Hi
I’m tired sometimes and not other times
My threshold is very high however I have developed an iron skin. If I find myself dozing off too much I get outside and get active and soak up some fresh air. I may sound glib but I am not meaning to be I have had an extremely rough ride before these meds and I find that these are bringing all over excellent results on tx which psychologically override the intermittent fatigue, such as I have regained weight, my skin hair and nails are healthy, my hopefulness quotient is high, I can actually see a future worth investing in again. These factors plus I was much more fatigued post peginf for three years have countered the sporadic fatigue of my last few weeks of tx. When I do need a day in bed I just take it. That’s about one day a week since week 8.
I’m much happier with that than every day sleeping half the day for more than two years which was how my life was rolling before these meds.
I hope you get your tiredness sorted and it’s nothing serious but just a regular sx like LG, Ken and I mentioned xxx
Ariel
Ps I always check in with the doc if I am concerned about any sx

Welcome Beaches,

Pleasure to meet another water baby. I relate to the addiction of swimming, I was an 80 lap a day girl for many years. Now I surf just constantly, yes the ocean is the best healer and I love how it brings you into the moment, no thoughts for anything else but the sea, and the rhythms of the body in it.

I surf on tx, in fact I surfed yesterday…The tx regime seems to have varying sx during it’s course as Gaj pointed out there is a euphoria initially; in my case the first month of my 12 weeks sof/led I had migraine despite constant hydration, so took it easy but yes still surfed when I felt up for it, and I do TM, the second four weeks were easy, some tummy grumbles which are best sorted with water sport defs, and now at almost week 10 have insomnia but am surfing around three times a week….fatigue is starting on and off, I just slept all Saturday daytime,t’was a good catch up day.

I have done peginf/riba which is disgustingly debilitating so this tx is very easy in relation to that.
I think it is all relative, and all about mindset, and all about the individual. You are used to pushing yourself to sport and yoga and so am I with surfing and TM. I just do it.

One thing I note is a heightened sense of speed, I get it driving too, not particularly pleasant, it can create confusion so I drive around twenty Kms/hr lower than the recommended, much to the disgust of other motorists.

Re sport, I am very aware not to go too crazy for the adrenaline I usually crave. Choosing smaller days, although yesterday I paddled a reasonably solid swell, I will attach pix the magical beauty of my waves, I am at near end of treatment and find I am loosening up my self protective streak.

Re sides being very individual, I also had some BP issues during the middle section of tx, Pat1 has started a good thread about that sx, not everyone gets this but I was surprised to find out mid tx, and was helped by Dr J, and it is sorted…so that is an example of the individual nature of sx people report. In the forum here you can search issues and also check in Experts Corner for side effects etc. however, overall I think this tx is very mild and I just go with the flow mermaid style.

I hope this info about my lifestyle helps with your query, but the main thing is good luck for your tx, keep chatting, this is a very supportive and useful forum

Splashes from Ariel

Ho Chejai just jumping on LGs thread cos I asked about your extending on mine and now read the answer
Sounds like you are sorted for a safe outcome xxx
A few people extend
Wishing you all the best and LG too
The two extenders! Xxx
Ariel

I’m glad you sourced tx here Gaj
I’m sorry to hear about the HCC and hope things are much more straightforward from herein
I understand the immune system crash but escaped the HCC rather, I developed other secondary nasties all of which are gone or watched
Thank gawd for this magic stuff. I’m off topic too but following your story.
Noticed James posted re shelf life in a seperate thread

Hey Jill yes the hospital was a loooong wait for me I wrote up on my thread it’s called “Ariel takes the plunge”
Re giving out scripts I watched patients being pushed back to later appointments as I sat for a good hour in clinic also no obvious people’s on tx. I sat waiting for the nurse to “find a doctor for me” in a room for a good while. That went well but to note, the doctors who is usually there has gone overseas at this time hmmmm. I was also made aware not many people wear on tx and well I bought mine so I guess not many are available on PBS who knows how triage works!
I was told same verbally a week earlier as a response to my comment on the phone to receptionist “I bet you’re flat out now its March 1” no she said its very expensive and no we are not etc …..
I basically started tx before I told them and presented on tx “assuming” I would be seen after an initial phone call to the receptionist to say same went pear shaped back a few months ago, like you I wasn’t sure if a public hospital would see me using generics. The first consult on generics was about a 1/10 and the second about a 2/10 lol.
Saw a different gastro on Friday and she was lovely but clearly relieved I was UND. I am sure they are getting a lot of agro people wanting meds because I asked straight up. I’m so glad I ignored the gift wrapped speech by Minister Ley and after the knock back in Dec 1 ordered my script and meds. By the time her announcement was ready I was on tx. It irks me that I know some very unwell people who believe they will be treated but no nothing yet.
I agree about costing us time waiting around with the virus it’s like holding a bomb with the fuse lit but the fuse is of unknown length. The virus doesn’t just enter your body it enters every part of life. I’m so glad I landed here.
My bloods and all are being done by my GP and I am just using the hospital so I have the “specialist” contact as the original script came from interstate, and we have to have a specialist.
Well lovely to talk re hospitals and tx and the rollout
Almost into week 10 for me and hopeful for a successful EOT and SVR. As a peginf relapser I will do a two week post tx bloods just to watch for any signs of hidden resistance that hasn’t shown but hoping for the best of course. Been UND since around day 32 on these but of course time will always tell.
Have a great day thanks for touching base
Hoping your tx is chugging along and you have the extra nukes sorted Jill
Xxx Ariel

Hi there hun
Thanks for posting
I’m sure that’s the best thing damned nuisance but maybe that bug you had messed things up mid tx and now you have cleared the infection your good to go for round two
I’m not going anywhere when I finish my EOT so I will still be supporting you on from the next round.
I’m glad you’re playing it super safe we just have to do what it takes yeah?
Keep posting because we will all be backing you on this news
You got a good liver report that’s another positive too big relief.
Are you adding six or twelve weeks? Xxx
You’re in good hands that’s the best thing too. We are all really the first global group after trials finished so I guess it’s going to be a while before any really concrete data is available on tx duration, EOT outcomes etc on a large scale
Keep strong xxxxxx
Ariel