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Debs wrote:
Morning LG !
Glad it’s going well –
Same here!
But am going ask a couple of Qs somewhere else shortly,Just wondering, did you have the tinnitus before?
Hi Debs Hi LG my ears have been screaming since peg/inf so I am interested in this topic ty ladies xx
Your writing touched me too Archer I am sorry for your loss and relate to some of your feelings.
I must admit I was scared of any tx after my last experience too. Thankyou for saying it out loud. Yes Pat1 I agree it’s good to take a break sometimes to just chill this is overwhelming I think for us all at times.
Given this feeling, I have deactivated my Facebook for the duration of this tx and golly gosh what a release thats been l was sick to death of people liking pictures of waves and surf and even me with stuck on hair (I lost 2/3rds of my hair to peg/inf) and really just needed to chill away from the mad world of social media.
I like this forum. It’s real. Aren’t we fortunate to be able to share not just the quantitative and qualitative stuff but also some of our feelings in good companyLove her Joni is divine an angel of song
Too many tunes to number off
Here’s a gentle Bernard Fanning number that’s helped me a lot since diagnosis
Indeed! Haha see I am still working out how to peel that dang banana
Meanwhile my playlist is stuck on repeat
XI am so behind with the banana peel tech it’s cracking me up! But I can do the duck and the flower
and of course the lurve
Here’s to few sx and a great tx
Children of the Revolution
I’m posting that one on our psuedo radio station
Good to hear all going well Debs Chester LG 2b And all
That banana has me mashedChanging speed here…here’s to an ol Hepper, Mr Tyler
this was my personal “theme song” while on peg/inf/riba….we all probs know Steve cleared this little nasty a few tears back on the old tx….very fortunate but I bet he made sure he had some pretty hot round the clock nurses to get through that roller coaster 
The words of this are just so damned fine…even if you are not an Aerosmith fan I just love the lyric, and this time, with this brilliant tx I relate to this even more. Very uplifting.
All the best Psavic for your tx, here is to a smooth ride and for better health to you, wishing you good luck from a fellow tx-er Day 3 sof/led here,, lots of new friends
Hi Chejai, I am on sof/led 12 weeks, how about you? I feel really good today, just took my medicine with my gallon glasses of H2O
Went to see my GP this morning he happy and we both had a big grin slapped on our faces…five years is way tooo long to be basically in bed half the week ergh! It is too long to not be able to work full time too! Cannot wait to regain my independence…I mentioned my little goals to him, the first one about staying awake for a whole week, the next about going out at night…with my ultimate being able to run my business. No timeline…not setting myself up for failure but just looking forward now.
London Girl and Zhuk will enjoy these skinny experiences from my morning, so here a couple of anecdotes: I was greeted by the local service station lady loudly “OMG YOU have lost SO MUCH WEIGHT” (followed by lots of complains about her supposed ‘overweightness’ lol I suggested she could be my lipo donor…run a line from her so called ‘problem areas’ straight into my skinny butt. Then in the Supermarket I was freeeeeeezing, and casually mentioned whilst grazing the fresh produce to another customer how cold it was in the supermarket ..haha yes the reply “well you are a bag of bones no wonder”I feel like singing a lot.
On a serious note my GP is really pleased I have taken this step. Tomorrow I visit the big Public Hospital where I have been bench sitting like so many people waiting for a trial that never came…That could be interesting because I have already started tx without them and had my bloods done without them etc…and my script, well it came from another State and another Specialist. It doesn’t really matter anyway how they take this tx decision because I already have my path requests for the 4 week checks etc.
Well that is big rave on from this happy little mermaid…I had a crash last night but generally smelling the roses.Have a great Day one Chejai, from little missy day 2 here
Thanks for sharing your story All the best Stew, wishing you a great result and a smooth treatment I am Day 2 here
Lots of us just starting out there is so much great support here have a good day Hi LG hope you’re going well I am already hungry on waking this stuff is potent! So it’s only Day 2 here a few days behind you babe
I have had ringing screeching since peg/inf the GP even referred me to an Ear specialist but I haven’t bothered I figured surfing and playing strings well my left ear is surely going to be whacked out one day anyhow!! There’s always a lot of fluid behind my eardrum apparently, maybe getting well overall will also sort this little thing out
Ve Vill See Mwahahaaaha!
Sending love looking forward to your updates
Ariel
