 84 days of treatment. I have referred back to it many times.

Sometimes when I had trouble sleeping I re-watched this video about G4 treatments. G4 is very sensitive to DDA.
[video src="http://hosted.medipix.com/scourge/player.html?program=scourge4.mp4" /]

You can DM if you have any questions.

G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
16 March 2018 at 7:32 am #27610
coral
- Topics: 8
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- Guardian Angel
@coral
Hi kaju,

It’s great news that your meds are on their way. I remember being really impatient to get them and start treatment. It’s a bit of a mantra but drinking lots of water, eating healthy and well, exercising and being a bit kinder to ourselves certainly helped me.

Good luck. May the postie deliver your precious cargo very soon.
16 March 2018 at 1:53 pm #27611
kaju
- Topics: 1
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- Total: 69
- Recovery Champion
@kaju
Thank you guys .
I am just wondering , I have business trip in june and meeting at another country , should I wait for end of trip for start to take meds or should I start as soon as possible . I am little nerwous about side effects and another point is can it be problem at the control point in the airport even I have carrying prenscript. It s generic you know .
Cheers.
16 March 2018 at 6:35 pm #27614
beahavan
- Topics: 5
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- Guardian Angel
@beahavan
If you get your meds next week then you should finish treatment by mid June. I experienced a bit of dizziness and lightheadedness on my 16 and 17 day of treatment per my journal. That faded in a few days. The last 30 days of treatment went quite smoothly.
Traveling with medication is a question I can’t answer.

G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
17 March 2018 at 12:19 am #27618
Mar
- Topics: 3
- Replies: 287
- Total: 290
- Guardian Angel
@mar
Hi Kaju, as Beahavan mentioned, for most people, side effects in the last month of treatment aren’t usually an issue. Regarding traveling with generic medications, which country are you traveling to? Traveling with just 1 bottle is not a problem in a lot of countries, especially if you have a prescription with you.

Making the world a better place – one patient at a time.
17 March 2018 at 6:37 am #27623
Dr James
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- Guardian Angel
@fixhepc
The treatment is unlikely to make you unwell so you could start now without a high probability of having any issues.

The only way to have a 100% probability is to start after your trip but chances are treatment will make you feel better rather than worse.

YMMV
17 March 2018 at 12:53 pm #27628
kaju
- Topics: 1
- Replies: 68
- Total: 69
- Recovery Champion
@kaju
Beahavan you are right,

I guess I will receive my meds in 10days. I hope …
Trip date is middle of June , I will be in end of treatment and I will stay just 1 week. Maybe I can put them in suitcase with presciription and there will be no problem. Maybe they will not check ..In my old travels sometimes I put painkiller and havent got any trouble with that before. I will go Netherlands.
I dont want to wait for 3 months more , because if I do that , it will be totally 6 months delay for complete the treatment.
Thank you guys.. I am very excited and cant wait for start.
17 March 2018 at 11:05 pm #27630
Mar
- Topics: 3
- Replies: 287
- Total: 290
- Guardian Angel
@mar
Hi Kaju, you’re allowed to bring your medication with you into the Netherlands if you have your prescription according to the Netherlands Tax and Customs Administration website https://www.belastingdienst.nl/wps/wcm/connect/bldcontenten/belastingdienst/individuals/abroad_and_customs/restricted_prohibited_import_export/medicines1/medicines

Making the world a better place – one patient at a time.
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