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Great news, magpie
Apologies for my late joining of your thread…I’ve belatedly caught up on your whole journey in one go tonight lol
Really pleased for you, and I hope you continue to be so post EOT
Fingers well crossed!
Thanks very much isaing
Only about a week to go now…I’d be lying if I said there wasn’t a slight measure of trepidation involved
But the proof of the pudding, and all that…we shall see!
Chejai wrote:Hi Ariel,
Originally Dr James prescribed 16 weeks of Sof/Dac because Genotype 3 is a bit tougher to beat and research so far indicated 12w tx-96% ( hope I’m remembering this correctly) success rate; 16w better; then 24w if I wanted 99.9% (I don’t think there’s ever a 100% guarantee?)
It is always that last few% that are the tough persistent mutants, who may appear to be lying low while the war is on but when the DAA Army recedes they can multiply very quickly.
So, if I felt any sides I’m experiencing ok then I give it my BEST SHOT doing the longer course. Since most of my bad symptoms seem related to pre-existing conditions, I don’t really think – but won’t KNOW – how much of what I’m experiencing is a DAA side effect until after EOT.
I’ve decided I want to do the 16 weeks, maybe longer, now it’s on PBS. I want to be rid of it and no return visit like an unwanted house guest
I’m still very fatigued, struggle to get things done and have bad dizzy spells when bending/crouching down.
But the scariest thing is this burning, numbness on the left side of my face, my cheekbone swells right up, my left eye becomes really blurry, hurts to blink, pain all-around eye socket, becomes bloodshot and half-closed by night. I start out ok but as the day progresses so do the symptoms. You get migraines, like me and I get the aura, it’s like the prodrome phase (the days leading up to an attack) and the days after, the pain and tenderness and lurking headache, light sensitivity etc BUT add to that burning tingling pain that starts at temple/cheekbone, and travels down side of face, around left eye and even down the left side of my tongue!! As well as really swollen cheekbone and can’t wear glasses properly, have to sit them sideways
Anyway, I’m glad you are doing well and happy your daughter is safe. Start moving today so I’m off to sign contract etc.
Happy days My Dear Friend
I’m very sorry to hear you are having such a rough time, Chejai
It sounds hard enough to endure without going through treatment as wellIt does sound a lot like your pre-existing conditions, definitely. It must be difficult especially since you were feeling relatively good at the start of tx….hang in there seems like a platitude but I really mean it mate! So being Gen 3 inclines you towards extending the course? Since you were UND like me at 4 weeks, just wondering. I know that I will not be extending or retreating, in any case no matter what. Re the PBS though, I don’t think anything has really filtered through as yet – my recent extended hospital experience suggests than no one has heard of these meds, at least so far at the coalface. Maybe its different with a GP, you might want to start making some enquiries now if that’s the way you’re leaning atm.
All the best Chejai – seriously it sounds awful what you are going through. Fingers crossed you will find some relief for it.
Damn, late to my own thread! Ha, story of my life
Wow, thanks so much everyone for the kind words, very much appreciated
Still a bit sore and swollen atm but it will be interesting to see the surgeon in a couple of weeks time when the steristrip gets removed and we see the damage (as it were!) Considering I don’t think we’ve ever exchanged words, apart from a hello & handshake just before I went under lol
Ha, it sure does Mike. I think that first 4wk SVR is when everyone holds their breath heh. Only 3 weeks until your definitive SVR, great stuff! Everything crossed for you mate
Fantastic news, Sir!
Every chance of a sustained SVR now – way to go
Best of luck cbg and Mihai
Like most of us fortunate enough to wash up here, I am sure you’ll have no major problems with tx (if any). The old treatments it very definitely is not!
kenbasman wrote:Ooops Zhuk, i see you are F0. I doubt my comment applies to you.
No worries ken
I had the twinges fairly persistently (bare minimum a couple of times/day) pre tx, for about the last couple of years…links in with all my other symptoms which seemed to ramp up within that time too.
So I think the lack of fibrosis isn’t necessarily an indicator as to whether you’ll get those stinging pains or not.
I’m with you Chejai (as others have reported as well) Had rather uncommon energy (where I thought, ‘damn, is this what “normal” people feel like?’ Yeah apparently it wasn’t lol) the first 3 weeks but less and less since. Of course not the same crushing fatigue as before tx!
The bone/muscle pains have returned a bit now too, but the only very occasional liver twinges, which were absent the first month. Guessing this is just how your body reacts to treatment…just because you’re UND does not mean there’s still a battle going on to eliminate those few persistent bastards
Glad to hear it Paul! EOT first milestone, great stuff.
As you (and pretty much everybody) predicted, hardly any sides to speak of….it is really a walk in the park, compared. No wonder the docs weren’t willing to allow me to got on inf/peg…unless things went very bad
And thank god they never did. I will have everything crossed for you
So pleased to hear about the great news re your cirrhosis, LG, woohoo! Definitely a great weight off your mind, that is awesome
Sounds like you are absolutely heading in the right direction now too Tina – anything downward on your VL is promising. Onward from here, have everything crossed for you
Signed, and amended the email with a few personalised details. This is an unconscionable move, it will affect most those who can least afford it…and you are right Chejai, its a slippery slope if we start following the US model, however minimally – at first
Where’s that banana!
Thanks very much Joy! I appreciate it
Only 1 1/2 weeks to go on tx now, is going to feel strange not being woken at 6am every day by my phone heh. And I guess that is where the real waiting starts – to see if the cure holds out. Strange that even with such an almost unequivocal likelihood of cure, there’s still a small, niggling space for human doubt
I was amazed enough at the 6 week UND stats lol
and I don’t wanna see another sandwich any time soon (since they obviously couldn’t think of what else to feed me when I could re-start eating) lol.