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  • in reply to: Lactose Intolerance / E110 #11578
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Wow, DT that list of sx re E110 is pretty nasty! Although, I have to say reading any list of ‘possible side effects’ for products is always scary, they have to include all possibilities and it does depend on the amount you’re ingesting.
    Since my meds are white, I assume no E110 there (not Harvoni) but I think I read somewhere (Dr James) listed ingredients of meds from Buyers Club and I think Lactose is there. While many of my family members are Lactose Intolerant, I can have a very small amount before I’m affected, so meds would be very minimal.


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Side Effects #11575
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Yes, agree Emma, it’s one thing to have these amaaaaazing lucid dreams -thank you very much :woohoo:
    but been alone so long and don’t plan to change that. My son is my priority, maybe when he grows up :P


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #11574
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    I know a medical herbalist with scientific degrees etc etc They say you shouldn’t take Probiotics ‘willy nilly’ and you have to get the right ones, balance them correctly and for you as an individual and add with other things. They also do the poop test and send it to Germany for a thorough diagnostic. Think I’m going to go for this EOT. The Germans are so up on bowel and digestive function, apparently some even having ‘see trough loos’ so you can keep a eye on your poop!

    LG, I certainly agree not taking things “willy nilly”, I take a specific kind for IBS and my son also has a specific kind. I know they work, I know the results happen quickly, I know the difference when I have run out. So, by all means get your scientist friend to advise but given the problems during Tx I’d suggest doing it now and not at the EOT. That’s right we need ‘probiotics and prebiotics’ – different forms and finding what works for you. If you have someone to do that for you then take the opportunity.

    Wow, the Germans – I know people call them ‘anal’ but that is literal!! “See-through loos” :lol:
    Apparently the Japanese have quite an obsession with their ‘loos’ and digestion etc.

    Certainly true if our intestines are toxic so is the rest of us. It’s well known, the cognitive impairment that occurs in severe cirrhotics is due to their liver not detoxifying everything as it should and sending this into the small intestine where the toxins get absorbed and sent to the brain.

    We might be on opposite sides of the world LG but I’m also very blocked up in sinuses, phlegm and irritated dry cough, headache, dizzy spells – I thought it was the weather but you’ve got me thinking now.
    I have had a few brief episodes of this ‘fluey’ feeling so far.

    “Well here’s a huge hug Chejai
    We are dealing with purging a lot of grief and real stuff and yep being dumped by family is a sharp knife but I still believe family doesn’t need to be blood (mine don’t want anything to do with my blood either lol) jokes aside, yep it’s important to just be warts and all here. I’m stoked we are here together
    The support here is real isn’t it
    All the stories we share from our silence are so healing
    Big love Chejai
    I know that the feeling of being able to talk without fear is a release
    Love from Ariel”

    Thanks Ariel! Yes, purging indeed, even this ‘gunk’ from throat and sinuses is symbolic as is the GI stuff we’re referring to.
    LG, I really hope you’re feeling better soon #love

    Thanks again, Love to you all
    :) #love #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Double genotype story #11392
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Sounds like you’re going well Geno 1b4. The extra energy we experience in the early weeks of Tx means we tend to do more than usual, so maybe your pain in upper back right side is part of this. I’m assuming you mean the scapula – shoulder blade region? Neck and shoulder muscles, especially if you’re right-handed, maybe sore from a workout. But if you have neck problems, the cervical vertebrae can pinch nerves that radiate pain into the scapula, shoulder, and/or down the arm into the hand and fingers.
    Do you have a heat pack to apply? Maybe some ‘Deep Heat’ to rub in; ‘Voltaren Emulgel’ is good for local inflammation too; good old Tiger Balm (although they use petrochemicals and mineral oils as base) has a very soothing essential oil blend.

    Body aches and pains are commonly reported here, so having some therapeutic items for back-up will help.

    There is a section on contra-indicated medicines, herbs, supplements on here under Main Forum>Experts Corner. Some people don’t like to discuss their GI issues :blush: but many are having problems like constipation, loose stools etc. So, diet needs to be modified as you notice things, pay attention to anything you’re eating that leaves you bloated, tired afterwards (common sign of gluten ‘crash’ intolerance) and change in stools. Don’t eat too much meat, especially red, as it takes a lot of work for your liver to break down. Heavy meals overall probably not a good thing, stick with lighter meals and healthy snacks. Remember your liver is in a Battle with the DAA army against the HCV army – so it’s working hard as it is.
    If you’re having the sweats and dry mouth keep up your water intake, if you’re having severe sweats (like I have) you need electrolytes too, also if you have episodes of diarrhoea.

    Your blood results look good :cheer: wish you well on your journey. #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #11390
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai
    magpie wrote:

    London girl your tests are great, so happy for you and thankyou for the post.
    Sharing helps everyone.
    I find walking is the best thing for back pain and sadness.
    If you get an opportunity watch a movie called The Way. Its about the Camino de Santiago in Spain. My daughter is walking it in June so I was interested in the movie. Might even consider walking it myself!

    Great Movie Magpie, it was very profound – although some could watch it and not take in the soul-searching aspects – it was such a beautiful and honourable journey the father took. It made me wish I could go and do it! It was reminiscent of the movie, ‘Eat, Pray, Love,’ taking a physical journey in order to make a spiritual one.

    Congrats LG on your latest blood results :cheer:
    Well LG, I could quote you again and Debs and Ariel – OMG! You described EXACTLY how I’m feeling. Hey, if ever you want to discuss GI probs (gotta love autocorrect trying to put the word ‘probe’ after GI :P ) re your ‘stools’ I’m not too embarrassed :lol:
    Alternating diarrhoea, constipation and pale ‘floating’ stools :ohmy:
    I take Inner Health Probiotics daily to help with these issues. Constipation – I eat extra fibre e.g. fruit, greens; if that fails I take ‘Super Greens’, tablets – they contain Spirulina, Chlorella, Barley Grass and Wheat Grass – also comes in powder forms to mix in smoothies etc. Great source of protein and heaps of vitamins, excellent for vegans. I’m not taking it daily, only for constipation, 3-4 tablets and plenty of water.

    Of course you could try the old remedy of drinking Epsom Salts in water but only if you can control the gag reflex! <img style=ick:' />
    I have continued with the Magnesium through Tx because the lower back pain, muscle spasms, leg cramps at night etc., are all improved by taking it. When I’ve not had enough money and gone without I really notice these symptoms hit back.

    As you say, travelling about and eating out can mess you up, so try and take probiotics with you. Many have to be kept in the fridge but there are varieties for travelling.

    I’m also finding walking is very therapeutic lately. I’ve noticed I’m able to walk 2x p/d now, whereas previously I was in so much pain and fatigue in the am, I couldn’t do a walk.
    I had a massive meltdown yesterday and was stressed out and crying – haven’t been this bad for awhile, all my emotional stuff catching up with me – so, I stopped what I was doing and took my son and our dog off. Even though it was wild weather, strong gusty winds and spitting rain, we’ve had storms on and off for 1 1/2 weeks now.

    Wow, it was so cleansing and emotionally I was a lot calmer when I got back. Totally weird because I HATE the Wind – it usually makes me very cranky and irritable.

    Yes, things are changing within…a lot of soul-searching, reassessing my life, reviewing regrets, trying to just ‘let shit go’! It is hard there’s a lot to forgive and I’m really beating myself up with a lot of ‘what ifs.’
    It is a grieving process, finally having a chance to be virus free and ‘healed’ and looking at how its affected my life – 35 years having this. I feel so very isolated, abandoned – my family and friends back ‘home’, haven’t contacted me to see how I’m doing – and very alone on this journey. It still amazes me how no-one wants to talk about this ‘virus’ and they’d rather ignore me than confront it.

    As I’ve said before I couldn’t do this without the support and opportunity to vent anything and everything here and not ‘feel’ judged.
    Thank you all and I feel so much better knowing others are feeling the same – although I don’t mean I’m glad others are feeling alone and depressed etc :ohmy:
    Lots of #love #love to you all :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Emilio’s Place #11385
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations Emilio on your EOT. Wishing you all the best for your post-Tx bloods. :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: isaing4 Twinvir story #11310
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Fantastic news for you isaing4 :woohoo: :woohoo:
    I can see you are over the moon – hope the rest of Tx goes as well #love #flower :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: BLOOD TRANSFUSION #11309
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Welcome Michael and thanks for sharing your story. This so true regarding the stigma around this virus and even in 2016, the general public perception is still negative and misled.
    My mother and brother live in another state and he, like me, has HCV, G3a, for 35+ years, but he has cirrhosis and is waiting to see the Specialist after March to go on Tx. I went through GP2U with Dr James Freeman and started Sof/Dac last month – 16 weeks Tx – I’m in week 4.
    She hasn’t really told many people and my brother won’t tell anyone because she was telling me how negative everyone was being – ‘he’s a drug addict and deserves it! Why should the Gov pay for people with this virus to get Tx when they could spend the money on more ‘important’ illnesses!’ It really is outrageous and no different to people’s reactions regarding HIV – people deserved it for having ‘that kind of sex’ – no concern for the women and babies innocently contracting it just like HCV.

    I’m not a big FB fan but since I live further away I try to maintain contact with people where I grew up and I hadn’t spoken about having HCV but posted accidentally one day a petition to the Gov re the new DAA’s and PBS, it wasn’t long after I posted that I’d started Tx for a ‘chronic condition.’ It was very interesting to see who responded and what was said. Put it this way, you learn very quickly who your real ‘friends’ are and I’ve not posted since. I now understand my brother’s reticence and why he feels so very guarded.
    I have no close friends here and therefore no-one knows what I’m on Tx for.

    I wish you all the best in starting Treatment and to be on your own personal journey towards new health and healing :) #flower
    This site is great for info, guidance and support in a very non-judgemental atmosphere.


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: My parcel of Magic Pills has arrived!! #11307
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Well, I’m half way through Week 4 and since my new GP won’t do any blood tests for me, I’ve contacted the Clinic where my previous GP moved to, he’s on leave until end of the month but doing some weekend work at another clinic. I’ve managed to get in on Sunday, 14th Feb. I know he will support me, as he has monitored me for 8 years already. But won’t have any results until week 6, probably.

    My sx have remained consistent in the last couple of weeks.
    * I have a bit more energy than pre-tx during the day but very tired and lethargic in arvo/evenings.
    * I am sleeping very soundly, although I ‘snap’ awake around 5 am, to take my dog out, then go back to sleep easily and ‘snap’ awake after about 2-3 hours. Very wild, lucid dreams – I’m remembering and ‘feeling’ all the details, which is unusual because I often only remember bits and pieces and forget as the day goes on.
    * Some nights, e.g. very hot ones, I can’t get to sleep and my mind is wired and my body is in pain.
    * I still have the burning, prickling and numbness in hands and feet 24/7.
    * Intermittent sharp, stabbing headaches from base of skull upwards – occurring less frequently.
    * Severe sweats and dehydration, I always drink lots of water but this needs electrolytes to improve, otherwise I’m very dry, skin and mouth, dizzy and weak.
    * I still feel very emotional and teary at times, sometimes over a song, a memory, a news topic or just generalised and no associated thoughts.
    * I have been having short-fused outbursts but resolve quickly; not feeling sociable at all.
    * I’ve improved regarding anxiety – no more persistent low grade anxiety and agitation; but still have acute episodes that are resolving quicker than usual. Depression still present and having my typical highs and lows – some very low.
    * Persistent bloated abdomen, no pain, just discomfort; GI problems and restricted diet as before.
    * Kidney pain comes and goes.
    * Blurry vision, sometimes so bad I can’t drive.
    * Severe fatigue and going on ‘the nod’ -again, very scary when driving.
    * Appetite normal to low and craving sweets at times which is not normal for me.
    * Some days clear-headed and others still very brain foggy and have speech problems – can’t find my words and things come out all jumbled up.

    I do feel reassured reading other people’s posts regarding their physical and psychological symptoms, knowing I’m not alone in this experience.
    All the best to you all #love #love :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Jaz’s Sof/Dac Journey Gen 3a #11306
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Great news for You Jaz to finally get it sorted and be UND :woohoo:

    I too have noticed the difference in ‘ranges’ for blood tests between different Pathology Clinics. I was with one Dr for 8 years and I used the same Pathology clinic, then he moved away about 6 months ago and I had to change Dr and Path. I noticed their ranges for LFT’s and other blood items were different, as was the Path Dept within the Public Hospital. Also, the VL’s – some do <12 and others <15.

    I won't be able to get my 1st bloods done until week 5 - 6 - so I'm really only interested in whether I'm responding, since my sx aren't giving a positive guide.

    All the best with the rest of Tx :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Countdown begins for the Magpie #11303
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Magpie, I too have had the skin reactions as described here, not on Riba, just have sensitive skin and it’s more so on Tx and in the sun – even minimal exposure gives me red blotches or those little bumps.

    If I have only minor ones on arms I rub in Lavender Essential Oil -it stops the inflammation and itchiness.
    I personally wouldn’t advise using Sorbolene – it is made from mineral oils e.g. paraffin oil; it is not a moisturiser but a barrier cream. This means the oils sit on the surface and create a layer on your skin that traps any moisture there and this can give temporary relief of dryness. But it doesn’t penetrate the skin to moisturise it and hence the problem returns and in the long term it’s believed to affect the skin’s natural barrier reaction to environmental effects.

    Moo Goo products, as Ariel suggested are good as they don’t contain mineral oils.
    Rubbing in Coconut oil, which a great for hydrating skin as it penetrates deeply, moisturises and softens skin. Also Jojoba, Rosehip, Sweet Almond (Cold-Pressed) or Avocado oils are all fantastic for dry, itchy skin problems and especially for sensitive skin issues.

    I’ve been using an Organic Product – ‘Natural Instinct’ Body Lotion with Jojoba, Rosehip and Avocado oils. It has NO Petrochemicals, Parabens and PEG’s, Silicones or Mineral Oils.
    I got it from a Chemist – one that carries lots of usual Health Store products.

    Good Luck finding what works for you :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Honker Heads for Hobart #11302
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Sounds like you’re having a great time Honker – GoodFor You :cheer:

    Yes, those early days with peaks of energy but crashing in arvo – that was me – very familiar sx mentioned here.
    All the best on this wonderful journey that you are undertaking- what a wonderful memorable experience it will be for you to have gone to beautiful Tassie and started Tx there #love :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Coral vs Hep C #11301
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Yes, wishing you good luck too Coral. At least your LFT’s are good and the extra course of Tx will hopefully be the answer for you to get the UND and stay that way :)
    I am on 16 weeks of Sof/Dac, but G3a, no bloods yet even though I’m in week 4. GP wouldn’t do them so going elsewhere, I won’t know if I’m responding until about week 6.

    All the best to you #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Afraid to take the meds due to severe anxiety #11299
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    I also relate to those of you with long-term chronic depression and anxiety. I’ve been on antidepressants and other meds for many years. Herbal supplements were never enough to deal with the severity of my condition. I’m a big believer in using alternative therapies but also recognise the need for conventional medicine too, so I balance the two.

    I’m in week 4 and have definitely noticed a reduction in my usual persistent low grade anxiety and agitation. I have had no change in my depression levels, in fact I’ve really been having some lows and very ‘teary’. I also still have high anxiety episodes but they are resolving quicker than usual.
    I’m taking Magnesium chelate (combo form), vitamin B Complex (slow release), Calcium + Vit. D and Omega 3. If I’m having bleeding gums, bruising etc I take a Vit C + zinc boost. I also use Essential oils, Bach’s Rescue Remedy and Australian Bush Flower Remedies.
    I’ve really noticed the difference in the past if I stop the Magnesium – really bad cramping and muscle spasms, especially legs at night; feeling ‘stressed out’ and generalised high anxiety.

    I understand your feelings of anxiety over starting Tx, Hope, because you can’t know how you will respond and you need to know you will have support from a caring Dr who will monitor you. Glad people have pointed you in the right direction regarding GP2U- Dr Freeman; also maybe you might need prescribed meds to help you through. You could try sub-lingual, liquid or spray forms of Tissue Salts like magnesium or anxiety blends to help with acute anxiety episodes, since you have a history of using alternative therapies.

    Wishing you all the best on your journey and know that you are not alone and popping in here will remind you of that #love :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Dan’s Twinvir story #11297
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations Dan on the UND :cheer: , it seems to have given you peace of mind. Probably a good idea you’ve decided to complete the 12 weeks, there’s not enough known yet about the DAA’s and the length of Tx. It might be like taking a course of antibiotics, you have to complete the ‘course’ not stop when you feel better. Obviously Gilead etc. are trying to find the shortest and most successful length of Tx to save on their subsidies, so there’s lots of data being gathered.

    Hope the rest of your Tx goes well :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

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