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Viewing 15 posts - 61 through 75 (of 112 total)
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  • in reply to: Otago Daily times New Zealand #8905
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Yes, Tina, a ban would suit this poster. Abusing a moderator should not be tolerated.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Hep C and Me #8671
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Hi Stew, great to hear you have started treatment. Are you being supervised by your GP during treatment as these symptoms sound pretty severe?


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Otago Daily times New Zealand #8667
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Geat letter Hazel, what is the URL for the Hep Foundation i/v with Tina?


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: has your hep dr rejected the medicine? #8362
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    So your specialist supports generics, wrote you a script to go through Greg J, but dId not recognise the drugs obtained through Buyers Club (Twinvir?).
    The specialist now plans to support your treatment with branded Harvoni, which I can’t see as a bad outcome. I am sure someone will buy the generics off you.
    Which state do you live in, by the way? I am curious why the specialist trusted Greg J so much but did not know about the FixHepC connection and the other generics.

    .


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Double genotype story #7505
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    There is discussion of Bull in the forum under `Pharma’s market – Hetero…’


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Switching tx from sof+led to sof+dac – thoughts? #7485
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    I support Archer’s view that we should all put our basic treatment info as a signature in our profiles so we can comment on particular cases. Admittedly writing a signature is a bit unwieldy, but this will get you started: click on your name at the top of the page, then sign in again as demanded, enter signature details, then sign in again if prompted (I think it is twice?).
    Now everyone will know your genotype, previous treatment etc without having to go back into old posts.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Otago Daily times New Zealand #7330
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Great story about Hazel and good on her for letting the newspaper tell it. Reporter gets full marks for accuracy too, as far as I can see. All those kiwi fence sitters need to learn from Hazel’s example.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Background info on Sussan Ley’s announcement #7068
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    New Zealanders will need generics for a while yet, an estimated 50,000 of us.I imagine the A$37 deal for Aussies will stir interest over here.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Background info on Sussan Ley’s announcement #7049
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Yes Buyers Club probably influenced the deal one way or another and it certainly deserves a big role in getting generic meds where they are still needed.
    The Australian deal has surprised most of us and we are yet to see how well it rolls out, but Gilead has slashed its very obscene price and agreed to cover the over-cap patients, if any. I can’t downrate them morally from what I know of this deal.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Background info on Sussan Ley’s announcement #6903
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    About an avalanche of patients, I dunno, I had expected thousands to buy through Buyers Club back in October but it was a relative trickle of tens of people, although it has grown to thousands world wide now probably, still a fairly low response. There seem to be many people who know they have Hep C but won’t take action, even if it was free and in front of them. Many have been advised to wait. Members of this forum are the early movers.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Background info on Sussan Ley’s announcement #6899
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Yes Seymour, source please,even a broad description would do.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Australian PBS Listing – Follow the Money #6856
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    My 2c worth on why the numbers seem nonsense: Cairns Dr Darren Russell told me on treatment w/o borders facebook site that he and GPs he has spoken to around the country are preparing to write scripts for Hep C patients which can be filled after March 1. He says there has been no official mention of triage and there must have been a significant Cap deal struck which throws the `risk’ of budget blowout back to big pharma – I am paraphrasing but it is the gist – soooo, if the $121m for 2015/16 is the spend limit, and whatever per dose price has been struck, the drug companies seem to have a lot of underwriting to do. Do they care about upsetting price deals made in the US and Europe? No, each market gets its own deal.
    And what has Australia done to make it such a special case deserving of big pharma generosity? I think becoming a world centre for trusted generic sourcing has something to do with it. That and other promising drugs under development.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Australian PBS listing in March! #6798
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    I refer you to Darren Russell’s comments about the cap system on treatment w/o borders facebook page; it seems we cannot look at A$1b and divide by likely drug cost to estimate numbers treated.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: Australian PBS listing in March! #6783
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    People at Hepatitis C Treatment w/o Borders are taking starkly different views on the announcement, from a spin exercise to cures for all as Sussan Ley says. Greg J is not buying it at all…


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    in reply to: New member Intro #5661
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    The other doctors don’t do Hep C scripts as far as I know.


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

Viewing 15 posts - 61 through 75 (of 112 total)