I have often wondered by the so called ‘charities’ don’t use their donations to treat people instead of paying for conferences. This is awesome. I am saving up for my meds, but still need to save more for monitoring, just in case. As soon as I have my meds and am on my way, I will also be donating in small bits as I earn money. I will also let others know.

Bl**dy fantastic !

I’ve been writing to friends and colleagues individually telling them in my own words how much this site has helped/moved* me. I have been including a link to the home page http://fixhepc.com and asking them to have a read about what is happening and why and asking that if they are aware of anyone with HCV to pass on the details to them. Since yesterday I’m also including a direct link to the Doc’s initial announcement about charitable donations as that has information about where to donate and the process used to determine how those monies are spent. http://fixhepc.com/forum/charitable-contributions-via-andrew-shaw-foundation/378-charitable-donations.html

While this is a more time consuming process than flicking out a bulk email to everyone, I know from my own experience that I am much more receptive to these sort of communications if they are personal and obviously written to me rather than a chain mail type of thing. It is also a good excuse to strengthen friendships by the old fashioned method of writing letters(ok emails, it is 2015). I realise that to some this may just sound like an old fossil railing against the pace of modern life :~) – but communication is important to me and I’ve done far to little over recent years.

G

* while Emilio and Greg’s example of telling people they have/had HCV has inspired me to broaden the circle of people that I have told and the reception has been positive, I am still not ready to step out as boldly as they have.

Melanie Eagle from Hep Vic sent out letter saying no December listing on PBS. And about Dr media coverage of compassionate supply.

Also Greg Jeffery’s was donating part of Indian generic costs to a poor clinic of hep c in India. I knew about this markup and it was fine by me. Maybe the buyers club can add a mark up tax going to compassionate support

Hi Lynne,

While I can’t speak for the forum or the buyers club, given our no censorship rules and the allowing of links to other sites I am fairly sure there would be no issues with you Facebooking your experience should you wish.

I would advise careful consideration if you decide to step onto the path of disclosure as once you start it will be difficult to turn back. May I suggest that you sleep on any decision, maybe even for a few days and talk with those closest to you about it. And I believe you should personally inform family and friends you mention as not knowing rather than their finding out via the ‘net. They will also be effected by your decision.

Your donation is generous and doubly so given that it will be matched by your employer. From each of us as we are able…….

G

Edit: Chester found the perfect quote in both cases