Young J the dragon slayer

This topic has 213 replies, 35 voices, and was last updated 8 years, 5 months ago by CJ.

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11 December 2015 at 8:31 pm #5984
Dr James
- Topics: 264
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- Total: 2,232
- Guardian Angel
@fixhepc
Yay So Happy for you both!! I agree, Good Mother, I know what I would do if it was my dear son and you overcame fears and doubts, did the best thing. Super Mom too.

YMMV
12 December 2015 at 1:49 am #6004
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Hi CJ

I have just read your posts from beginning to end and have to say a big thank you!!

Thank you for sharing your story and doing it in such a brilliant way that shows the human faces and many shades behind HCV.

You have shown what can be achieved when a mother’s love, drive and pro action is added to a doctor’s crusade to save lives and help people.

Hats off and a massive cheer to you and James Freeman for giving young J the best future possible and for removing the dark cloud of HCV… Bright days ahead for you and young J!

Well done and a huge Hip hip hooray from me !!!
Lots of love and all the best to you.
Xo

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
12 December 2015 at 2:15 am #6009
Chester
- Topics: 7
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- Total: 206
- Guardian Angel
@chester
Who’s good with photoshop? We need a picture of the doc wearing his underpants outside his tights. And a cape. Can’t forget the cape.
12 December 2015 at 3:56 am #6024
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
I’m overwhelmed with all the happy & kind words from everyone, THANKYOU!!

Oh Chester, you crack me up

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
12 December 2015 at 8:03 am #6045
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
Oh Cindi that is such AWESOME news for J and you, of course. Yes, love his reaction, needed a moment to process..

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
16 December 2015 at 4:51 am #6408
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Hi all,

Just checking in that J is still doing well.

Last day of school here then holidays!

Looks like we’ll be having a happy Christmas here
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
16 December 2015 at 5:43 am #6411
Chester
- Topics: 7
- Replies: 199
- Total: 206
- Guardian Angel
@chester
Although he may not understand the full implications of it for some years, best 16th birthday present EVAR!
16 December 2015 at 5:57 am #6414
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Oh yeah Chester!!

It WILL be , wont it!

He will finish just before his 16th birthday in Feb I think?
OH feb. 2nd his his finish date, 2 wks before his birthday, so we’ll have the VL back too…

One day he’ll realise.
think he’s pretty happy now though, he just seems kind of..”nicer”…. hard to explain.

Not as sulky, as lots of 15 year old are.
Which is so good to see.

x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
16 December 2015 at 8:01 am #6418
crazy8
- Topics: 0
- Replies: 49
- Total: 49
- Recovery Champion
@crazy8
Congrats to you both!

GT 3, F3, Contracted 1993 Tx Naive
V/L 1,267,000 AST 67 ALT 65 6/10/15
commence Sof/Dac (Mesochem) 6/11/15
AST ALT normal 24/11 *
*V/L UNDETECTED 24/11*
16 December 2015 at 3:16 pm #6444
Archer
- Topics: 9
- Replies: 61
- Total: 70
- Recovery Champion
@archer
Cindi; you already know how I feel about J finally clearing the HCV – but I want to add to the celebration here – J is indeed, fortunate to have such a loving mother and compassionate doctor – one day he may more fully understand. For now it is his time to just enjoy being fifteen and embrace life, without the invisible cloud of an illness.

I am delighted for you that J has achieved this freedom you have so long desired..All the best, Girl. Here comes the sun

Archer xx
17 December 2015 at 12:27 pm #6534
Jimmy6429
- Topics: 0
- Replies: 52
- Total: 52
- Recovery Champion
@jimmy6429
I tear up every time time I see those three letters UND, in J’s case its overwhelming, so happy for you both,
jim

3 years cured, Sof/Dac, thanks Doc Freeman, hepc only a distant memory, go for it ppl
18 December 2015 at 12:07 pm #6617
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Thanks Jimmy, that’s realy nice of you

Thanks Archer, yeah, “here comes the sun, it’s alllllright..”.
xo

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
31 December 2015 at 9:46 am #7618
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
J is doing so well that he’s going to a party tonight!!
….his first real one. hmy:
I’m a bit worried, he’s not!

His tx is still going without a hitch, he is such a happy kid now.

He’s going on for 8 wks in now, I think.
Not that long to go.

His skin has miraculously got much clearer, he’s got more energy now so actually does stuff other than computer games.
He smiles & laughs a lot now & actually talks quite a bit!

Life’s good

Thanks to Doc James & the people here & the GP4U crowd.
It’s going to be a great 2016, hopefully for every one here.
xo

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
31 December 2015 at 9:56 am #7624
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
Thats fantastic news Cindi, it will be interesting over the next few years to hear what he has to say as a kid growing up with Hep c and being cleared at 15. It was brave decision you made that seems to have paid off.

cheers mate

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
31 December 2015 at 10:05 am #7626
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Thanks for the update, Cindi!

Just great to hear that J is doing so well. It will make a huge difference to his life to be able to clear the virus at his age.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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