Viewing 15 posts - 91 through 105 (of 105 total)
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  • #22748
    Peach
    • Topics: 1
    • Replies: 11
    • Total: 12
    • Acolyte
    • ★★
    @peach

    I passed my SVR12 today!! <img style=illy:' /> <img style=illy:' /> <img style=illy:' /> <img style=illy:' />

    I was sooooo nervous in the waiting room, I felt like I was going to pass out. I was literally shaking! I just kept imaging the moment – if it was bad news – over and over and imagining what that would feel like. I think I didn’t want to get my hopes up because that’s when you get screwed over. I remember when I was diagnosed it was such a shock, I did not expect it at all and I still have flashbacks of that moment in the doctor’s office being told… he was just looking at the screen for ages, trying to figure out how to tell me. And just that feeling of WHY ME? So unlucky. I knew it was going to be a long road. And especially because at the time of course my options were a) interferon and b) interferon. I wanted to get treatment right away, didn’t want to live with this thing for one more day, but my specialist told me it was probably the best option to wait for the new drugs which “could be here in a couple of years”. Gah!

    Which was good in theory, but I didn’t have the “symptom-less” kind of HCV (does that even exist?). I felt like death warmed over. My skin was almost see through, I picked up a different flu each month, constant aching everywhere, sleeping all day, I just felt horrible. This might sound weird, but I feel like it even changed my vision. I didn’t want to tell my friends what was wrong so I had to hide it too. Couldn’t have a social drink. I think the isolation was easily one of the worse things.

    So I waited and waited and finally was able to go on the medication. I remember the first day I got the pills and carrying them home in their little paper bag. I was so excited! I immediately started googling, obsessively reading studies and trial data (I did this every day for 3 months). On the very first day I came across Greg Jeffreys blog and I remember binge reading it for 3 days straight. It was so incredibly inspiring. But I tell you, had I come across it before March 2016 I would have definitely, definitely gone on the generics. No question!

    By the way, 2 months ago I went to get my “poor man’s SVR” LFTs at week 4 and went to a local GP I had never been to before to get the form. I told him I had just gone through the new treatments and was feeling fine and he said, “Oh those treatments are really intense and even a man in his 20s struggles with it”. I said, “I was fine, I went on the new treatments, not interferon”. And he just didn’t get it! He had no idea. And that really upsets me because what if someone goes in there and discovers they have HCV? He’s not going to be able to give them good information about how easy it is to treat. Needless to say I didn’t end up going back.

    Anyway, I haven’t really posted on the forums here much, but I have been reading it for months and I just wanted to say thank you to everyone that posts. You have all helped me get through this in one way or the other. #love Every success has been mine, and with any relapse that happens it brings tears to my eyes. All I have in this are you and my closest family members. Imagine if people with cancer were treated like us? It’s disgusting, which is why it’s so important to support each other. Because we’re not getting it from society at large. I’m hopeful that will change as this thing becomes easier to eradicate. I certainly will do everything in my power to spread the word.


    genotype 1a
    viral load 160,000
    age 29, F0, treatment naive, il28bcc
    unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
    12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

    week 4 – alt 12
    week 12 – viral load undetected
    svr12 – NOT DETECTED!

    #22751
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Fantastic news Peach! :+1: :cheer: #flower

    #dance


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #22754
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Lovely post, Peach.
    Happy for your SVR.

    livelongandprosper.jpg


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #22760
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    What a heartfelt post Peach. #love Huge congratulations on your SVR12! I think you can have a social drink now :)

    #22769
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1
    Peach wrote:

    I passed my SVR12 today!! …
    .All I have in this are you and my closest family members.

    Hey Peach
    Awesome to read your post. #flower We all seem to tell a similar tale about the emotional roller coaster that accompanies HCV not to mention the physical sides. I didn’t have the symptom less kind of HCV either. It’s great to know about the ‘poor man’s SVR’ I’ve never read that in any other forum. Congratulations to you.


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #22774
    Peach
    • Topics: 1
    • Replies: 11
    • Total: 12
    • Acolyte
    • ★★
    @peach

    thanks Gaj #flower #flower thanks Coral #flower #flower

    I am hoping and praying for you guys to get the same news as I did very near in the future. #love I will keep checking back to see how you’re progressing. I haven’t felt the pain of relapse, but I have unfortunately been through reinfection (awkward :dry: lol ) which I feel like is as bad or almost worse because obviously you just blame yourself and think well I deserve to go through all this. It’s not very fun to admit that. At least I can say that I’ve learnt a lot from my mistakes and actually have been taking such good care of my health because of it, so I try to look at it as positive. “You never know what worse luck your bad luck has saved you from”

    pat1,
    This forum is great isn’t it? I have learnt so much amazing information from everyone here and especially Dr Freeman. Even though I didn’t take generics, I just feel like this is the best place to be :+1: :)

    hi beaches,
    hoping to hear some good news from your end soon! :cheer:


    genotype 1a
    viral load 160,000
    age 29, F0, treatment naive, il28bcc
    unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
    12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

    week 4 – alt 12
    week 12 – viral load undetected
    svr12 – NOT DETECTED!

    #22779
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi Peach,
    Thank you for sharing your story. Your post is very touching.
    Congratulations for SVR12! You are cured!

    rainbow_80_anim_gif-2-3-4-5-6-7-8.gif


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #22781
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Wonderful news Peach :) Very happy for you :cheer:


    YMMV

    #22785
    Avatar photoFara
    • Topics: 1
    • Replies: 82
    • Total: 83
    • Guardian Angel
    • ★★★★★
    @fara

    Congratulations on your SVR 12 Peach, and thank you for sharing your heartfelt story. Best wishes onto SVR 24 and your new lease on life…Fara #flower


    HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
    Tx sof/led started 3/4/16
    4wks VL <15
    9 weeks VL UND, ; Alt-15,Ast-13
    16 weeks VL UND Alt-20, Ast-22;
    EOT 24 wks UND
    SVR 4 UND
    SVR 12 UND, Alt.15, Ast. 17
    SVR 24 UND

    #22869
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    HA!
    The SVR 12 Club groweth!!
    m


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #22873
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congrats and happy splashes for your SVR12 Peach, and your encouragement and touching story too
    Very happy for you Peach, you have made it #flower #love #flower
    Love from Ariel

    #22875
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Congratulations Peach! :cheer: :+1:

    #22940
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    YESSS!!! SVR 12. You got this Peach!

    #22953
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    SVR12 done.
    Check out my blog if you want a laugh and don’t offend easily.


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #22954
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Congratulations Peach – Happy reading :cheer:
    and what a lovely post too,
    I relate to so much of it.
    Thank-you.
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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