Erica - FixHepC - Page 2 of 14

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18 October 2017 at 7:56 am in reply to: Some GOOD Side Effects #26936
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
”James-Freeman-facebook” wrote:

Hi Erica,

Best you stop the phlebotomies!

Ferritin is an acute phase protein. Long story short, any illness tends to elevate it and Hep C certainly can.

A normal diet and no more being bled would seem to be in order…..

Hiya Doc! I was supposed to go yesterday actually. I decided not to because I like to give that vein a day or two to recover. But as it turns out, I don’t need to! How awesome is that?!

How often do you think I should check the iron levels going forward? I was thinking I could go to the place where I get the phlebotomies in a few months, or if I’m feeling that funny, heavy iron overload feeling. They always do a little pin prick test to see the level before they do it anyway. So if I don’t need it, I won’t get it. I’m guessing it’s just something to check periodically.

Also check this out:

IRON, TOTAL 51 (ref range 45-160 mcg/dL)
IRON BINDING CAPACITY 423 (ref range 250-450 mcg/dL (calc))
% SATURATION 12 (ref range 11-50%)

I’ve gone from hemachromatosis to almost anemia in a month! Haha. Good to know my body responds well to treatment.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
18 October 2017 at 7:51 am in reply to: Some GOOD Side Effects #26935
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Greedfighter wrote:

That’s great news Erica! Did you also get any other blood work (viral load, enzymes, etc.)?

Thanks! Yeah I did 6 tests yesterday, but so far only the iron ones are back. I’m still waiting for the rest. But if the Ferritin is any indication, I’m very excited.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
14 October 2017 at 2:19 am in reply to: Joint stiffness during treatment? #26925
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
”James-Freeman-facebook” wrote:

Hello Erica,

Yes it is probably the medication, given the timing.
There is a lot going on at the beginning of treatment and things usually settle.
It is probably gout. Although the big toe is the common joint it can affect any joint.
Getting your uric acid levels checked would be a good idea.
Non steroidal anti inflammarories would be worth trying. Voltaren is my go to one.

Thanks so much, Doc. I think I’ll just wait and see what those 4 wk test results look like first. Most of the foods I’m eating for high iron are the same for gout anyway, so that works out. I’ll eat some cherries. More soon.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
7 October 2017 at 6:15 am in reply to: Joint stiffness during treatment? #26913
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Yeah it’s true about the iron levels. Just the timing is weird. I just started getting therapeutic phlebotomies right before treatment, which is lowering my iron levels. And I’ve been specifically eating foods which aren’t high in iron, not eating anything which increases the absorption of iron, etc. So if that were the cause then it should be getting better. But it almost immediately got worse when I started the treatment. So that’s the confusing part. I need to identify the cause of it so I can fix it. At 4 weeks I’ll be getting more blood work done. Perhaps that will shed some light on this. I wish I could afford to just test like EVERYTHING IN THE WORLD. haha. Those fancy nutritionist blood tests are expensive! I’ll be getting health insurance in November, so then I can go crazy on the blood tests if I want to.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
22 September 2017 at 7:32 am in reply to: It’s on! #26870
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
beahavan wrote:

Glad to see that everything is going smoothly. Can’t wait to see your results.

Thanks so much, beahavan. I can’t wait either!

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
22 September 2017 at 4:46 am in reply to: It’s on! #26868
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Greedfighter wrote:

Thank you!

My only tip would be to take the meds at the same time everyday.

Thanks. Yeah I set an alert in my phone. I take them after gym and before bed which is somewhere between 11-12. My alert is for 11. So far so good.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
22 September 2017 at 3:17 am in reply to: It’s on! #26866
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Greedfighter wrote:

Hi Erica,

I am posting a link to an older thread. It’s regarding Milk Thistle; it is recommended that you stop using it during treatment.

https://fixhepc.com/support-forum/supplements/643-using-milk-thistle-whilst-on-treatment.html

OMG…THANK YOU SO MUCH. I’m trying to do everything perfectly. Ok all those teas are officially cancelled for the next 80 days! And congratulations on your own success with treatment. Any tips I’m all ears. As of day 4 it’s been fairly uneventful…which is just how I like it. I eat healthy, I exercise, I get good sleep and drink plenty of water.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
19 September 2017 at 8:04 am in reply to: It’s on! #26861
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Doc, that is EXACTLY what I’m hoping for. So far so good. Nice healthy food, tons of water, some green tea and milk thistle, some cal-mag powder, a 30min run. I’m in the mood to murder some virus. Who’s coming with me?!

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
18 September 2017 at 8:33 am in reply to: It’s on! #26857
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Oh Coral, that was such a nice communication! Yes, according to the tracking it will be here sometime in the next 18 hours. So excited. Nervous and excited. I can’t wait to see what it does and how things change. I’m pretty perceptive of my own cellular goings on, so I’m very interested to see what my body does with the initial shock of these drugs coming in and murdering this virus. I have a feeling it won’t be entirely comfortable for a few days. Haha. But soooo worth it.

Thanks for letting me know how this experience has been for you. I’ll keep you posted on what happens. It’s nice to have people who understand.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
18 September 2017 at 8:23 am in reply to: It’s on! #26856
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Thanks so much!

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
18 September 2017 at 12:51 am in reply to: It’s on! #26851
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Thanks! Yeah after your last message I went out and bought a larger notebook for more columns. I want to keep track of EVERYTHING. I’m sure it will help me and it might help others too down the road, if I find common denominators.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
17 September 2017 at 9:49 pm in reply to: It’s on! #26848
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
beahavan wrote:

I also want to encourage you to keep a log or dairy of your treatment. You can record the time you take the medication each day and any new symptoms or physical and mental changes. I can’t tell you how many times I have referred back to my notes.

So interesting that you mentioned that. I was just talking to my friend about that idea last night. Like something that tracks what I eat, how much water, how I feel etc. Ok I collect blank notebooks for my work and art and stuff. So I’ll just use one of those and work out what things I want to monitor. I’m a little nervous, I’m not going to lie. You’d think I’d only be excited, since I’m now going to be curing something that would have eventually killed me. But no, I’m still nervous. The unknown…

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
17 September 2017 at 8:28 am in reply to: It’s on! #26845
erica
- Topics: 6
- Replies: 28
- Total: 34
- Treatment Warrior
@erica
Yeah, that doesn’t sound too bad. Annoying, but could be so much worse. I had tinnitus for a couple years a long time ago. Never knew why, and then it just sort of disappeared. So that’s always a possibility, too. Thanks for the tips. I’ll make sure and drink lots of water and sleep.

Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
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