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Viewing 15 posts - 1 through 15 (of 1,348 total)
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  • in reply to: Seriously worried that I may have relapsed #26275
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey RSF – Any digestive pain or tiredness etc etc can bring us back to the fear we lived with before and you are not alone in these fears. So glad all is well, but are you drinking the right wine? #flower ;) #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: keith’s retreatment #26273
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Keith, So sorry to hear the first treatment didn’t didn’t work, I guess you know I’m with Dr F on this in that 8 weeks, while working for some, doesn’t always get job done. I reckon you’ll have a very good chance with the Sofo/Dac, is the Riba on the NHS? and are you taking it just for the first 12 weeks or the duration or at the start and end? Excellent they’re supporting you on this path where they can’t fund the treatment.

    My advise to you, is check bloods towards EOT too and if you have any doubts speak to Drs Freeman or Dr Debasis or both, but if you’re doing 24 weeks I also agree with Dr F your chances are excellent. I ended up doing 26 odd weeks and took 3 meds for the last month (amazingly without sx) – In my case I felt I responded much better to the Sofo/Dac than the Sofo/Led Why we don’t know, but Sofo/Led can occasionally have some absorption issues for the minority. Fantastic you don’t have resistance , I reckon 8 weeks just caught you a bit short.

    I wish you well my friend, I’m not on here so much these days as life is busy, but you have my email. it must be hard starting all over again and I remember well my fragile mental state as well as the physical, both are much improved now. It’s a long journey for you, but Keep the faith & try to do nice things that take your mind off it all whenever possible. Talking to Dr Debasis is good for the positivity and he was such a fantastic support. Really, with Drs F & D you have the very best non-biased advice. I’ll keep an eye out for your posts when I drop by and wish you well.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Coral’s SVR12 #26272
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Dear Coral, I am so absolutely delighted fior you my friend & sending you #love and happiness #flower #flower #flower #flower #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: First dose today, the journey begins…. #25816
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news Hank – Congratulations :+1: :cheer:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I am having a catch up – Wow SO much great news – Congratulations Donna :cheer: #flower #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Dan’s Twinvir story #25814
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yay – Great news Dan :+1: :)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Major UK Hospitals that monitor generics #25813
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news UK Hopeful – I’m looking forward to reading about your Mum’sSVR12 – :+1: #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25812
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Fara, Matt Jimmy – Catching up on all the fantastic news :cheer:
    Such wonderful reading
    Big #love to all.
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Harvoni vs Daklinza #25489
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I support this by my own experience as a previous GT1a that extended with Sofosbuvir/Daclatasvir . :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Treatment for genotype 1 UK #25488
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Boocock,

    I am sorry to read your post regarding your brother, but am pleased to also able to offer hope in that you are in the best placed for independent expert advise.

    I am UK based and am now thankfully clear of HepC thanks to FixHepC’s Dr Freeman and his partners Monkmed – To whom I am forever grateful.

    My own experience of the NHS was that they set you an appointment for a few months time saying something like ‘we are hopeful we may be able to treat’ etc Rather ambiguous. I decided not to wait as I was feeling ill and getting nowhere. The lack of a definite start date or even year, caused added stress and I didn’t feel at all supported by my NHS team at that time.

    As others here have said, I would book an online or telephone appointment with Dr Freeman to get an independent, unbiased opinion. There are also many more medicines available to the ones the NHS can offer and I believe the advise from Dr F superior to NHS advise as the latter are restricted by budget and bureacracy.

    You may well get an offer of treatment here for your brother, but I would still advise Dr F’s second opinion as to the best options as back up, if not the best course of action to help him back to good health. My story is an unusual one one. If I had been treated by NHS I would have surely failed the treatment as I was one of a small % to have a slow response and would not have been offered the treatment duration or medicines that finally cleared the virus for me.

    I feel it’s always best to know all your options and therefore make an informed decision as to which path to take. If you take the NHS route, they may restrict recommended treatment length, so you can add a top-up IF needed. (as I did) . I strongly feel this is something that needs to be shared.

    I don’t see any need whatsoever in these times to accept a treatment plan that involves Interferon, Are they still actually using this? I do hope not.

    Anyway, rest assured, you are in the right place to get the very best independent advise possible and the support of a really genuine and caring community too. If accessing the medicines this way, my opinion is, it is essential you do so through a tried and trusted supply chain that also offers medical support and advise throughout treatment as they do here. Personally, I also would go for licensed generic medicines as the best option too, (although others here may have a different view on that) which FixHepC have access to.

    I do hope I’m not bombarding you with info, it is a compkex disease and I wish you all the very best for getting your brother the treatment he needs and if I can be of any advise re NHS please feel welcome to PM me (unofficial as yet) patient advocate for UK patients seeking treatment via the generic route.

    Warm wishes, LG.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: The second wait! #25484
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yay Paul :cheer: – Fantastic news to brighten a rainiy morning – So absolutely delighted for you :+1: :+1: :+1:
    It was the long hall for you but as RSF says, I hope you feel better every day and yes, have some fun – You deserve it my friend ;)
    #love LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: How manny GT3’s on this forum are cured? #25483
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Jorge, I’m was not GT3, but 1a – the next slightly tricky one. I had extreme highs and lows during treatment too. Within a few weeks I had more energy , feeling loads better & had a ‘spring in my step’ it was awesome, I believe the inutial feeling of wellbeing is caused by the reduction of inflammation which is quite rapid. Then I got a chest infection and felt dreadful. There are indeed great changes happening within the body, just remember they are for the better.

    My advise is, keep hydrated but don’t over-hydrate, eat fresh wholesome food and take Vitamin D at least 4 hrs away from your meds.

    If you treated via Redemption, you can contact care@monkmed.com and their excellent Dr can advise you throughout by telephone, it’s helpful if you email your bloids etc and explain any concerns; he was a total rock for me throughout, no problem was too small for his attention. Combined with Dr Freeman and his outstanding knowledge on all things HepC, you could not want for better advise and I suggest if you have any concerns, you take advantage of this.

    Good luck with your treatment and please do seek advise throughout treatment, of the above. I am now HepC free btw thanks to all of the above .

    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Vitamin D decreases HCV cell replication #25481
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good to read. :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Cured!!! UND @ 12 months EOT #25480
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Jimmy – Delighted to read your happy news :cheer:
    Here’s to a happier, healthier life – Enjoy :+1:
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Another success story for Darvoni from Bangladesh #25479
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    They took their time to come around, thankfully cautious support is now available for generic meds, but I’m not sure they’re totally up do date on the detail. I do believe their association with their sponsors has restricted them in the past. I felt their court case wouldn’t go anywhere, patients money paid for it.

    However, there are some good, kind people volunteering there, most ex patients themselves, just not sure they’re totally in the loop and certainly not so informed as this wonderful place.

    I called them once and they advised me to wait on NICE etc, so glad I didn’t follow their advise ;-)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 1 through 15 (of 1,348 total)