Forum Replies Created
-
AuthorPosts
-
Don’t worry Trublu85- that is the case for most people! no side effects is good luck, the pills are magic and do the most incredible job. You are 2 weeks in, in fact they have done the biggest volume of virus killing, rest of the time is clearing the tough stragglers. Keep up the water and before you know it there will be blood tests to show you, it really is all that.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi John, needs more expertise than I have but I recognise that going crazy trying to figure it all out so here are my thoughts in the meantime:
Gen 1 B is the jackpot, congrats, highest cure rate, and they are all good these days.
Weight shouldn’t make any difference to cure. I lost about 20 kg on treatment- I needed to, another 10 or so would be good, but it was certainly high at the start. Being well, almost straightaway, helped make decision making easier. I have seen all shapes and sizes go through treatment over past 2.5 years.
Really, the disparity in tests shouldn’t make too much difference either, only to the length of treatment you take, and I would try not to worry about it- the thing is to get treated asap. I had cirrhosis for 18 years, confirmed through biopsies and scans, and when I started treatment my liver stiffness was 40kPa so it was a sad old rock. My spleen was enlarged, tumour markers up, ALT climbing.
It has all melted away, I could feel it and have the scan evidence. My liver is now 95% F0, with one rough edge around the F2 mark. I had been told, still see people told all the time, this is impossible. We are rewriting possible with these DAA’s.
What matters though, is how we feel- I felt better in a few days, obviously I wasn’t, for a while, but I am now, it’s still incredible and I just love seeing other people start, succeed. Looking forward to hearing you have got the meds started. Don’t put off for weight loss.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Brilliant news Vivicus, it is an unforgettable moment, isn’t it. May all your tests say undetected forever. A way to go before that, but you can’t get better news than no virus visible. It is not just words on a page, is what your body’s new reality is. It really is incredible.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Thinking of GAJ too Ariel, sorry for your, and the worlds loss. Here is an old classic I bet he knew, things he liked, great vocals, lyrics and a bluesy jazzy sound
https://www.youtube.com/watch?v=4Z7vz1yaYuc
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi Tracy,
I can categorically confirm this is legit! I remember thinking that too! I have now watched thousands of us do it, I have been well for a couple of years thanks to this site. I make a point of creating evidence in the media- like Dr James says, can’t make stuff up in the media- that was what convinced me in 2015. The first of many times I told the tale was local paper: https://www.odt.co.nz/news/dunedin/hep-c-patient-goes-offshore-cure
And maybe I could elaborately fool them! But not the World Hep Alliance, part of WHO- I’m in their documentary from last year, at 8 mins 30: https://www.youtube.com/watch?v=cu0xS0gWg6I
And recently :https://www.stuff.co.nz/national/health/101319893/thousands-of-hepatitis-c-sufferers-unaware-a-cure-is-within-reach
So, congratulations, you found the answer, like I did, nothing was ever the same again. Good job on your research. Enjoy the journey and good luck. Keep us up with how it is going
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Rohcvfighter, “big ridiculous circus”
says it all for me. Applies to so many things
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Putting this back up; I’m aware there are new people all the time looking at the website- if you are one of the now nearly 450k! people who have seen this talk and are visiting the forum to check us out, welcome, try a few search terms, look around the tabs, photos, ask a question.
450k is very impressive for youtube!
If you haven’t seen it yet, please view, like, comment. It all really helps.
https://www.youtube.com/watch?v=U7-i14IrrMM
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Thanks everyone, this probably belongs in Fun Stuff but will put it here, latest collaboration with my friend the cartoonist, Sas Peppercorn, please share
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I had been planning for a while to highlight that butterfly image, and a risk factor, by getting a tattoo- I did it, and got the news story, but they didn’t show the finished butterfly!
They always get at least a couple of things wrong. Happy to see they shaved a couple of years off my age, and omitted all the ways I may have got it! https://www.stuff.co.nz/national/health/101319893/thousands-of-hepatitis-c-sufferers-unaware-a-cure-is-within-reach
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
“A human being should be able to: change a diaper, plan an invasion, butcher a hog, conn a ship, design a building, write a sonnet, balance accounts, build a wall, set a bone, comfort the dying, take orders, give orders, co-operate, act alone, solve equations, analyze a new problem, pitch manure, program a computer, cook a tasty meal, fight efficiently and die gallantly. Specialization is for insects” RobertHeinlein
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Marlon Williams- warning moving content, and voice
https://www.youtube.com/watch?v=utlNPdnkcDc
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
This is distressing, I hoped he was on holiday. How lucky we were to have him travelling with us! He and I started and finished treatment a few days apart. So kind, and wise. He literally was the moderator.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Good plan Sharmon, you have done your homework. Welcome aboard the adventure to wellness. I can report, 2 years later, it still feels wonderful, I still catch myself and compare to the previous 3 decades and think wow.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I am bumping this back up, in case anyone missed it, because it has lit something of a fire- look at the number of views, going over 200k today probably! https://www.youtube.com/watch?v=U7-i14IrrMM
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
15 December 2017 at 7:07 am in reply to: no longer furtively reading posts here, joined Redemption trials #27138Pretty close RSF, I think of it as translating- strength/power to Mnem, and Kiwis stand up strong!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
-
AuthorPosts