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Yeah it’s shameful how Hep C sufferers are being treated in the US. Thank god for generic solutions.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!I have asked Patrick whose Taj Mahal photo appears on both sites if he has given permission for the pic to be used on the harvoni page. Will post any reply here.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Yes as Debs says, you definitely need to know your Genotype.
About DVA (Veterans Affairs) and Medicare, these are for Australians only, so you just leave them blank.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Well you are in the right place for getting a cure, where do you live, in general terms?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Oh your GP will need to refer you to Dr Wong, that’s the way to see specialists here apparently. The fact that you do not live in his area (the Hutt) might be problematic, I’m not sure.
If you find you cannot get a NZ script, perhaps consider flying to Australia. An Australian script is fine with carried medicine, not so with an import, unless the FixHepC trial status makes it possible. For the price of the airfare you would avoid a lot of worry/possible seizure of the meds. That is what I did, and I was then able to approach doctors for monitoring. The first specialist I approached, a colleague of Jeff Wong, agreed.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi Norman, I am technically under the care of Dr Jeffrey Wong at Hutt Hospital and of course I used generics.
His nurse told me his patients need to live in his area to be under his care so this might be a barrier, but he is aware of generics and knows about FixHepC. They were handling about 6 generic patients last time I met the nurse.
Maybe arrange a meeting with him and see what he says? He’s a very friendly chap.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi Norman, yes please tell us where you are in general terms. Also, to whom have you sent the money? Just trying to work out how far you have progressed in buying generics.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!There are others here who can advise you directly but this thread is worth reading for a start: http://fixhepc.com/forum/patient-stories/854-has-anyone-used-the-buyers-club-from-the-uk.html#13788
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Congratulations to all involved in the study, which is sure to have a big impact. Now anyone trying to get a doctor to support a prescription or monitoring can point to these results. And it will be cited again and again in price negotiations. Well done!
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!I think Prof Gane’s comments about dodgy Ledipasvir are political, so that he is seen as super cautious about generics at the same time as he is supportive of FixHepC. The NZ Hepatitis Foundation facebook page (Prof Gane is on the board) has positive stories about FixHepC all over it.
He has raised this dodgy Ledipasvir theory in three interviews I am aware of. At first we were warned about generics from China and Bangladesh, now just Bangladesh.
If this was occurring – people taking ineffective Led – we would know about it by now. And of course the Prof must be aware that authentic Chinese APIs get the job done.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!The APIs in Twinvir are from China; this from searching `Twinvir Ledipasvir’ in the forum. So, Dr Gane was maybe talking about another Bangladesh drug maker?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Bangladesh generics attacked again – does anyone know where the Ledipasvir in Twinvir is made?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Welcome Fretboard, there is a lot of expertise here so fire away with any questions about taking your powder, but you probably have already researched that part.
That’s a keen price from Mesochem, it has come way down from last year. And great to hear it sailed through customs.
This forum is run by the GP2U people out of Tasmania, but thanks for posting the links.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi Dac, I remember you are in Vietnam. Why can you not just ask her what she meant?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi Kimko, I see from this link that it would be much easier to import generic meds with the support of a doctor or pharmacist:
http://www.fedex.com/ca_english/international/regulatorynews/prescriptionreminder.htmlMaybe FixHepC can get a supply to you or put you on to a friendly Canadian doctor, otherwise Beijing Mesochem seems to be the big trusted name in API deliveries.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay! -
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