Home › Forums › Main Forum › Patient Stories › Geopolitics › HCV people should take control over their own life
- This topic has 9 replies, 5 voices, and was last updated 7 years, 2 months ago by
rohcvfighter.
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17 February 2018 at 11:10 pm #27447
An old, wise man once asked me, “Have you ever heard of a government program that worked, reached it’s goals and then was dismantled?”
Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000Started generic Epclusa Sep. 23, 2017
4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.Thank you Jesus.
Thank you Dr. James18 February 2018 at 4:18 am #27448Have you ever heard of a government program that worked, reached it’s goals and then was dismantled?
Fair point, but there are two that I recall, both a long time ago now…
https://en.m.wikipedia.org/wiki/Lend-Lease
And this one one of American awesomeness…
https://m.youtube.com/watch?v=g25G1M4EXrQ
YMMV
18 February 2018 at 10:55 am #27450(Most of the) politicians are like a flock of sheep: they occupy a position in space and blindly follow the path where the flock goes, applying often the law/rules by the book and not by the spirit, bringing no contribution to the wellness of their citizens.
From time to time we see some “rebels” who are able to make a difference. Too bad they are so rare ….
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved18 February 2018 at 6:57 pm #27453I live in California, USA. My doctor submits a request for HCV med approval through a company called Dolphin. In 2015 HIV co-infection was given high priority for treatment. In 2018 it is no longer given high priority.
In a previous post I mentioned that my doctor said in 2015 that I would be last in line to get the treatment because I was F0-1 even through I was co-infected. No consideration was given to the other horrible effects of the disease on my system. In 2018 med approval is now more difficulty.I finished treatment through Dr Freeman and Monk Med in November 2016. Every day I wonder how terribly I would be suffering or even if I would be alive if it were not for Dr Freeman and fixhepc.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED20 February 2018 at 2:10 am #27455Rohcvfighter, “big ridiculous circus”
says it all for me. Applies to so many things
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
20 February 2018 at 8:52 pm #27456The Department of Health and Human Services (HHS) and the Office of Civil Rights (OCR) are trying to provide broad and seemingly unfettered “protections” for individuals and entities that refuse to provide healthcare services on the basis of religious, conscientious, and/or moral objections. This is sanctioned discrimination by the United States government. We will be thrust back to the early days of the HIV epidemic. This is happening today.
https://mailchi.mp/tiicann/hivhcv-co-infection-watch-enters-its-fourth-year-1345749?e=4d46001cee
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED20 February 2018 at 9:37 pm #27457Forcing people to perform abortions is a VERY slippery slope.
Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000Started generic Epclusa Sep. 23, 2017
4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.Thank you Jesus.
Thank you Dr. James20 February 2018 at 10:13 pm #27458I agree. It is the expansion of existing exemptions that is so worrisome.
“Both Congress and courts have, in the past, allowed conscientious exemptions to stand for specific procedures and services – abortion, sterilization, contraception, and assisted suicide. These exemptions are, according to the document put forth by the Trump Administration, not good enough. As such, they propose expanding those exemptions to include virtually any healthcare service one may find objectionable, up to and including refusing to provide services to persons whom they find objectionable. This amounts to nothing less than sanctioned discrimination by the government. “
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED22 February 2018 at 8:53 am #27465@beahavan…. it makes me sad to read it… and at the same time it makes me think that it will open the door to more abuses and blackmail towards those who need medical services. I remember some cases that were presented several years ago in television when some patients were denied medical services (for instance dental work) because the patients were having a hard to treat disease.
We live already in a society where stigma (of various origins) is met very often and such things will do nothing else but to increase it.
Education is necessary to fight against stigma and I am not referring to university studies, rather to the simple fact of listen and learn from those who know (and if possible, also do some research) and then to seek to teach others. And this can be done on all levels in a society, it requires only to have an open attitude towards learning & communication.
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved -
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