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Welcome Goodluck Girl!
I do not recall anyone else on this FixHepC forum having Myasthenia Gravis but many of us HCVers happen to have various other autoimmune, or other disorders.The good news is that some people report the problems they thought due to the other chronic disorder, turned out after SVR, to have been caused by HCV.
If you take any medicines, supplements or herbal preparations for your MG, then you or your doctor will want to run those through the checker (there is a link on this site). That is to ensure all the medicines work harmoniously with the generic Harvoni.
Most likely, you’ll need more than 8 weeks generic Harvoni to be more assured of SVR
Please think seriously about this aspect.It’s a nice idea of yours to mitigate potential side effects through a lacto-ovo vegetarian diet. Other vegetarians on this site might may disagree. I did not get sides, and I do eat some meat but maybe that’s just me. Eat whatever is good for you is the way to go
Pre-treatment there is inevitably, for all of us, natural fear of what might happen. We start our treatment, and wait to see what happens, it seems to turn out well. So I feel hopeful for you
With best wishes for your treatment, Mnem *)*
Hi Bogdan16,
Timing of these medications and whether to take with food is mostly a personal thing. I would recommend that you choose a time that you think best suits you and try that. In my case I took mine as soon as I got up in the morning (easy to remember) without food, went for my morning walk to pick up the paper and milk then had breakfast about an hour after the pills. Others take with food, at midday, before bed, etc. The most important thing is to take them at the same time each day but if for some reason the chosen time causes issues then you can change it by stepping forward or back a few hours each day until you reach the new time. (the exception to above is those also taking ribavirin which is recommended to be taken with food). Here is a link to some ‘Helpful Hints’:
https://fixhepc.com/forum/helpful-hints-during-treatment.html
Regarding vitamins, the usual recommendation is to avoid most supplements during treatment. The possible exceptions are vitamins D and B12 if your levels of these are low – good levels correlated with better response under the old interferon treatments so may also be beneficial with DAAs. In my case, I tested for both and was a little low so took my doc’s advice on suitable dosage.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I took mine (Generic Harvoni – Twinvir) with beer every night after work at 6:00 pm
I’m cured despite the beer. The most important thing is to take the medication around the same time everyday, and don’t forget to take it ever! Not one fucking day! Twinvir is an exact copy of Harvoni. Don’t fuck it up. Take it at the same time every day. And be cured. If you slip up…well you might be fucked.
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Just do the right thing for you!! That is to take it every day at the same time. That is what everyone who is cured has done. Same time every day. That is the secret to these meds. How long have you been infected? I could never forget the right time. 30 years…..I took it every day, within 10 minutes of the previous day. And it worked and cured me!Hi GoodluckGirl and welcome,
Regarding MG and Harvoni, these HCV medications are generally safe for most patients but I am not a doctor so would recommend that you seek expert medical advice before commencing treatment to ensure there are no risks associated with it. Any medications you take for the MG or other reasons can be checked for interactions with Harvoni via the Liverpool University Interactions checker that Mnem suggested. Here is a direct link to it:
http://www.hep-druginteractions.org/checker
While I understand your concerns after reading about people’s experience with side effects of Harvoni, please keep in mind that the vast majority who treat do so without any problems, reach SVR and move on with their lives often with few if any posts. Those few who do experience issues or relapse will be more likely to post about their experiences and so can seem over represented on forums, etc. Both reactions are human nature and as it should be.
I won’t go into diet too much other than to recommend a healthy ‘heart smart’ type diet containing a variety of fresh fruit and vegetables, carbs and a suitable source of protein of choice but noting that strict vegan diets can be deficient in vitamin B12 although in your case the Ovo part will assist with this.
8 weeks Harvoni is only recommended for patients who meet certain criteria for treatment naive, fibrosis level and viral load. While it reduces the length and particularly the cost of treatment in that group it does still have a several percent lower SVR rate than for similar patients that treat for the full twelve weeks. For those who can afford it my recommendation would be to very seriously consider the extra four weeks to increase the odds of success.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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