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Well done Tim, it’s great to know Twinvir can get in past Medsafe. Did the script specify Twinvir or was it just Sof/Led?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Well done Sean, wishing you a full cure. It could have been quite different without the obscene pricing. I am in NZ and even if it was say, $10,000 for a 90 day supply I don’t think we would need buyers clubs. But at $90,000, we are going to extreme efforts.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!No it hasn’t changed, I paid US$19XX for sof/led on here a few weeks back.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi, so you are looking for treatment management, ie you already have a script? If so, someone on Greg Jefferys’ blog spoke highly of the Prince of Wales on October 15:
“Hi Greg,
I have had great results after only 8 days of using the meds.
All my liver functions are now back to normal.
I have not done the viral load yet, next week I’m due for another blood test so might ask the nurse to include that test.
St. Vincent’s Hospital (Sydney) have been really horrible so I moved to Prince of Wales under the care of the Head Nurse who is really wonderful. She mentioned she had been in contact with you…..”
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!I have not done business with Parvez, who is a forum member, but he is mentioned under `Patients’ Stories/Incepta’s Twinvir,’ – he is also listed here: http://killthedragon.freeforums.net/
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!The Kingswood Pharmacy in Sydney is another supplier and you need a prescription, I suggest you set up a skype consultation with Dr Freeman at GP2U.com.au – Bookings are under `Learn’ at the top. It helps if you already know your Hep C genotype.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Well things might have changed in the past few weeks but at the time there was one address for both in Battery Point. Go to the side of the building and up the stairs.
I was able to book my flight 2 days in advance. I recommend the Fountainside Hotel quite nearby but be aware it was hard for me to extend a couple of days there, I had to move to the Grand Chancellor but I got a good online deal there. It is also nearby.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Please see Getting treated/ Import regulations at the top of the browser; with an unaccompanied import, if it is checked they will want to see a NZ script and/or speak to your specialist. If you carry it back from Hobart, the Australian script is all you need and there is no requirement to declare prescription meds.
The flight to Hobart took me half a day with a Melbourne connection. At that time, GP2U said they could not mail it to me but I was leaning toward personal pickup anyway.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Congratulations Gary, that’s fabulous news! Hopefully it will get easier for people to get the scripts and care they need. I’m sure you are right not to wait for some other solution.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!A nurse told me today of other successful imports of Mesochem APIs to NZ; one was stopped at the border and they called the specialist who had prescribed it, then let it through.
She said the teams in the liver clinics in the main centre hospitals were generally supportive of any genuine treatment and their specialists were worth a try, although in some cases you need to live within their zone. I don’t know whether the specialist would expect to manage your treatment if they wrote a script for someone.
She had heard of Greg Jefferys from patients.
She said Daclatasvir was prescribable in NZ despite it not appearing on the Medsafe online list.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Well I wish good outcomes for all but a script for Daclatasvir – not yet approved in NZ as a prescription medicine it seems – sounds like a tall order, although of course possible. Maybe people getting daclatasvir APIs here have just taken a chance without a NZ script?
http://www.medsafe.govt.nz/consumers/miet/importmedicines.asp
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Dr Freeman is a GP but no, you don’t need to see Dr Dudgeon first. I don’t know why there are no spots for Dr Freeman. He is the only one there writing Hep C scripts as far as I know. You could contact their executive assistant Rusty Dickey via skype – he’s Rusty @GP2U – Or their phone number will be on here somewhere.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Sofosbuvir/Ledipasvir are prescription medicines on the Medsafe database, I see Daclatasvir does not show up. Were you maybe asking the specialist to prescribe something branded like Twinvir/Hepcinat?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!To see a gastroenterology specialist in NZ, you need to be referred by a GP. I chose my specialist by googling hep C specialists in my area and then asked my GP for a referral. The same GP had earlier reacted with horror when I said I needed a script to support an import, and started talking about fake Viagra. These drugs are new in NZ and even the specialist had never dealt with them. I was able to reassure him about the drugs’ supply chain by talking about the Hobart operation and referring to this site.
In the end, his letter of support read: “Mr XXX is my patient for whom I have recommended treatment with Sofosbuvir 400mgs daily and Ledipasvir 90mgs daily for a period of three months. If you have any questions, please feel free to ring me.”
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!Hi Gary,
I carried my meds back and I already had a prescription from Dr Freeman (through GP2U via a skype appointment) when I approached my specialist for a back-up letter of support, which he gave me. As I know now, this was not necessary for personal carriage as the Australian script is sufficient – courier/mail imports do need a NZ script according to Medsafe.
I don’t think my specialist would be ready to support imports via mail/courier if that is what you intend and I don’t want to upset him with such a referral.
I chose the specialist through google and checking he was not attached to the hep c foundation. I don’t know your situation, but are the meds available thru Buyers Club here or the Sydney pharmacy group mentioned on Greg Jefferys’ site not suitable for you? And surely you could fly there to pick them up, bypassing the need for a NZ script? Once you have the meds, I am sure you could get a specialist to manage treatment. And with Buyers Club, much of the drugs’ background/supply chain can be seen online.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay! -
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