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You’re locked and loaded now, Splitdog! Hope you know how inspirational your story is. You had a temporary setback, brushed yourself off, and got right back into the game with a brand new set of high tech brass knuckles.
Looking forward to the news you’ve started the new treatments! You WILL beat this.
beaches wrote:I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had.
It really feels wonderful to have those results in hand doesn’t it? “Closure”. There’s nothing like it!
So happy for you, pal!
I completely agree with regard to generics RHF. They are saving both our lives!
The sad fact is that at the rate people in the US are receiving treatment, most Americans currently infected with HCV will probably die of the disease without ever receiving treatment, and Gilead, and their big pharma competitors would no doubt allow it to happen.
For most of us, including myself, generics are the ONLY viable option. So glad I found my way here!
I’m not at all sure that big pharma shareholders would so quickly dismiss a worldwide HCV eradication rollout..
As for Gilead’s current share prices, the US insurance marketplace they were counting on to shore up profits is collapsing. Their current pricing and profit structure is a house built upon sand, and they know it.
Seekingcure wrote:Hello everyone. Recently diagnosed , genotype 2a or c.
Fibroscan f4 Andy a3. Declined by insurance. Found fixhepc buyers club. Praying thier legitimate. I’m in US hoping I can receive meds without issue from customs .is anyone from US and can you tell me your experience. ThankYep! I’m in the US, and had exactly the same concerns. I signed up for the REDEMPTION e-trials and paid for my meds. Just a tad over two weeks later, my meds had cleared customs, I was picking them up at the post office, and later that day, I had my medication in hand and was starting treatment.
My Hep C viral load was over 9,000,000 at one time. I finished treatment almost 6 weeks ago, and got my SVR4 (undetected) week before last.
My gastroenterologist just basically shoved me out the door last week, with a “see you in a year” because my blood tests were great, all in the normal range, and she fully expects that I’ll remain UND through SVR12.
So is this legit? Yeah it’s legit. I bet my life on it, and won!
You can read about my experience here:
http://fixhepc.com/forum/patient-stories/1061-fitz-starts-redemption-3-trial.html?limitstart=0
LondonGirl wrote:Thanks Fitz
I haven’t tested since EOT, but at 10 weeks, LFTs were all within range and Alt good.
I’ve kept myself busy this weekend, but every now and then, a feeling of excitement followed by a feeling of panic comes into my head hmy:
to you and wishing you the very best of health and continued excellent results LG
We all know that feeling, LG, and we’re all SO proud of you,
You are a true warrior and a rebel, and you’ve done it all with extraordinary courage, and tremendous compassion.
LFTs within range 10 weeks after EOT…. You are crushing it!
A quick word of encouragement, LG.
Went in to see my specialist last week after SVR4 results. It was pretty clear from the results and our conversation that she pretty much considers her work to be finished with regard to my Hep C treatment. We talked briefly about the odds for long term SVR after acheiving SVR4, and they’re excellent.
She said to go ahead and have EOT +12 labs done as they have already have an order for it, but that she wouldn’t need to see me for another year.
She then gave me the standard required warning abut reinfection (actually laughing a little when she had to do the bit about IV drug use). It was music to my ears though, because I knew what it meant. She believes I’m cured, just as I believe you are cured.
Looking forward to confirmation of your SVR12, LG. I know you’ve got this!
Wishing you a full recovery, and many, many healthy years to enjoy it Claude.
Your UND result is a real blessing. HCV is the last thing you need on your plate as you heal and recover your strength, and it looks like you’ve nailed it.
Prayers and well wishes!
Fitz
Gilead’s stock price (IMO) is suffering from a case of ‘bad math’. In the US alone, there are 3.5 million with Hep C – and the number is probably double that in all reality.
Currently, US health insurance companies are dropping like flies from the Obamacare exchanges, which means that although the rate of infection (thanks to, ignorance, an IV drug epidemic, and Gilead’s current predatory pricing) is increasing, it is impossible to increase treatment numbers because the (cash) pipelines are quickly drying up. Add to that increasing competition in the HCV market from Gilead’s big pharma competitors, and the writing is on the wall.
Just for fun – because it is unlikely to happen – lets say Gilead decided to lower the price of treatment to $100 a week for a 12 week course of treatment, from the current $7,830 a week, and the US government rolled out and HCV eradication program like it did with Polio and Smallpox eradication.
Dr Freeman has estimated the cost of making a full 12 week course of treatment at around $100. To keep the math simple, we’ll use that number as our cost figure. Then imagine that at a profit of $1,100 per treatment, Gilead sold 7 million treatments in the US alone.
That’s a return of 77 billion, on a what – $11 billion dollar investment? Gilead could scoop the competition, and completely capture the market.
Hell, if they could roll it out worldwide – that’s easily 180 million times $1,100.
Just my humble opinion, but this will happen eventually. Don’t know if the big phama bean counters read this blog, but if they do the answer to their profitability problems is all right there, as plain as the nose on their face.
Their problem is, they cant put their short sighted greed aside long enough to make their shareholders some real money!
7 October 2016 at 10:16 pm in reply to: frigtened by possible severe irreversible side effects #23611Speaking from my own experience, in spite of all the potential benefits, deciding to treat and then making the leap of faith to treat with generic DAAs was a surprisingly difficult decision.
A friend of mine framed it this way…”When you’ve woken up for 30 years (or alternatively, since diagnosis) to a punch in the face – life is hard to imagine without it”
Fingers crossed for you, LG! Not that you’ll need it. Those 10 week LFTs look fantastic!
Just a hunch, and I may be completely off base, but if it were me, I’d have my abdominal Aorta checked. Some of us have a little bulge (ecstasia) there. I’ll go out on a limb and say mine is HCV related – because it is.
I read up on this after I found out it was there, and what you are describing is one of the ways it presents.
Apologies in advance for any undue concern this post may generate. But, no one is talking about this stuff, and from what I hear and see, it’s not that uncommon.
I’m getting in touch with my GP this month for a follow up scan.
Legal US Importation of lifesaving generic clones of Harvoni, Sovaldi, Daklinza, and Epclusa is currently possible. And for many, it is actually affordable as well.
Save your own life. The answers are all right here on this very site.
http://fixhepc.com/getting-treated/how-to-do-it/worldwide-import-regulations.html
Thanks to Mike G. for helping me find my way here. You are the very best, brother!
Well LG, I suppose the forum is a sort of mutual admiration society. That, and a whole lot more.
Most of us got here out of options, at the very end of our ropes, suffering from a deadly systemic illness that had already half killed us, after being denied lifesaving treatment by insurance companies, or without adequate (or any) insurance, and way too poor to pay the $94,000 ransom to save our own lives.
Enter Dr. James Freeman, GP2U Telehealth, Dr. Debasis and Monkmed of India, FixHepC, and first rate generic clones of those potentially world changing, lifesaving medications that we thought were completely out of reach for us.
Enter hope. Enter access to treatment. Enter healing. Enter a cure!
What had been impossible for us was now suddenly possible and well within the reach of practically anyone – exactly the way it should have been from the very start.
There is so much here to admire, and so many, so many cures. So much healing. So much hope.
Sincere thanks to Dr. James Freeman who had the balls to buck the system to heal us, and the vision to place this miracle within reach of the entire world.
Respect and gratitude.
Fitz
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