Home Forums Main Forum Patient Stories Young J the dragon slayer

Viewing 15 posts - 46 through 60 (of 214 total)
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  • #4406
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    The Twinvir was part of some samples we had for RVR testing so we decided to pop young J on the RVR group and start before the routine meds arrived. One week bloods showed complete normalisation of LFTs and viral load will be to hand mid this week.


    YMMV

    #4414
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Paul,
    Thanks, I’ll tell him that!
    How are you going? are the Ribas affecting you?
    Hope you’re good.
    xo


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4415
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Doc James,

    Thanks for explaining that.

    He’s going really well, can’t wait to hear how his VL is when that comes back from Lab. :)
    Probably not clear yet, but hope the dragon’s getting a hell of a battering :P


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4442
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook
    CJ wrote:

    Hi Paul,
    Thanks, I’ll tell him that!
    How are you going? are the Ribas affecting you?
    Hope you’re good.
    xo

    I’m fine Cindi no problems with the Riba, got more energy :)

    Cheers


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #4447
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great news on the Riba, Paul – glad to hear it.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #4483
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I hate to say this , don’t want to worry others on the meds, but J has been suddenly really ill.
    He started vomiting violently at 4am & has kept going, now just bile & he is in so much pain when he does vomit.

    My local GP( talked on phone) wants me to take him to emergency at hospital but I’m worried to do this as they don’t know about generics, my GP doesn’t know he’s on them either as she objected so fiercely.

    J may just have a tummy bug, but he can’t keep anything down (water), so can’t give him his meds.
    I don’t know what to do?!


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4486
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    Based on everybody else’s experience on these meds, I highly doubt it’s the cause. More likely a flu bug. Was anybody sick when he did his animal rescue day?

    In any case, if he’s getting dehydrated you don’t want to be putting this off. And to pre-empt your GP jumping to conclusions and blaming the meds, have documentation on treatment handy, especially info on side effects.
    _______________________________

    Only click this if you have a dark sense of humor…

    Spoiler for
    Any idea where that ring-tailed possum is now?
    #4487
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi CJ,

    Don’t give J more meds till you know why he is vomiting.
    Hopefully you have made contact with Dr James by now. If not then ring fixhepc at the number above or GP2U and ask them.
    Failing that get him to hospital and tell them the exact generics he is on. His health is more important than anything else.

    G

    PS I agree with Klhilde that generics probably aren’t the issue but don’t take risks due to concern about what your doc thinks or says.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #4488
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Yes, CJ and I have spoken and a plan is in place involving blood tests and Zofran and lots of sips of fluid.

    Young J’s tummy is soft which is reassuring that it’s not appendicitis or other serious worries.


    YMMV

    #4493
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    So sorry Cindi to hear J is so sick. Glad Dr James has advised what to do. Hope it turns out to be a temporary ‘bug’. All the Best!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #4543
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Thank you for all the well wishes!
    Dr James is fantastic, he got J to have bloods done & even sent a script for Zofran to settle his tummy enough to go to blood place without vomiting!
    He kept in touch with me & was the most diligent doc I’ve ever come across, wish there were more like him!

    He immediately realised that J had caught a gastro bug probably off my husband who’s just returned from Thailand last week sick as a dog with Influenza A, Rhinovirus AND Entrerovirus :ohmy: ( we had just got his bloods back from his doc)

    It has nothing at all to do with the generics. But he couldn’t have his dose yesterday.
    Today he is a lot better & able to keep down some food so he’s back on meds.

    It’s frightening when I can’t take him to a local GP for advice because they are all so COMPLETELY anti- Generics. :(

    Thank God for Doc James :)


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4544
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi klhilde,

    You asked about the ring tailed possum J saved while working last week at the rescue animal place, it evidently went to a WIRES carer after a visit to a vet, so all good. :)

    The funny thing is that a couple days ago I found one here at my place , it had made a nest in one of my cat carry box out the back veranda, it was all snug in there with it’s branches & a little moe hair rug!! with it’s tiny sweet face pearing out at me!

    I had to move it so it wouldn’t get discovered by my cat but let it keep its luxurious new home, I just moved it ( in the carrier) down the back under cover in an old tree house.it’s his carrier/home now :P
    I can’t work out how it got into the veranda & found this nice little home as it’s all enclosed because I don’t let my cat out to kill wild life, guess it was so small it squeezed through the lattice.
    Anyway, he’s a lucky little possum. :)

    Thanks for your help with J.


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4545
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Cindi,

    Thanks for posting the update. There is a collective sigh of relief although we knew he was in safe hands (yours and Dr James).
    Hope Young J is feeling a little better today (and you got some sleep!)

    Coral x

    #4546
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Coral,
    yes at last I got some sleep!!
    & yes he’s much better.
    I was so worried it might have been the orals, that would have been disastrous.
    But it’s NOT, so all’s good that ends well :)


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4551
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Cindi,

    So glad to hear J is on the road to recovery.

    G


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

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