Notes for New Zealanders bringing in meds

This topic has 31 replies, 9 voices, and was last updated 8 years, 11 months ago by Tim-Naylor-google.

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30 October 2015 at 12:59 pm #3059
garwoo
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- Novice
@garwoo
great news for me today, as I have been able to get a prescription and support through the liver team.
30 October 2015 at 2:05 pm #3067
Chapel
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- Guardian Angel
@chapel
Congratulations Gary, that’s fabulous news! Hopefully it will get easier for people to get the scripts and care they need. I’m sure you are right not to wait for some other solution.

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
30 October 2015 at 10:38 pm #3083
chongandco@paradise.net.nz
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@chongandcoparadise-net-nz
Hi I contacted rachel at mesochem got 6grams api daclactsvir it arrived within one week of me transferring funds,medsafe did contact my specialist and asked him what I was up to ,thank goodness someone there had a brain and let it come through cheers

1a non responder 2010 f3
31 October 2015 at 12:06 am #3088
garwoo
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@garwoo
Great. So good to see such positive happenings for us all at last. They want me to take Ribavirin as well. Anybody else taking this? I had thought that sofosbuvir and daclatasvir together were enough.
31 October 2015 at 12:19 am #3092
Paul-Jarman-facebook
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@paul-jarman-facebook
If your being monitored and they want you too the Riba could just increase the SVR rate a small amount. I will be doing 1 month on it as well and don’t care whet my results say as I don’t want to be doing this again.

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
6 November 2015 at 2:43 pm #3409
Tim-Naylor-google
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- Acolyte
@tim-naylor-google
My package of Twinvir arrived today via Fedex from Bangladesh.
It was sent by a business contact of mine in Bangladesh.
If I was doing it again I would first try Rasel Rahman at Incepta.
The package arrived in Auckland on the 26th of October and then spent time with Customs and Medsafe before being released.
Customs and Medsafe were helpful when I rang them and I emailed a copy of the prescription from my GP to Medsafe -medclearance@moh.govt.nz which was necessary to get it released.
A Medsafe doctor rang my GP to warn her of the potential risk she faced but she didn’t back down.
I am a patient of the Gastroenterology Department of a major DHB but my specialist did not respond to my requests for a prescription and have not yet responded about monitoring.
I gave my GP a copy of the GP’s Cheat Sheet from this site and I got my viral load test done today and will have the other recommended tests in 4 weeks time.
I took the first tablet this morning. So far so good

GT1 F4 compensated, I/F non-responder 1997
@2015-11-06 VL 3.5 x 10^6, started Twinvir
@2015-12-31 VL:UND
@2016-01-29 started 2nd 12 weeks of Twinvir
@2016-03-01 ALT=42 AST=42, other LFT in normal range
6 November 2015 at 3:35 pm #3415
tweakmax
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@tweakmax
Ur gp is brave. A good doctor
7 November 2015 at 12:14 am #3422
Chapel
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@chapel
Well done Tim, it’s great to know Twinvir can get in past Medsafe. Did the script specify Twinvir or was it just Sof/Led?

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
7 November 2015 at 8:34 am #3458
Tim-Naylor-google
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- Acolyte
@tim-naylor-google
The exact wording on the prescription from my GP was:
Ledipasvir-Sofosbuvir caps
Sig: 1 cap, Once Daily
Mitte: 90 cap
(Generic Substitution Allowed)

GT1 F4 compensated, I/F non-responder 1997
@2015-11-06 VL 3.5 x 10^6, started Twinvir
@2015-12-31 VL:UND
@2016-01-29 started 2nd 12 weeks of Twinvir
@2016-03-01 ALT=42 AST=42, other LFT in normal range
9 November 2015 at 5:23 am #3532
bmw88
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- Novice
@bmw88
I too, have 2 days ago returned from Aust. with Sof. & Led. On the NZ incoming declaration card is a question re: medications and drugs to declare which I ticked. I had a copy of email from http://www.medsafe.govt.nz stating it was ok for myself and/or partner (on my behalf) to bring in 3 month supply for personal use. At Auckland customs I was channeled for screening… they simply asked “what medication is it?” “Unopened, Australian script for my personal use, do you want to see the script?” I replied. “No… just go over to xray!” They exrayed my 2 bags and waived me thru… that simple! I’m more than happy to discuss/assist with any procedural information..!
13 November 2015 at 2:57 pm #3876
emilio
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@emilio
Awesome news thanks bmw, it seems that NZ customs don’t have any issue with this, so good. How many hepers in NZ? Em
13 November 2015 at 11:39 pm #3901
garwoo
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@garwoo
Got my caps today after purchasing the API’s through Mesochem China and having them compounded by Optima in Auckland. Just waiting for Hosp to get the Ribavirin and it’s all go. I had the API’s sent direct to Optima and did not hear from customs at all. Here’s hoping.
13 November 2015 at 11:55 pm #3902
bmw88
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@bmw88
Grrreat to hear Garwoo! I’ve been on them 1 week today & YAY… feel like a new man already. Huge difference and thankyou to all at Fix Hep C and I wish success for everyone, with whatever your choices may be!
14 November 2015 at 12:00 am #3903
Tina-Hill-facebook
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@tina-hill-facebook
Hi Em it is estimated that there are 50 000 people in New Zealand living with HCV this figure is said to be rather conservative.

SVR 24
14 November 2015 at 12:12 am #3904
bmw88
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@bmw88
Hi Em, here’s the latest info…
“It’s time for action on Hepatitis C in New Zealand
Thursday, 30 July 2015, 5:01 pm
Press Release: Joint Media Statement

“It’s time for action on Hepatitis C in New Zealand”– Hepatitis C can be eliminated.

Chronic Hepatitis C is a significant viral infectious disease which carries serious long-term implications for health. 50,000 people in New Zealand are living with chronic Hepatitis C, [1] of whom up to 30,000 may not know that they have it. [2] Symptoms are often non-specific, and many people are not tested until they develop serious consequences. [2] For those who live with chronic Hepatitis C infection, there is reduced quality of life and ongoing stigma for them and their families/whanau.

Every year in New Zealand, 1000 people contract Hepatitis C.[2] Since 2000, the numbers of people with severe liver scarring (cirrhosis) caused by Hepatitis C have doubled. This is because people with Hepatitis C are an ageing group, with low rates of diagnosis and very low treatment uptake (<1% per annum).[2] Hepatitis C is now New Zealand’s leading cause of liver transplants, due to liver cancer or complications of cirrhosis,[3] and one driver of the projected increase in deaths from liver cancer.[4] In 2014, approximately 140 New Zealanders died prematurely from consequences of the Hepatitis C virus, and by 2030 this number is expected to climb to 350.[2]

If the current low rates of diagnosis, assessment, and treatment are not dramatically improved, three times as many people are predicted to present with life-threatening complications of liver failure and liver cancer caused by Hepatitis C over the next two decades. [2] This increase would continue to reduce people’s quality and length of life, and also increase costs to New Zealand’s health system. Recent advances in treatments, diagnostic technologies, and methods for assessing the stage of disease, together with lessons learnt from recent pilot projects, suggest that an opportunity now exists to eliminate Hepatitis C in New Zealand by 2030.[2] Modeling shows that changing treatment strategies as soon as new treatments are available could substantially reduce morbidity and mortality, and that Hepatitis C could even be eliminated from New Zealand.[2] These strategies could also result in significant savings to the New Zealand health system, by avoiding direct and indirect costs. Delay in access to new therapies would have a tangible impact, resulting in more than 200 preventable deaths every year.[2]
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