power of 3 - FixHepC

This topic has 43 replies, 10 voices, and was last updated 8 years, 10 months ago by Tina-Hill-facebook.

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19 January 2016 at 4:44 am #9732
Hazel
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- Guardian Angel
@hazel
http://www.stuff.co.nz/national/health/75979256/kiwi-hepatitis-c-patients-getting-treatment-from-australian-drug-buyers-club

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
19 January 2016 at 4:53 am #9734
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
https://youtu.be/U369lUe3dLc

SVR 24
19 January 2016 at 10:39 am #9768
Paul-Jarman-facebook
- Topics: 8
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- Guardian Angel
@paul-jarman-facebook
”hazelriannon” wrote:

http://www.stuff.co.nz/national/health/75979256/kiwi-hepatitis-c-patients-getting-treatment-from-australian-drug-buyers-club

Good article Hazel now we are going to be swamped by even more East Islanders.

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
19 January 2016 at 3:53 pm #9821
emilio
- Topics: 13
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- Guardian Angel
@emilio
Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board. Em
19 January 2016 at 4:29 pm #9825
Dr James
- Topics: 264
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- Guardian Angel
@fixhepc
Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board

Hi Emlio,

It’s been quietly happening for a while, baby steps but gathering momentum…

Hi James

Yes some good news for all Australian Hep C patients.

We have written scripts for 4 patients here before Christmas, but I don’t know how many have gone through with signing up to the buyers club etc.

We have a compounding pharmacy in Auckland who has compounded a few other buyers clubs meds as prescribed by a local gp.

Hopefully NZ government will also get such a good price, I haven’t heard any news as to when this might be reconsidered. If its gradually introduced ie cirrhotics first Im sure there will still be ongoing interest in buying.

Thanks for the trial link. We have another one this afternoon who wants to buy so will discuss Redemption etc.

Cheers

Dr at major NZ referral hospital

YMMV
20 January 2016 at 2:15 am #9856
Hazel
- Topics: 45
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- Guardian Angel
@hazel
Phew, just did an NZ Radio Live interview. 6 mins. got fixhepc and Greg in 3x.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
20 January 2016 at 3:22 am #9862
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
No No No!

I’m speechless WTF!!!!

http://www.stuff.co.nz/national/health/76025797/christchurch-and-otago-hepatitis-c-service-gets-funding-cut

SVR 24
20 January 2016 at 7:00 am #9880
Hazel
- Topics: 45
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- Guardian Angel
@hazel
Don’t expect you all to listen to this but here is today’s Radio Live interview- live. I had 15 mins warning for it.
http://www.radiolive.co.nz/Dallas-Buyers-Club-type-operation-for-Hep-C-drug/tabid/506/articleID/111604/Default.aspx

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
20 January 2016 at 7:08 am #9881
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
Go get em girlfriend!!!!!

SVR 24
20 January 2016 at 7:16 am #9882
Joy
- Topics: 12
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- Guardian Angel
@joy
Good reporting Hazel – you definitely outshone the interviewer.
I thought you sounded very natural and sincere, a really good advertisement for generic DAAs.
Probably better that it was spontaneous, less time to get nervous.

Go girls, 50,000 Kiwis to be cured.
20 January 2016 at 7:50 am #9889
Ariel
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- Guardian Angel
@ariel
Congratulations Hazel, I have just listened to your radio interview.
I hope that you are able to inspire more people like us to take action.
The very fact you have got to the radio and the media is incredible activism, I also really like the way you held the interviewer on point.
I love visiting New Zealand. I have friends there in my global surfing community.
What an opportunity to be able to speak out and get the message across.
HUGE PROPS from across the Tasman from Ariel
20 January 2016 at 9:12 am #9893
CC2B
- Topics: 2
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- Guardian Angel
@cc2b
Good job Hazel! That’s the way to get the word out.

GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
20 January 2016 at 9:59 am #9895
pat1
- Topics: 5
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- Guardian Angel
@pat1
WOW you really packed a lot of information into 6 minutes
Great job

Great video also

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
20 January 2016 at 10:11 am #9896
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
TV 3 News

Featuring James Freeman & Hazel

http://www.3news.co.nz/nznews/sick-kiwis-crossing-the-ditch-for-life-changing-medicine-2016012017#axzz3xlJdLpLv

SVR 24
20 January 2016 at 10:11 am #9897
Gaj
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- Guardian Angel
@gaj
Fantastic interview Hazel!.

Edit: and just watched the news clip too! Way to get the information out there.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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